View Full Version : hello, I'm Jim
04-03-2008, 10:45 AM
I am new to the forum scene so bare with me please, I am a 45 year old male, I live in the northwest, (Oregon), I was officialy diagnosed with Lupus two weeks ago. It has been appx four years ago my Dr's were exploring the lupus diagnosis and after three opinions settled on depression. on feb. 28th after some pretty severe pain in my lower right rib cage I had my wife take me to the emergency room only to be sent home with a diagnosis of a pulled mussel from the ER dr, who never laid a hand on me, with a rx for pain med & mussel relaxer. the following day the pain came back with a vengence and would not subside, I have to say I have never in my life experienced that kind of pain to drop me in my tracks, my wife, God Bless her for enduring all I have put her thru in the last month and a half, called 911 and had me transported back the emergency room via ambulance. Different ER dr. this time was not willing to give up, admitted me into the hospital, after three days of severe pain and a lot of pain medicine I was diagnosed with peularisy & neumonia. my dr's curiosity was aroused because I had no symptoms. he decided to revisit the lupus thought, sent me back to my rheumatologist and after more testing here I am. My appologies for being so long winded.
sick n tired
04-03-2008, 11:09 AM
No that is not long winded.
We had a similar incidence with the ER last month with my daughter. We took her to the er 3 times in a 7 day peroid. Two of those times the doc didn't do anything but look at her and take a flu test. Even thought she was negative he still told us she probably had it. The last time different doc....found out she had a mass in her chest as well as some other things...grrrrrrr......If I could get those er docs fired I would....one is on probation...at least....ok vent over....
I am glad that you have a diagnosis after so much trouble...
Welcome to this forum.....I look forward to getting to know you better.
04-03-2008, 11:11 AM
You call that long winded? Just waite till you read some of the other posts heehee.
Welcome to the site. It's a friendly little spot with lots of information. Congrates to you wife for being stuborn...good for her and great for you.
I'm 48 yr old female in Nova Scotia. I'm in the process of finding out if I have lupus. Odds are pretty good, my sister has it and my mother had it. I'm showing signs.
My family doctor is switching my rhuematologist for me. As the current one isn't answering our questions and has no interest in my blood work and doesn't seem to believe in lupus at all. As in not at all for any one.
So I'll have a fresh start hopefully with one who knows what to look for.
I'm sure the others will be along shortly to welcome you :)
04-03-2008, 12:57 PM
thanks for the welcome and good luck on the new rhueme. It is hard and frustrating to try to get treatment for something that your doctor does not believe you have or believe in.
04-03-2008, 01:10 PM
sick n tired
I am still trying to figure this out, I thought I had to click on a reply to reply. frustration is understandable.
I woke up this morning feeling so tired I ended up taking the day off. I don't know if someone can shed some light on this question, I am curious if the sun light when it causes a flare with the malar rash if it will also affect the fatigue and other symptoms as well?
04-03-2008, 01:15 PM
I've been showing signs steadily for 1 yr. But I've had sympotms all my life. Rashes, sun sensitivity, exhaustion, etc. Mostly it's finding someone who know's what to look for.
They have (of course) just changed the health care system here. Family doctor's are no longer "allowed" to order certain tests and MUST refer on to a specialist in order to get the tests done.
My family doctor has been treating my sister for lupus for years. Now that I'm presenting, she cant order the tests she has to rely on a rhuemy to do that.
At least I haven't been bounced aroud as much as you have...that must have been very frustrating.
04-03-2008, 02:16 PM
Glad you found us here. Sorry for the reason. This is a great place for information and support. Your wife might want to check out the forum section for friends and family.
Best of luck to you.
04-03-2008, 02:44 PM
Direct sunlight can cause all kinds of problems from sunblisters to rashes. It makes my butterfly rash stand up and HELLOOooOOOO
I usually feel sick quite quickly when I've been stuck out in the sun, but everybody is different.
I know there are a few posts on this website that talking about the affects of not only sunlight but artifical lighte as well.
I'm sorry to ready that you're not feeling well.
I keep clicking on the pm button instead of the reply button :)
I've got a real case of the stupids today...typing away here and relized my finger hurts...it hurts cause I must have just sliced it open when I was doing the dishes up a few minutes ago...doh!
Be back later after I get my finger bandaged and some supper into me.
Nice meeting you :)
04-03-2008, 03:48 PM
You will find sympathy, empathy, concern, advice all rolled into one on this forum. It's always nice to talk to others who have been there or are going there.
04-03-2008, 05:29 PM
Welcoming you too. My Auntie had lived in Kalamath Falls. I've been there. I use to live up north in Seattle...now I am in the southeast, South Carolina..
Winded? Susan (SITC) is right, wait till you read. Me, I go on, and on, and on, and on...
My face was diaper rashed (Malar rash) severly last week, like a chapped hinder. My hinder gets rash too by the way. I have no shame in mentioning it. Today the face cheeks are halting now to a pink. It is always pink, light a mild sunburn when not flairing without the mink coat.
Sunlight, fluorscent light...it ignites it to some degree. I can feel the cheeks get warm when I been out and about too long. Sunlight. fluroscent lights triggers nausea, and an overall feeling of a mild flare happening. I run, I hide, I leave the building...
Keep looking for your wellness, Jim...post often, ask alot..we will learn from each other...
sick n tired
04-03-2008, 09:34 PM
One of my worst symptoms when in the sun is bone crushing weariness...fatigue is not a strong enough word...So yes, for me the sun, rash and fatigue are hand in hand.