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Kir
03-07-2008, 05:32 AM
Hi! First of all; Im from Denmark, but hope you'll understand my english. :)
Its been 3 years since I got Lupus, I was/were 18 years at the time. It started out whit a big red spot on one of my fingers, and then the red spots started to move around all over my body. I look like a dalmatiner, (the dog),whit red spots insteed of black spots.
Went to my doctor who looked at me like I was crazy, he said that it was strees and that I needed to get some sun... right! :D Its kind of funny to me now, but it was'nt back then.
So. now I have a new doctor, well 3 actually.
Im happy whit lupus now, or miss Lupus as I call it. I need to be able to laugh about it, and just learn from it. You know; if were not able to laugh about something like lupus, life would be hell.
I know that Im lucky, and that other people are more sick than me, but I think we could all learn from lupus. Try to look at the good instead of the bad.

Well, that's it for now!

Love Kirstine

rob
03-07-2008, 07:59 AM
Hello Kirstine,

Welcome! Your English is just fine. I'm Rob, I'm a 40 year old guy who was diagnosed with SLE in 2004. I live in New England (Maine). I'm fairly new here myself. There are some incredibly nice people here, as well as alot of good info on all the different aspects of Lupus. And you are right about laughter, it is an absolute must. It sounds like you are managing your Lupus very well, that is a great thing. Many of us here can be more sick, or less sick than other people on any given day. The fact that you are doing well, and managing your disease gives others hope that they can do that too, and it is nothing to be ashamed of. Once again, welcome!

Rob

Pretti in Pink
03-07-2008, 08:29 AM
Kirstine,

Welcome and keep laughing, find humor even when you have to dig deep.

Pearl
03-07-2008, 08:32 AM
Hello and Welcome!

Love your English :) I am hearing your voice as I read your post. A great way to start the day here. Sorry you have lupus...glad you found this site. Hopefully you will meet many nice people here with whom you can share the good days and the not-so-good ones.

By the way, I'm from Oklahoma (USA) - and yes, we really do have cowboys here.

I wish you good health.

Jana

Kir
03-07-2008, 09:18 AM
Hey everyone!

Thank you so much for the nice words, and for trying to understand me. So sweet :)

Kirstine

sits_inthe_corner
03-07-2008, 10:56 AM
:) Hello Kirstine

Nice to meet you...my family doctor and I are still looking for answers. I now see a specialist who I do not think believes in "lupus" Like you I have large red circles. Got my first one when I was 30 I now have two more ... and have other lupus rashes.

Welcome to the site... this is a very friendly and supportive group

Saysusie
03-08-2008, 11:02 AM
Hi Kirstine:
Welcome to our family. You've already met some of our members and have seen how understanding everyone can be. As Rob said, any one of us can have a better or worse case of Lupus on any given day. The disease, itself, is very unpredictable and each person's lupus is different.
I am glad to hear that you are able to manage your Lupus. Your first doctor (who told you to get more sun) was apparently very misinformed and had you taken his advise, you may have worsened your symptoms. I'm glad that you now have a team of doctors who at least seem to know what they are doing.
You may come to us at any time with questions, concerns, feelings or if you need support, understanding or comfort. We are here to help and to let you know that you are not alone.

Peace and Blessings
Saysusie

Oluwa
03-09-2008, 09:55 AM
Hello Kir,

Welcome.. Your English is great. With so many spot you could have played Dot to Dot. Laugh and learn many here can provide you both.

The is another woman from Denmark here who pops in from time to time, Kbape. Maybe she will see you. Maybe you live near....

Positive thoughts gets us through the days...glad to see you have them. It makes a difference. And when you seem to have a bout of rough time. Share...everyone has an understanding ear. Filled with empathy and have much words of care...

Head hug for you,
Oluwa

Faith
03-10-2008, 06:54 PM
Welcome Kir,

Your English is awesome!!! :) They say laughter is the best medicine; sometimes we have to laugh after the fact though at the time we just wanted to cry.

This forum has been a positive in all our lives in that we support each other. We may be able to help someone in need; and the favor is often returned to us when we are experiencing a "new" symptom (spelling? that doesn't look right, eeeek) that we are unfamiliar with.

Welcome to the family.

Take care,

Faith 8)

Faith
03-10-2008, 06:57 PM
Hi Jana,

Where in Oklahoma are you from? My hubby's sister lives in Edmond and of course we are die-hard OU fans. I know, they lost this year. Bummer!!

Take care,

Faith 8)

luvwine2007
03-12-2008, 02:32 PM
Welcome!

You have excellent English :) And a great sense of humor...it certainly helps, doesn't it?

Can't wait to hear more about you! This forum is a wealth of info, and helps you feel normal when you might otherwise feel crazy :) :)

It doesnt have ME!
03-15-2008, 06:36 PM
I believe it is your carefree attitude that keeps the Lupus at bay! I also share that attitude and am young like yourself, and my lupus stays grounded! Keep your faith, and when you do have a flare, just remember that it will pass and everything will be fine!!!!!!

Im a male with lupus! San Diego California!