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AnnMarie
04-03-2008, 06:54 PM
Hi all,
Rob mentioned that he was researching toxins as a possible trigger to our disease(s). As mentioned in an earlier message, years ago I got pneumonia and it was thought to have triggered my white cells into overdrive.

Here is the interesting thing, I believed I worked in a "sick building". At the same time I was sick, 12 yrs. ago, another woman got pneumonia, two men were dx'd w/MS, another with Lupus, and yet another with Legionnaires disease. At the time the air and heating vents in the police station where I worked were cover w/black dust and the drop ceiling tiles were covered near the vents w/black mold. A few of my co-workers called the health department. As, usual, before the health department came to the police department, the big wigs were tipped off and the duct system, as well as the ceiling tiles were removed before the arrival of the health department. Figures! Well, I was cleaning out my drawers a while back and located some instant photos that I took before they cleaned up the evidence. I showed them to my fav. Doc, the Hema/onco/immunologist and he told me that black mold was highly toxic. He also said that the location of the mold being right next to the vents meant that the stuff was being piped all through the building. He stated that in fact, that exposure to that sort of toxicity could trigger an bad immune response.

Here is another toxin exposure. Our police department had an indoor range. We all practiced shooting there until the health department closed it down from too much lead toxins. The tiny little locker room that the few woman on the department had abutted the firing range. the ceiling and wall abutting the range was black from what I guessed to be gun powder from the range. The women all just shrugged their shoulders and went about business as usual. I never took pictures. No one in my family has had any of these associated diseases. Although, who knows, maybe my grand parents did and they shrug them off as the all covering DX rheumatism. I'm sure some of you remember as our elders ached and felt sick, it fell under the umbrella of "rheumatism" which was usually fixed with a shot of brandy.

So, I do wonder about environmental triggers and the black mold was confirmed to be a possible trigger by my doctor.

I certainly do not have the energy to fight the police department in a lawsuit but am interested in anyone else who else who has information on possible environmental triggers.

Oh yeah, here is one secret I have that I have not shared with my doctor. I have been working one day a week in a hair salon. I enjoy all the "girl talk" which I missed in my last career. No offense to the men but I had enough of the testosterone enviroment. Anyway, there are so many chemicals in a hair salon that I wonder if it could worsen my condition. I have promised my self that I would come clean the next time I see my specialist and tell him about the salon. It is only one day a week and I feel so much better since being put on a daily dose of prednisone.

Any thoughts....remission is our goals...could we be triggering our immune system through our enviroment?

Respectfully,
Annmarie

rob
04-03-2008, 07:30 PM
AnnMarie,

I mentioned my career in the firearms industry to you in another post. I owned my own gunsmithing/training facility, which included an indoor range. I've also spent thousands of hours on indoor ranges at various police depts as well as working for one of the major US manufacturers of handguns here in the US test firing weapons. I also manufactured ammunition at my facility, and recieved literally tons of hardened lead projectiles every year. I also calibrated the machines for making the ammo for my employees. In simpler terms, i've been around lead most of my adult life. I always took all precautions in regard to handling heavy metals, but no matter how cautious you are, a certain percentage of any toxin will get past your protective gear after 20 or so years. What does all this mean? I don't know, but I have been in constant contact with lead for the past 20 years, and I have SLE. Hope this helps your research in some way. If you have any specific questions, or just want to talk, please feel free to PM me anytime.

Rob

jesseyleigh
04-06-2008, 01:06 AM
I was exposed to some of the worst toxic molds as a child my house was full of it, and i was told that it could contribute especially the kind i had i was lucky my brain didn't start to bleed. Its nasty stuff, the scarier part is you brought all of those spores home with you! I became a mold expert when the association did the clean-up in our condo. They are doing research on the association between the two, there is nothing rock solid but from what ive been able to uncover there is believed to be a strong corelation.

Saysusie
04-06-2008, 11:54 AM
Ann Marie;
Thank you for the information :lol: I believe that toxins have a lot to do with activating our disease. I was under a lot of stress when I was diagnosed. But, my office had just moved into a brand new building during that time. There was the smell of paint, the glue from the new carpets (that actually made me sick 2-3 times), glue and varnish from newly re-furbished desks, bookshelves, etc. - I could go on with the list. But, anyway, it was during this time (breathing in all of those toxins 8-10 hours a day) that I got very sick and was hospitalized and eventually diagnosed with lupus.
I say all of that to say that, yes, you should tell your doctor about the chemicals in the beauty shop. They may have no affect at all, but then again, they may be aggravating your symptoms. It is best to "come clean"

Peace and Blessings
Saysusie

tgal
03-10-2011, 01:58 PM
Raises my hand. I sat in a building with a chemical leak for well over 3 years. No one knew what it was but often times in the morning I would come in with my eyes burning the minute I opened the door. I would walk directly to the front door and place chairs to hold it open. Eventually we became so used to it that it would take an outside person to walk in and say "OMG you have a gas leak or something". We didn't even notice. We called and complained and complained and complained. The last straw was the day I walked in and the smell just hit me like a brick wall. I walked in to grab the chair and as I turned to move with the chair a SNAKE.. yes, A SNAKE fell to the floor. I didn't know how it got in there but it was so overcome with the fumes that it couldn't move. It would just curl back up in a circle. We took a broom and tried to sweep it out and once again. Nothing. I was LIVID! #1 I don't deal with snakes in the work place and #2 I will not work in a building that a snake can't even survive in!

