View Full Version : Sleep Apnoea/hypopnoea Syndrome
02-23-2008, 02:09 AM
Okay, that's it, I'm done!
I can't take anymore!
Last week was bad enough with learning that the level of protine in my urine just hit +4 and now I have to do a 24 hour urine check thing. The possibility of scar tissue on my lungs, the chest x-ray and having to go back for an ECG and that other breathing test.
And today I finally get the results of a sleep check I had done in July last year! They say that my tests show I have sleep apnoea and I now have to go and be fitted for a CPAP mask and go in for another overnight test!
I swear, whoever dishes all these problems out I'm done with it! Do not give me anything else, I've reached my limit! I'll deal with everything you've already heaped on me but you can keep anything else you have in store thank you very much!
Sorry folks and thank you for space to rant before I start my day!
02-23-2008, 02:30 AM
:| oh geesh Numpty...I sure do hope this sleep test goes better than the last one. That would really really suck. Vent away...we all have our kick at that can here lol.
03-25-2008, 07:49 AM
I know how you feel. Just when you think you have had everything you can possible have, here comes one more thing. I too have sleep apnea. I have a cpap machine and I have to say, you will feel much better soon! Don't get me wrong, I hate that mask! But, it will make a world of difference in your fatigue level. It won't make it go away :( but it will help.
sick n tired
03-25-2008, 10:45 AM
I feel you (as my kids would say)....everytime you think that you have a handle on something, then something else seems to happen...I am all for boring..nothing new...it seems with me when something new is going on it is something that was unwanted.
As Rob said to me in another message, Hope is such a gift. At least we can hope that tomorrow will bring about the solution.
Here's looking to a brighter tomorrow,
03-27-2008, 04:43 PM
Thank you for the well wishes, only about 8 weeks until I get the machine and I can't wait to sleep!
Thank you for letting me know that sleep filled nights are in my future. I have to admit that knowing I have it without the mask yet is a bit frightening as I'm on my own with two kids and there's nobody to wake me up but if I've survived this long... ~lol~
Will let you know how it goes with the machine when I get it and here's to a less grumpy and tired future me!
sick n tired
03-27-2008, 04:51 PM
Why does it take 8 weeks to get the machine? Are they making it especially for you? I have not had to get one and am inquisitive.
I will keep you in my prayers for safe and restful sleep.
Btw. As you have your sign on as Numpty.....are you a member of Scottish Parliament? :)
As if you didn't already have a full plate, now there's this. I would be angry too. Enough is enough already. I know what sleep apnea is, but I'm unfamiliar with the mask/treatment you mentioned. It doesn't sound like fun. I hope you can get this bump in the road smoothed out quickly. Sleep is sometimes one of our only escapes. To have that disrupted can be so discouraging. Come here, and vent away whenever you need to. Venting is like a verbal punching bag. You tend to feel better after you've gone a few rounds with it.
03-27-2008, 06:11 PM
I'm new here and just catching up on some of the posts and I too have sleep apnea but can't understand why it is taking 8 weeks to get your cpap machine. I was tested, fitted and had my mask and machine withing 10 days. I will tell you that I feel so much better after sleeping with the machine. You will get good quality sleep. I now sleep through the night without waking up. Its wonderful!!!
03-28-2008, 11:31 PM
Why is it taking 8 weeks? I would be on the phone with the insurance? Is it coming from another country? lol.
I have to echo Karen and Rob. Just when you think you are coping with all the auto-immunes and health issues, bang, something else to deal with. I love boring too; nothing new is peaceful.
I hope you get some sleep soon. My brother-in-law uses one and it has helped tremendously though he looks like a pilot. lol. I like to give him a hard time.
Hope is a gift.
03-29-2008, 03:31 AM
~chuckles~ Things run a little differently over here in the UK. We can't choose our doctors and the waiting lists are horrible!
Here's how the sleep check tests have gone so far...
July 2007 - Spent night in hospital to have the sleep study done
February 2008 - Receieved results of above sleep study
April 2008 - Will be educated and fitted for mask
May 2008 - Will spend another night in hospital so they can decide what pressure of air needs to be put through the machine for me and then I get to bring it home... as far as I know!
Heh.. the NHS is a bit rubbish but at least I don't have any medical bills at the end of the day because I know I couldn't afford all this if I had to pay myself. We pay national insurance through our salary every month and always have so you hardly notice.
Rob - The CPAP treatment is like a little quiet oxygen machine with a mask attachment. You wear the mask at night and it blows air through your nose (I think) which stops your throat from collapsing through the night. Or something like that ~lol~
Thank you for all the well wishes, I shall let you all know how I get on!
Oh and Karen, I'm not a member of parliament but I should be :lol: My friends call me Numpty more because of the 'bumbling fool' part I think!
sick n tired
03-29-2008, 08:24 AM
After I asked the question and sent it I realized that you have a national health program over there. I hope that the next 7 weeks go by fast for you. You would think that they would want to get the cpap machine to you faster, because of the possibly serious side affects of not having one.
03-29-2008, 03:49 PM
Exactly my fears Karen!
The part that really gets me is the eight months it took them to review the tape and readings from all the sensors and finally give me a diagnosis. But oh well, at least I have one for that problem, now I just need one for the rest!
sick n tired
03-29-2008, 07:15 PM
It is beyond me why it would take that long to review the tapes. We are having a problem just getting some tissues biopsied in a timely fashion and we don't have a National Health plan going. It would be worse if we had one. Nadia would be dead and buried before they got around to reading the bioply.
I believe that they are now going to send the tissues to the Mayo clinic. This happens to be one of the best in the land and if anyone can tell us what's wrong then they can. Hopefully in a timely fashion.
I am glad that at least you now have the diagnosis and can go forward. I just wonder if it is so dangerous then why do they make you wait?
03-30-2008, 03:05 AM
Its always a catch 22. Here I don't have to pay but I have to wait. My boyfriend threatens to take me to the states but there I'd have pay. I can't decide which is better although at the moment I'm kinda stuck here as my ex husband would never let me take the kids to live in an other country even though he can go two weeks without seeing them or even calling them. Drives me nuts!
Hope that you get Nadia's biopsy's seen to soon and that you get answers of the better kind. I'm keeping everything crossed and make sure you let us all know as soon as you do!
sick n tired
03-30-2008, 08:35 AM
Have you asked your ex? Stupid question, I know. In my state, there are some laws if the ex doesn't see them or pay support for a certain amount of time, then it changes the contract and the parent can move or even apply for termination of rights. Of course that would only be done if there were a spouse that wanted to adopt them.
We adopted two teens who needed someone who wanted them. That was how we were able to go about the termination. The drug mom left the state and never called or sent support for a year and a half. The loser dad signed his rights away in leau of paying child support. Well they have parents now who are willing to go the extra mile for them. We try to tell them that they are worth it and loved all the time.
Take care...I will pray for that situation
04-03-2008, 04:05 PM
try not to fret to bad, I have had a cpap for about five years, it is a bit of a neusance however I do believe I get better sleep with it.
unrelated subject; can somebody clue me in to what the BBCode is?