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teresaa40
01-27-2008, 11:11 AM
So, Im at a ballroom dance competition last night, and this kid was whistling right next to me. Loudly. It hurt my ear only a bit, but, the weird thing was, after a couple of whistles, I noticed that when he would whistle my vision would shift. Like a camera suddenly jerked to one side and then back again. I felt fine otherwise, and tried to anticipate when he was going to whistle, and plugged my ears, but, after the competition was over, I stood up and the room started spinning. I almost fell over. I steadied myself as much as I could, and then stepped slowly onto the floor from the riser. The room was still moving, and I kind of bumped into the wall, like I was drunk or something. I kept moving very slowly, trying to fix my gaze forward and slightly down to bring my equilibrium back into gear. It got a bit better, and I was able to walk fairly normally, went backstage to gather my daughter, and after a half hour, was still feeling unsteady but able to function.

We had a 20 minute drive home, and I was just praying that I could hold it together the whole way. Lights were going in and out of focus. When we made it home, I still felt unsteady when I walked, and went straight to bed. As I lay down and closed my eyes, it felt like the room was spinning, so I opened my eyes and fixed them on my ceiling fan which was turned off. It kept sliding around, at least it looked like it was to me, but, I felt a bit more steady, so I closed my eyes and tried not to move my head, because when I did the room spun around again.

It took hours for it to mostly go away, but, I still feel foggy and kind of light headed, just vaguely.

I have tried to research vertigo and to see if that whistling caused it, but, I'm also wondering if my Lupus plays into this at all. I was very tired, had worked since 5:30 in the morning and was at the competition til midnight. Is it just because i overdid it, or was it the whistling. Or was the whistling causing a problem for something I had going on already. I just can't get a definitive answer. All the websites say that it takes weeks for vertigo to go away if it is from damage to the inner ear. I am starting to feel better today, so, what's the deal?

Saysusie
01-27-2008, 11:34 AM
Are you taking Plaquenil? Quinine medications can sometimes cause vertigo. Other medications that can cause vertigo are: antidepressants, anticonvultants, diruetics, antihypertensives and others.
Are you prone to migraines or Lupus Headaches? Vertigo is often the precursors to these.
Now, there is a condition called Tullio's Phenomenon. This is when vertigo is caused by loud sounds. It consists of dizziness induced by sound. It occurs mainly in five ear conditions: Superior canal dehiscence, perilymph fistula, Meniere's syndrome, post fenestration surgery, and vestibulofibrosis. The most common cause is superior canal dehiscence. Meniere's syndrome is the second most common cause.
Tullio's is a symptom, not a disease, so you diagnose it by simply making the observation that loud noises makes you dizzy, literally dizzy as in spinning vertigo. It is particularly important to try to determine which ear is the problem. The next step should be to consult with a doctor who knows something about this condition. Generally this will be an otolaryngologist who specializes in ear problems (an otologist). This doctor will likely do a hearing test, take a careful history, and get a temporal bone CT scan to look for superior canal dehiscence ( a thinning or absence of the roof over the superior semicircular canal) and other ear problems.
Treatment is based on the cause.
Talk with you doctor and/or make an appointment with an otologist to determine the cause. Keep us posted!

Peace and Blessings
Saysusie

Pearl
02-03-2008, 08:52 AM
Hi -

I'm new to the forum and just read your post. Please take Saysusie's advice and make an appointment with an ear specialist. I began having episodes of "room-flipping over backwards like a bad carnival ride" vertigo in my early thirties. It was always attributed to an inner ear infection, etc. These episodes would come and go, sometimes lasting for a week or more. Beginning in 2005, I began to have them regularly. I finally went to an otolaryngologist, who initially diagnosed me with BPPV, a relatively common condition that causes vertigo. Over the next year or so, I kept insisting to him that there was something else going on - nausea daily, overall malaise, etc. He finally, and somewhat reluctantly, took some blood and tested my ANA, etc., initially looking for indicators of auto-immune inner ear disease. He stated at the time that he did NOT expect this bloodwork to reveal anything. I think he thought I was exaggerating my symptoms, as BPPV, despite its inconvenience, is relatively benign. To make a long story sort of short, it turns out my ANA was 1:5280!!! My point to all of this is, you need to rule out other causes of the vertigo, many of which may be totally unrelated to your auto-immune condition, and may be easily resolved. OR, the vertigo may be a manifestation of the autoimmune process itself, as in my case. Either way, it is important to distinguish between the two so you can take whatever steps you need to take to get it under control. Those room spins are fun, aren't they? :lol: Best of luck to you. I hope you find yourself on solid ground soon!

Jana

jesseyleigh
02-03-2008, 07:41 PM
This happened to me once (different noise) and my neurologist said the combo of the plaquinil and the migraines could have easily caused it (plus the stress of the situation). There are awesome neurologists who specialize in autoimmune and fibromyalgia patients who might be able to help.

sits_inthe_corner
02-10-2008, 05:19 PM
Two yrs ago I had a few weeks of room tipping. It was very unnerving. It wasn't constant. But it would happen several times through out the day. My doctor gave me some excersizes I could do to correct the fluid in my ear. At fist I didn't think it would work but it did. She is not keen to give out medications. But if nothing else works she will. This did work for me...and now when I have the occational spell of vertigo I get my husband to help me with the excersize.

While at work, I had a dizzy spell. One of my co workers did not take me seriously and grabbed me by the shoulders and gave me a shake. I can not discribe how offened I was. Two days later I walked into his office and closed the door. I told him in no uncertain terms that if he EVER treated me like that again I would make a complaint against him. I'm usually easy going. But I do expect people to treat me the way I treat them. I would never do such a thing to anybody.

I just started plaquenil in December, so far I haven't had any trouble with dizziness. I take both pills before bed with some yogart. So I sleep through the worst of it. I'm pretty good by morning.