After a scathing letter to my boss which was sent to her boss they sent me home for the day and told me the next day it was all fixed. The story was that it was gasoline that was kept in the next office over. The pawn shop used it as overfill and there were lawnmowers and such kept there with the fuel in it. I began getting sick during this time. So I am a firm believer in the toxin theory

Toradoradi
03-15-2011, 03:59 AM
Lolol! A snake?!?! I'm sorry but that is kind of hilarious. I mean it's bad you had so much gasoline leakage in your building but finding the snake is crazy! Do you live in a place with alot of snakes? Wa doesn't have any really except garden snakes and you don't see them too often.. Thank goodness.

I can't ever really recall being exposed to toxins but that doesn't mean I haven't been. I lived in the same house since I was born for 20 years until I didn't and then moved to the city from where my parents lived in the woods, down a 5 mile dirt road, literally without actual power. We had a generator and a battery operated system at night while it was off. Then I moved and started getting hives a year later and here I am now. Maybe I'm by too many power lines?? Haha I don't know.

SandyR
03-15-2011, 08:13 AM
I definitely believe in the toxin link. Personally I've had a lot of toxin exposure.

Birth - 3yrs: Lived on an Air Force Base (love the smell of Jet Fuel in the morning!)
3yrs-12yrs: Lived in NYC
12yrs-14yrs: Lived 1 block from a chemical manufacturing plant that made the scent and flavor for items such as gum and medicine - my school was located immediately next door to this plant and it was common to smell the odors manufactured there in the air around it. Also lived in an apartment that was part of a retail area and my windows/front yard faced the shopping area's parking lot.
14-18yrs: Lived in the same town as the plant but on the other side 2 houses away from a major road/bus route
18yrs-22yrs: Lived in the area of a paper mill. Worked for a brief time in a mechanical engineering plant cleaning the plant and god knows what items. *THIS IS THE TIME I REALLY STARTED TO SHOW MY SYMPTOMS*
22-33yrs: Lived in a major metropolitan area.

tgal
03-15-2011, 09:50 AM
Lolol! A snake?!?! I'm sorry but that is kind of hilarious. I mean it's bad you had so much gasoline leakage in your building but finding the snake is crazy! Do you live in a place with alot of snakes? Wa doesn't have any really except garden snakes and you don't see them too often.. Thank goodness.

I can't ever really recall being exposed to toxins but that doesn't mean I haven't been. I lived in the same house since I was born for 20 years until I didn't and then moved to the city from where my parents lived in the woods, down a 5 mile dirt road, literally without actual power. We had a generator and a battery operated system at night while it was off. Then I moved and started getting hives a year later and here I am now. Maybe I'm by too many power lines?? Haha I don't know.

Isn't the snake part crazy??? No I was in a city but snakes are everywhere if you look hard enough. I don't usually look because I am petrefied of them! I told my boss after this (before I went to write my letter) "I go above and beyond the call of duty and never complain but I will tell you now that ya'll don't pay me enough to deal with toxin or snakes!" Who knew that the toxins had already turn the switch on for me

tgal
03-15-2011, 09:56 AM
Ohh after reading Sandy's post I remembered something. From about 13-17 I lived on land that was used to dump hazardous waste. My step father owned it and it was about a mile from my house. It is now an EPA Superfund site (that means it is REALLY bad). Bother that former stepfather and my mother are both deceased but considering that I tell people that looking back I see symptoms in my teens this may explain why.

Thanks for the history of you Sandy!!! It helped jog mine

SandyR
03-15-2011, 10:23 AM
Ohh after reading Sandy's post I remembered something. From about 13-17 I lived on land that was used to dump hazardous waste. My step father owned it and it was about a mile from my house. It is now an EPA Superfund site (that means it is REALLY bad). Bother that former stepfather and my mother are both deceased but considering that I tell people that looking back I see symptoms in my teens this may explain why.

Thanks for the history of you Sandy!!! It helped jog mine

And you've jogged mine - the school I went to from 12-18 was built on top of land that was once a garbage dump. The land was known to be sinking even when I was going there.

GoodDog
03-15-2011, 12:01 PM
My Lupus is believed to have been caused by leaking silicone implants. And my other AI, eosinophilia-myalgia syndrome, was caused by contaminated l-tryptophan (from the genetic engineering process).