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sits_inthe_corner
04-07-2008, 03:19 PM
How was your weekend. I hope you are feeling better. Keeping you in my thoughts. Let us know how your appoints go. :)

Oluwa
04-07-2008, 06:05 PM
Yes Rob, how are you doing...Making it a long weekend I hope. Thinking of you too...wondering how goes life...

I've been out of the loop for a bit..trying to jump in...

Hugs,
Oluwa

rob
04-07-2008, 10:58 PM
Hi guys,

I'm getting by, but it's been a rough couple of days. The pain meds and /or the naproxen have been making me sick to my stomach. My vision is still a bit fuzzy in the rt. eye, but it's not gotten any worse thankfully. My opthamologist appt. is tomorrow. MRI is Friday. A little good news-it was 60 degrees yesterday, and sunny. The seagulls are beginning to show up too, a sure sign of spring. How are you guys doing? I've read about both of your problems with your dr./rheumotologists. I'm sorry things are so frustrating for you. I've been a bit out of the loop here myself. I need to catch up a bit. It's 2 am, and I'm going to try to sleep. I'll stop back later to say hi. I hope you both get your dr/rheumo situations worked out. Good night, and I'll talk to you later.

rob

sits_inthe_corner
04-08-2008, 12:45 AM
:) Rob

We had the same warm sunny day here yesterday. Actually this whole week is supposed to bed nice. There's one day that is calling for rain, but it's still going to be warm. :D

Sorry you've not been well. Naproxen is sounding familier...I've been tried on so many drugs over the past two years I cant keep them straight anymore.

Good luck with your opthamologist appointment today. Hope you have some cool aviator sun glasses and baseball hat to wear. No sense in freaking your eyes out on the way there :lol:

Are you able to drive? When my vertigo is acting up I cant drive :( .

ColleenT
04-08-2008, 04:33 AM
Hey Rob,

Still thinking of you! Will send extra thought waves for your 2 appointments!

All the best to you
ColleenT

cheryl_v
04-08-2008, 05:40 AM
Glad to see your ok. Was a little concerned maybe app. went badly or something since you didn't reply back. I hope it went ok for you. I take Neproxen and it will upset your stomache. I take an acid reducer, Equate (Wal-Mart version of Zantac). Doc said take one every morning and one in evening if still gets upset. It takes a few days, but does work. Can help protect your stomache some from the harshness of some meds. Hope this helps. Milk or yogurt soothes quickly if need something now to help relieve. Hope this helps. :)

Faith
04-08-2008, 02:42 PM
Hey Rob,

I was wondering if you have Sjogren's? I was reading a little bit this weekend in Dr. Wallace's book and noted that one of the miscellanous auto-immune diseases that's Sjogren patients can get are MS and lymphoma.

I am praying that you don't have MS. Keeping you in our thoughts and prayers.

Faith

Oluwa
04-08-2008, 02:57 PM
Rob,

When you are up to it..loop back in...

In my prayers you are...hug.
Oluwa

rob
04-08-2008, 05:19 PM
Hi everyone,

I had my opthamologist appt today. Did a bunch of different tests. All the problems I've been having are consistent with MS. The opthamologist cannot make a diagnosis of course, but he was straight with me and said it was a very distinct possibility. I now have to see a Neuro-Opthamologist. I didn't know there was such a thing. The N.O. specializes in anything having to do with the optic nerve, and all its various connections to the brain. The N.O. is going to do a test called an MRA. I guess it's similar to an MRI. I go for the regular MRI this Friday. Then I get the MRA next week. I also discussed another odd symptom, when my eyes are closed, sometimes a loud noise will cause a bright flash of light in one or both of my eyes. I was reluctant to talk with him about it at first, how can a person "see" a sound, it sounds crazy. Well, it's not and there is a rather long name for this symptom. I'll have to look at my paperwork, to get the name straight, as it's something I'd never heard of until today. It's caused by the de-myelinization of nerves. It's like if you had two electrical wires that had the insulation stripped off of them and then you touch them together causing a shory-circuit. Unfortunately, this problem is also fairly typical for people with MS. Right now, I just want to crawl into a hole and hide, and then come back out when all of this has gone away. Of course, that's not possible. I haven't even started to think about what could happen to a person with both Lupus and MS. I want so much for this to not be MS. But, so far there have been nothing but more signs that it is MS, and there have been no signs whatsoever that say it's not. All I ever really wanted in life, was to have a wife, a family of my own. I wanted to pursue my lifelong dream of having my own business. Those things are gone, and I'm starting to accept all that. I'm starting to tell myself, yeah that stuff is gone, but I can start enjoying my new life and my new home here in Maine. But now, I'm beginning to wonder if I'll even be able to enjoy that. I don't think that's too much to ask for. I'm sorry if I'm rambling on a bit, I just don't know what to think at this point. Thank you guys for all your words of support. I appreciate it all very much.

Rob

sits_inthe_corner
04-08-2008, 05:33 PM
Gentle hugs to ya Rob,

You've had a kick in the teeth with this. I'm sure it's all set you back a couple of steps. Have you discussed this with your family?

I dont blame you for wanting to find a hidey hole somewhere....just dont lose yourself in it. :) We'd miss you too much.

One step at a time. One day at a time. I'm very glad you have your friend coming for a visit. I think you could use the company and the distraction :)

Oluwa
04-08-2008, 05:41 PM
Rob..hugs...

