View Full Version : new member in Nevada

03-23-2008, 02:36 PM
Hello, came across this site today-I have had lupus(SLE) and a platelet clotting disorder discovered and diagonosed for almost 3 years.
looking for information from people taking myfortic. I am on that also
coumadin and symthroid- is cellcept interchangable with myfortic?

03-23-2008, 03:15 PM
:) Hi ya maddog

Welcome to the site...I'm sure someone will be along soon who knows more about this stuff...I'm just learning myself and I'm not fully diagnosed yet...in doctor limbo at the moment.

Lots to read here and this is a very friendly and supportive group :).

I'm 48 yrs old and live in Nova Scotia Canada. My mother had lupus and my sister is currently in remission. I've just started showing signs alittle over a year ago. My rhuemy doesn't believe in lupus ... so my family doctor is supposed to have a conversation with her...if she doesn't get off the stick and start testing then I'll be moved to another specialist.

sick n tired
03-23-2008, 07:00 PM
Hey Maddog,

Welcome to the forum. I just was diagnosed last fall, but I have had many of the symptoms for about 11 years.

I don't take anything that you are looking for, I just wanted to welcome you to the group.

03-23-2008, 07:44 PM
Welcome Maddog! :D
I am not familiar with myfortic, but hopefully someone here will be. It's a great forum with many helpful and kind people! We are glad to have you!

03-24-2008, 07:55 AM
First of all, I want to welcome you to our family. You've already seen how responsive and caring our members are! I'm glad that you found us and that you decided to join us.
Now, to try to answer your question and to give you a bit of information:
Myorfic (Mycophenolic acid) was orignially marketed as mycophenolate mofetil (abbreviated MMF) and it is an immunosuppressant drug. Immunosuppressants decrease the actions of the body's immune system. It is usually combined with cyclosporine (Sandimmune, Neoral) and a steroid medication like prednisone.
Mycophenolic acid is now commonly marketed under the trade names CellCept (mycophenolate mofetil; Roche) and Myfortic (mycophenolate sodium; Novartis). They are essentially the same drug.
Mycophenolate is a potent drug and can be used in place of the older anti-proliferative drug, azathioprine (an immunosupressant marketed under the trade names of Azasan and Imuran). Mycophenolic acid is usually used as part of a three compound regimen , as stated above, of immunosuppressants, also including a calcineurin inhibitor (cyclosporin or tacrolimus) and prednisolone (or prednisone).
Treatment with mycophenolic acid may increase your risk of infection and the development of lymphoma and other types of cancer. Notify your doctor immediately if you develop fever or chills, a sore throat, unusual bleeding or bruising, mouth sores, abdominal pain, pale stools, or darkened urine. These symptoms could be early signs of dangerous side effects. If you experience any of the following serious side effects, stop taking mycophenolic acid and seek emergency medical attention or contact your doctor immediately:
* an allergic reaction (difficulty breathing; closing of the throat; swelling of the lips, tongue, or face; or hives); unusual tiredness or weakness;
painful or difficult urination; black, bloody, or tarry stools or blood in vomit; severe nausea, vomiting, or diarrhea; or a sudden unusual feeling of discomfort or illness.

Other, less serious side effects may also occur. Continue to take mycophenolic acid and notify your doctor if you experience: upset stomach, nausea, or vomiting; mild diarrhea or constipation; mild weakness; tremor or dizziness; headache; insomnia; swelling of the feet or lower legs; or a skin rash.

I hope that I've answered your question. Please let us know if you need anything further!

Peace and Blessings

03-24-2008, 12:53 PM
Hello Maddog -

Just wanted to welcome you. There are many wonderful people here, as you have already seen.


03-25-2008, 07:06 PM
thank you for the warm welcome! I will check in often
I don't check my email every day so sometimes there is a little delay :)