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seekthejoy
02-20-2008, 04:27 PM
hey everyone! okay, i had my first rheum. appt. yesterday and with my prior blood work, she pretty much settled on a diagnosis of lupus but wanted to do more tests anyways.

but here is the weird thing. i started taking minocyclin (a low dose antibiotic used for acne treatment) in august and stopped after about two months because i started breaking out in hives and we couldn't figure out why. apparently minocyclin is has the highest rate of causing lupus in teenage girls (i'm 18) and in the UK they don't prescribe it without running a battery of tests first. and minocyclin can cause major flare ups in people with lupus.

so i have a couple questions...
1) what is our FDA doing not requiring tests???
2) has anyone else heard/experienced anything with minocyclin induced lupus?

thanks guys!

sick n tired
02-20-2008, 04:43 PM
Those are good questions, Seekthe joy.
Why don't you ask your doc. I think I will ask my daughter's dermatologist. That was what he prescribed her a few years ago. She had to stop, too, because it caused her to break out. the only thing is it is my understanding that after the drugs are stopped and all filters out of the body, then the symptoms of lupus go away, too. Did yours not go away?

Have a great day.

Karen

seekthejoy
02-20-2008, 06:05 PM
minocyclin-induced lupus differs from drug-induced lupus in that the symptoms very very closely resemble lupus and the symptoms can last for up to 2 years. even after the lupus fades out, if someone who had minocyclin-induced lupus takes one pill they will most likely have symptoms again in 24 hours.

its incredibly strange. but i have my fingers crossed that its minocyclin-induced so it will go away eventually and i'll find out week after next

sick n tired
02-20-2008, 08:09 PM
Well Seek the Joy,

I think that I will cross my fingers with you. Hopefully it will go away for you.
Actually, I will pray that you are freed from this illness.

In Him,

Karen

hdodson
11-18-2008, 11:30 AM
Wow! I have never heard of this-but I took minocyclin at age 22, and have severe hives all over, and it took a few weeks to fully go away. Now, almost five years later, after having our son, I am achy all over, and I have other symptoms. I am just waiting for an appt. with a rheumy-my dr. is thinking lupus. This is so interesting!

sick n tired
11-18-2008, 11:52 AM
You might want to ask about fibromyalgia, also...

KathyW1958
11-18-2008, 12:35 PM
Hi all,
Boy after reading these posts it puts a fear in you about this medication. I have never taken this medication. I have Lupus and man this drug sounds very scarey to me big time.

Hugs,
Kathy

SuperGiv
11-30-2008, 05:53 AM
I was on this drug and it was what triggered off my lupus. Before it i had no symptons at all. After a month i stopped taking it,as i'd just forgotten about it (yes i was a reliable 16 year old), but since then i've never been the same, and now have SLE. :S Mind you, mine could also have been triggered by large stress levels that occured around the same time as i had a lot of family issues. But is an interesting link that i've read about before. And if it was, i shall never be vain again and should've put up with a few spots!!!!

Davita28
02-11-2009, 01:51 AM
I take this med for acne but i didnt start it until just last year and i have had lupus since 2004 i have had no side effects but that is scary

kukukajoo
02-11-2009, 05:17 AM
I would urge you to file a consumer report with the FDA. They have a form online for patients to report side effects and other problems while taking medicines. Docs almost never report these things!

They only way to make certain that the FDA knows is to do ourselves and the more people do, the more chance of getting something looked at again. So I urge any and all to do this whenever they have any type of reaction.


I think if you do a search for FDA med watch you will find the form.