Don't fade away because of the unknown. Don't let your dreams shrink of enjoying your new life, new home. Our biggest fears are those that never come...so worry not about tomorrow.

Easy said than done. I know...I hurt inside for your disappointed feelings of what may or may not be.

No, it isn't too much to ask. And I will be asking God to see it through for you.

Enjoy today, look forward to tomorrow and don't let things that haven't happen steal your joy, Rob...

Head hugs...squeeze.
Love,
Oluwa

sits_inthe_corner
04-08-2008, 05:47 PM
Hugs Oluwa,

How are you doing today? I've not been on much...feeling kind of crumby but I have to go to work tomorrow no matter what.

cheryl_v
04-08-2008, 07:32 PM
So sorry Rob that your app. didn't go better. Please hang in there. Your strength gives others hope and help (me included). I feel so down and depressed at times, finding my way back again though. People like you and others offer support and advice that many of us need and hunger so deeply for. Hang in there, many of us need people like you. Lending you some of my support and gentle hugs........................................ get it? Hope it helps, I found plenty here to share :D .

Dear Oluwa, is your days any better? Hoping so for you. So many of you here are in my thoughts and prayers :turn-l:

I know I sound all mushy, just in one of my moods again. Forgive me :.)

Saysusie
04-08-2008, 08:31 PM
Hi Rob;
I'm sorry that things did not go as well as you wanted. Sending you warm cyber-hugs of understanding and compassion!!

Peace and Blessings
Saysusie

Oluwa
04-09-2008, 07:41 PM
Hey you, Rob..

I know it has been only a day....I am still checking in on you.

I hope you didn't shrivel and hide. Possibility news like that is hard to choke down..but remember it is still a question, an if, a maybe, it might, it may not be.

Fear of the unknown is taxing on the mind and spirit....so please focus on other things...live today, enjoy the day...

Thinking of you..hugs
Oluwa

sick n tired
04-09-2008, 08:55 PM
Hey Rob,

I am so sorry that you are going through this. I am thinking and praying for you......I wish that there were something that I could say or do to change things for you.

In Him

Karen

Faith
04-10-2008, 12:27 AM
Hi Rob,

I am keeping you in my thoughts and prayers. Don't hide too long; you are an inspiration to many on this board.

Sending hugs.

Faith

rob
04-10-2008, 09:37 PM
Thank you all for your support. It's been a couple of ugly, angry days for me. I have come to the conclusion that I survived a Lupus diagnosis and am still here to talk about it, so I will get through this new diagnosis as well. I have definite CNS involvement, so it's now a matter of finding out what the cause is. I have the MRI tomorrow. Supposedly, that will yield a definitive answer, and point me towards some more tests, and a plan for dealing with this. I've spoken with my family about it now, and they are worried, but know that we've weathered storms before, and this will be no different. Thank you all for your understanding. I'm trying to get caught up reading how all you guys have been doing the past few days. I hope you are all doing ok.

Rob

sick n tired
04-10-2008, 09:47 PM
Rob,

I am keeping you in my heart and in my prayers...May God Bless you,

Blessings,

Karen

jesseyleigh
04-10-2008, 11:07 PM
God will never give us more than we can handle!

cheryl_v
04-11-2008, 07:02 AM
Jesseyleigh, that is exactly what I tell people around me all the time. It is so true.

mnjodette
04-11-2008, 09:32 AM
Hi, Rob. I'm sorry you had news that's set you back. You've had more than your share, haven't you? I think MS is also autoimmune in nature. In MS the body attacks itself by stripping off the myelin sheath of your nerve fibers. So what you describe could be consistent with that.

In my husbands department at the Univ., he had a staff person who was diagnosed with MS in his 20s. He still works there (my hubby is since retired) but since this guy was diagnosed, he and his wife have had a couple of kids, he's built a new home, and done lots of everyday, normal things. He has good times and bad times, but often was able to lead a pretty average kind of life. That's not to say he will always be able to do that, but he sure has for a number of years now.

Don't give up hope, Rob! Life still holds promise - the path may not be one of your choosing, but it still could be filled with lots of wonderful things. And MS doesn't necessarily mean giving up your dreams...maybe just altering the timetable a bit, huh?

Hugs and good thoughts coming your way, Rob....and hopes for some good news for a change!

Jody

sick n tired
04-11-2008, 10:53 AM
God will never give us more than we can handle!

Hey Jesseyliegh and Cheryl, I used to tell people that, too until it occured to me that it is a matter of semantics.

The Bible does say that He will never give us more than we can handle,

but

It also says: In our weakness he makes us strong.....

so in conclusion....whatever we are given has nothing to do whether we are strong enough for it, he will give us the strength to handle it. :)

I just hate it when my sister and others says to be Gosh you must me soooo strong for God to be allowing these things....as if...strong? Me :shock:

Have a blessed day,

Karen

sick n tired
04-11-2008, 11:52 AM
Hey Rob,

How are you doing, today? I am glad that you have come around in your mind to more of an exceptance. Not really embracing, though.

I know with me, it doesn't make the problem go away, but when I accept the issue, then I can try to make plans on how to combat it.

I am still praying that this is a bad dream and that tomorrow you will wake up feeling better.

I also know a man who has lived a totally productive live with ms. He has a wife and two kids. He was a professor at a local university. I say was because he has since retired..around 6 years ago.

Have a better day,

Karen