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ethanandrew
01-11-2008, 03:37 AM
hi

Got a call from doc yesterday, she told me the results of my labs. She said my liver enzymes look good (auto immune hept.) but i have protien in my urine. can ANY BODY FILL ME IN ON WHAT THIS MEANS. Iam scared, my liver has scar tissue, i cant afford to have another organ dammaged. i have pain and burning just below my rib cage. Its been there for a while. I thought it was my rib inflammation. please help
thanks

mnjodette
01-12-2008, 12:44 AM
I'm sorry you had a bad report (but glad the liver enzymes were OK.) It's my understanding that there are more than one reason you could have protein in your urine. If it's a result of the lupus - causing inflammation in your kidneys - then your doctor will probably ask you to see a kidney specialist. Check out the information on the Lupus Foundation of America website on kidney disease and lupus. http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutaffects.aspx?articleid=100&zoneid=17 You'll see that sometimes the involvement is so mild, it really doesn't require any special treatment. But, it's something your doctor is going to want to monitor very carefully. Please keep us posted on how you're doing. Many, many people on this forum are going through the same thing. You'll find lots of support here.

mlarie
01-14-2008, 07:34 PM
Protein in the urine is one indicator of Lupus.( +3 or greater on a regular basis) Having protein in your urine means that your kidneys aren't filtering the way they normally should so they begin to spill protein. I always have protein in my urine and have since I was thirteen, but I also get alot of UTI's with it.

cheryl_v
01-14-2008, 08:38 PM
Hello ethanandrew, hope your doing ok. I hear of people having some protien in there urine, and they are still doing ok. Hopefull that's the case for you. Good Luck.

Hi mlarie, you came to a good place to find understanding friends who will always listen and never get tired of your topic of choice, even if it's the same one again and again :D .

mlarie
01-15-2008, 02:08 PM
Thank you cheryl_V , I appreciate that very much. I hope everyone is doing well !

sick n tired
01-15-2008, 11:24 PM
Hey there,

I have a friend who has sle and had protein and blood in her urine 10 years ago and has not had a flare of the kidneys since. (she does have occasional blood) but no more damage.

I am praying that is your case and also, that you are not stressed out.

Big cyber hug from me.

In Him,

Karen

ethanandrew
01-16-2008, 06:52 AM
Thank you all and God bless Ifeel better and it is good to vent and talk about whats going on Thank God for this web site

SonyaLA
01-22-2008, 09:22 PM
Hi...

Protein in my urine is a frequent thing for me. Sometimes it's an infection, sometimes is a flare in which case the doc increases my prednisone for a couple of months, and that usually takes care of it.

Hope yours clears soon..


Sonya

lyss
02-03-2008, 12:22 PM
hi all,i have an urine test done and the reults not good,they found a blood and protein in the urine,the doctors suspects to be nephritis so i have to undergo biopsy and am very scared,is someone here can tell me if its painfull pizz...and lately am feeling always tired i dunno why?so i need your help,plizz anyone can help me?

WantItGone
02-04-2008, 02:58 PM
I've had protein my urine twice. I was referred to a kidney specialist. He said that if I continued to have protein in my urine that I may need to have a biopsy. Fortunately, my last 3 lab results showed no protein. However, the latest showed ketones. My rheumatologist said the protein could be due to many things. From what I remember, she said it could be due to ibuprofen. I've stopped taking motrin. Hopefully you don't still have the protein to this day. I hope everything is going much better for you.

Pretti in Pink
02-04-2008, 05:02 PM
lyss,

I had a kidney biopsy in August and was pleading for sometime to share their experience with me as well but it was not bad at all. The procedure was fast and the pain was mild. Hang in there and I wish you the best of luck.

ldrinker
02-04-2008, 06:49 PM
I'm having a kidney biopsy tomorrow. I'm feeling very nervous, but the last posting was reassuring. I'll let you know how it goes.

Missy
02-04-2008, 09:41 PM
Hi there -

I've had Lupus Nephritis and had a kidney biopsy over 3 years ago. It was my first hospital experience. I've posted about it before here several times.

I was really nervous, but it was a lot easier than I thought it would be. I wish you the very best of luck, and I hope the results are ok.

