View Full Version : Starting to get nervous...

02-18-2008, 04:15 PM
I have an appointment Feb 27th with the rhuemy that has been testing me. My last appointment was not good. She asked me to take plaquenil, when I asked her why she said because she wasn't happy with my progress on the arthrotec. She told me to keep taking the arthrotec as well as the plaquenil.

Never once did she say she was thinking I had lupus let alone what type of lupus it might be. I pushed it out of my mind, but as the appointment date gets closer I cant think of anything else but.

I have since been talking to her nurse who went over my chart with me, and I went to my family doctor who has a copy of everything. I love my family doctor, she is wonderful. She calmed me down quite a bit.

I'm frustrated...nothing seems to work or at least not well. I have completely changed my life style how I eat ... what I do ... what I dont do. And instead of feeling better...I feel worse. I really hope I get some answers this time. If I dont then I'm going to ask my doctor to move me to another specialist.

One who will at least tell me WHY they are putting me on a medication!

02-18-2008, 06:23 PM
Sits in the corner, Hey..

The 27th will come soon enough, so worry not, okay?

Take one day out, tomorrow and make a list of the questions you want to ask. And leave it be till then..and enjoy the next week to come.

While at your appointment...Don't skip over any questions...and cross them off as you ask.

Question the answers, this doesn't mean you are challenging them. Your health..it is yours and you are seeking their care, not the other way around. So, don't feel intimidated...

But ah I am sure some run it like a business...but make sure you get the care you expect and pay for...

Your body, your mouth..a pill, I would ask questions. They maybe treating the symptoms without a diagnose, could be...

Now enjoy the night...relax..

02-18-2008, 06:49 PM
It's funny...the first appointment I had with her....I handed her a point form list of my symptoms and my medications. She was very greatful for them...ever since then, I pull out my list and she's not so happy about it.

But I will have my list ready. I need to know what her plans are for me. I dont like surprises, and she caught me off guard last time. I didn't know there where different forms of lupus. So I have no idea which she thinks I have. I do have unexplained weight gain. I've put on 20 pounds in the past yr and cant get it off. I dont eat very much and I work out every day. The medications I'm on do not list weight gain as a side effect. I'm taking Plaquenil and arthrotec 75.

She's only ever done one urine test, but monthly blood tests.

Thanks for letting me vent. I'll make my list and check it twice LOL, then I'll let it go till my appointment.

02-18-2008, 07:01 PM
Hello -

Take a deep breath. Get your thoughts in order. As Oluwa said, take your list to the doctor. It matters not if the doctor becomes exasperated with your questions. This is your life and your health we are talking about. Your questions are important. So are you.

Your doctor may have recommended the Plaquenil to see if it will address some of your symptoms. I too did not want to take it and refused on two separate occasions during the years before my diagnosis. I wish I had tried it sooner. It has certainly been helpful to me. It is not effective immediately, so if you try it, don't be disappointed if you do not see immediate results. As you are learning, this entire experience is a process...from symptoms to diagnosis, to medications, to healing (physically, emotionally, and spiritually).
You are not alone in your corner :)

I wish you peace and good health....one moment at a time.


02-18-2008, 07:19 PM
Somewhere in a post from Saysusie, there is some good information on Plaquenil. You could do a search for it. Plaquenil is a pretty well-tolerated drug (I'm told) and can be taken for long periods of time without many side effects. Everyone is different, of course, so your experience may not be the same as another's. And Pearl is right - it takes time to "kick in" - sometimes a couple of months or more. I don't think it really was fully effective for me for nearly four months. But, it really helped with fatigue...A LOT.

You're right to question your doctor about your treatment and/or diagnosis. It's your life, after all - take your list of questions and don't be satisfied until you get an answer. Even an "I don't know the answer to that one" is OK - as long as they agree to try to find an answer for you, whenever possible.

I hope the next appointment goes well for you. Keep us posted.


02-18-2008, 08:58 PM
I too am thankful for my dog bone shaped pill. It did wonders for me in about 5 weeks...especially for my joint pain and diaper facial rash. It curbed my fatigue.

I was a wreck...I was a collision before. Now I am just a slight mishap.

I wonder will I fold up into a heap if I stop taking it. Scared to stop.