View Full Version : Lupus and Birth Control Pills

02-22-2008, 08:29 PM
Hi all,

So is anyone out there taking birth control medication? I'm having a tough time.
I have been on birth control for the past 3 years (way pre-lupus or any lupus like symptons) because I get extremely nauseated the first few days of my period and after a trip to the hospital, my gyno put me on the patch, Ortho Evra.
Well now the patch is considered evil incarnate (with good reason) and my new gyno has me on a low dose hormore pill and my rheumy is monitoring that because she doesn't like the idea of me on the pill.
But this low dose sucker isn't working. I am on my second really horrific period. I missed work (and I hate to miss work if it's not the lupus kicking my butt).
just wondering if folks here have found a happy medium alternative or other prescription.

sick n tired
02-22-2008, 10:24 PM
Hi Papillon,

Sorry to hear of your trouble with the pill. I guess it is the estrogen that the doc doesn't want you to take. I heard that hrt doesn't help the symptoms.

As for me....I had an emergency hysterectomy 11 years ago...

I hope that the doc will be able to find a happy medium for you.

In him,


02-23-2008, 03:06 AM
No birth control here...hubby went to the doctor's and spent a day and a half with a a bag of frozen peas....bless his socks. So I do not need to be on birth control.

02-24-2008, 02:40 PM
I've been on the pill for almost 10 years and my rheumy doesn't seem concerned about it. Right now I am on Seasonique (sp?)...one of those that you take for 3 months and then have a period. I've been on other brands, but I was on Aleve for the longest time, until the military switched brands.

02-24-2008, 10:55 PM
Ive been on a 50 microgram pill for about 6 years. I was recently moved to a lower dose. I also had massive issues ortho products also and was put on the pill continuously because of my horrible periods. Have you talked to your doctor about that option? It made a huge difference for me!

03-01-2008, 11:47 PM
Hi Papillion,

I am currently taking Seasonique also. If you can make it through the first three months; you're body gets on track. Menses is once every 3 months. Prior to this, I was on Ortho-Evra and loved it. I had inceased joint pain and asked my ob/gyn.

Good luck,


03-02-2008, 07:02 PM
Thanks for the replies guys. With the ER visit I will be seeing all my docs really soon. (Funny how quick you get a follow up ER appt but how long you wait for normal appts.)
I'll see how my rheumy feels about seasonique. She's seriously on this low dose or no dose vibe.

03-02-2008, 10:17 PM
have you thought of an IUD? :roll: I just got my niece to get one, its the best thing she ever did! Some have no hormones. and they can be taken out at any time, or left in for up to 8 years.
Might be a good question

03-05-2008, 08:50 AM
I also use an IUD. I'm on my second one, actually. I use the Mirena, which is a 5 year one and releases small doses of progesterone only. I have convinced several friends to get them (I should be getting commission), and they all love them. Periods are light and practically non-existent. Can get cramps in the first few months, but then less than before.

I have known several Lupies that feel traditional birth control pills have affected their health poorly, including my sister, who actually thinks the start of her symptoms were related to the pill. I was on them back before I was diagnosed, too, so who knows.

Anyway, good luck with finding a method that works for you!

Pretti in Pink
03-05-2008, 02:44 PM
I too have an IUD and in the beginning it caused me problems but now everything is okay. I have had mine sine June 07.

03-25-2008, 06:29 PM
Hi Papillon,

Wondering where you are and how goes life? Have you found your alternative to the BC dilemma ....

Hope nothing is kickin' your butt....and the rough time from BC has stopped.

Thinking of you...

04-01-2008, 07:19 AM
I've been on the pill for almost 10 years and my rheumy doesn't seem concerned about it. Right now I am on Seasonique (sp?)...one of those that you take for 3 months and then have a period. I've been on other brands, but I was on Aleve for the longest time, until the military switched brands.

I am also on Seasonique and find that it has been the best so far. My flare ups seem to be very hormonally aggravated, so only having 4 periods a year instead of 12 is a big improvement. This pill also features an estrogen taper, so that you don't go from one dose to nothing. It slowly reduces the amount of estrogen in the last week of pills so that you still get your period, but your hormones don't get so out of whack. This seems to be a big help, too. It was challenging to get my health insurance to cover it (they see it as a choice and not a need), but after a letter from my OBGYN and a letter from my rheum I got it cleared.

IUDs have been proposed to me as an alternate BC option, but they scare me... Although it was many years ago, my mom got pregnant while using one!!

04-01-2008, 07:42 AM
hmm, ive always been told to avoid birth control, so ive never been on them. but then my cycle gets worse and worse each month. my last cycle caused such trauma i was hospitalised. i cant even take pills during this time, because i vomit and have diarrhea so much for the whole duration. and having already been diagnosed with colitis as well, these times are painful and scary for me. it has become my greatest drawback, and my docs dont know for sur what to do, because of the probs the BC's might cause.

any suggestions? ive been to a number of gynae, but no luck yet.

04-07-2008, 06:06 PM
im currently on depo-provera. it was a horrible choice. ive had two shots and am definatly am NOT going back in for the third. my rhemy thinks it has aggrivated my lupus. please aviod getting the shot!

04-08-2008, 12:36 AM
My sister was on depo-provera, she also has lupus but is in remission. She only ever had the one shot and had an adverse reaction to it, so she stopped after that. She's not on anything at the moment.

04-08-2008, 02:48 PM
Actually ive never taken Seasonique i was put on ovral and told to just not take the inactive tablets. Ovral is about twice the strength of most birth control and apparently can keep endimitrosis under control. Seasonique was just the first brand to market continuous birth control options.

09-17-2008, 07:43 AM
I can relate and understand your worries. I am 22 years old and have been on The pill (Orth tri Cyclen) since I was 16. I use the bc to regulate my cycle and it also helps with acne. Iam on 4oomg of plaquenil and 2.5 prednisone per day. Since the pill is the old fashion method I feel it is best. As long as it is taken at the same time everyday or within a 1 hr window. Maybe the pill would be something you could consider.

wish you the best of luck!

10-20-2008, 02:37 PM
:? I stopped birth control pills probably 4-5 years ago, but was on it for almost 10 years. I just decided to stop, just seemed like being on it for so many years seemed to be harming my body somehow...

My doctors (gyno and rheumie) suggest to avoid taking the pill again. Any type of hormonal change can trigger a bad flare, which I totally want to prevent. No need for me to take birth control. I do get PMS and those headaches and cramps, but that's when I turn to Midol. :D

11-30-2008, 05:57 AM
Im on the pill and started it after i started getting lupus flares and had no problem with it. Mines just the regular microgynon one that loads of people in the UK have, but yea, my rheumy said theres no problem with it and i seem fine :D

11-30-2008, 07:09 AM
I could never take the birth control pills as they would make me very very sick and my blood pressure would shoot straight up. My husband got clipped lol. I have never had to worry about it.


12-10-2008, 05:31 PM
I know it has been sometime since the original question was posted. My doctor started to notice I would flare up during my period due to the hormonal changes. They have this new pill, Lybrel. I do not have a period anymore. It is still a pill and I take it once a day and after a year I can skip a week and have a period or I can continue and choose not to have one. I have noticed it has helped a lot! I started on the Seasonal and wanted even more relief so that is when they gave me the information on Lybrel. The fist six months are kind of a struggle due to your body adjusting but after that...............hormones level off and life is a bit easier! Good luck and I hope you find what you are looking for! :D