Good luck!

ldrinker
02-07-2008, 11:08 AM
Hi! I just got out of the hospital yesterday afternoon after having my kidney biopsy. It really wasn't as bad as I thought it was going to be. The procedure itself was kind of unpleasant, but it only lasted about 45 minutes total. I feel fine now, and was only in slight pain following the procedure. The one thing that's kind of annoying is that you have to lay flat on your back for about 8 hours. But honestly, it's not bad. Good luck!

Missy
02-08-2008, 05:00 PM
I know - the laying on your back is the worst!

lyss
02-09-2008, 09:49 AM
hi missy! what is lupus nephritis and what are the side effects?,bcoz lately(after entering to this site) i think i might be having too(am a really positive woman)anyways lately am feeling very tired and itchy in my whole bodies,but sometimes i think it can also be due to winter dryness,and my backbones is killin me and pain in both side of my stomach and nausea(mild) and alittle headache and pain in my muscles all over my body and a little stomach ache(my problems start with stomach ache)so,can you plizz give a suggestion thanks!

Saysusie
02-10-2008, 10:14 AM
Hi Lyss;

Lupus nephritis is an inflammation of the kidney caused by SLE. Lupus nephritis may cause weight gain, high blood pressure, dark urine, or swelling around your eyes, legs, ankles, or fingers. However, sometimes you can have no overt symptoms of kidney disease and it must be diagnosed by blood and urine tests or sometimes by a kidney biopsy.

The urine test looks for blood or protein in the urine, which is a sign of kidney damage.

The blood test: The kidneys remove waste materials like creatinine and urea from the blood. If the blood contains high levels of these substances, kidney function is declining. Your doctor should estimate your glomerular filtration rate based on your creatinine score.

The Kidney biopsy: A biopsy is a procedure to obtain a tissue sample for examination with a microscope. To obtain a sample of your kidney tissue, your doctor will insert a long needle through the skin. Examining the tissue with a microscope can confirm the diagnosis of lupus nephritis and help to determine how far the disease has progressed.

Treatment of kidney damage depends upon the symptoms you exhibit and on the test results. Corticosteroids are often prescribed because they can decrease swelling and inflammation by suppressing the immune system. Additional immunosuppressive drugs (sometimes used in cancer treatment) and drugs used to prevent rejection of organ transplants may also be used. In severe cases, your doctor may prescribe cyclophosphamide (Cytoxan, Neosar) or mycophenolate (CellCept). Newer experimental treatments include a drug called rituximab (Rituxan).

You may need one or more medicines to control your blood pressure and you may need to limit protein, sodium, and potassium in your diet.

Peace and Blessings
Saysusie

lyss
02-10-2008, 12:25 PM
hi saysusie!
thanks a lot for thereply,what do you think bout my case?am i a victimm of lupus nephritis(side effects i had wrote)?anyways am goin to undergo tomorrow biopsy nd g-d knows what will be the results,hope the best and will be good.one thing i know is i gain bout 4 kg lately,(hate all this sickness)well,you seems to knoww alots i always reads any topic you post dont tell me you are also one of the victim! anyways thanks and always keep smillling life is fun.

Missy
02-11-2008, 12:00 AM
hi Lyss-

I think Saysusie said it all. She is a wealth of information. I hope your biopsy goes well tomorrow. Your kidney doctor should be able to get the information they need from the biopsy to determine the best course of treatment for your Lupus kidney problems.

Good luck!

lyss
02-11-2008, 11:55 AM
uff! am so angry and disappoint today!well i was there with my husband for biopsy test,we reach the hospital and was asking the nurse wheres the doctor?she is shock that no one informed her for the test and she rang the doc,so wats happen?tat doc whose going to performed my test was sick and he cant arrived,but noone informed mei was so angry i dunno where i have landed! i travelled bout200km for this test,sucks!well i return home again safely(lolz)so careless hospital..yuckkkk.grrrrr!

Saysusie
02-11-2008, 03:40 PM
Oh Lyss :?
I know how frustrating this can be. I have had the same thing happen to me. So, what I do now is: I call about 1 week before my appointment to confirm the appointment. I then call again, 2-3 days before my appointment, to confirm that the appointment is still scheduled and that the doctor is still available. Doing this has saved me a lot of long distant trips because it has happened (more than once) that they did not know about the appointment and/or the doctor was suddenly unavailable.
My advice is that WE take charge of our health care. We have to stay on top of our doctors and their nurses and we have to insist that things are done and then we have to make sure that they follow through. Don't leave anything up to them!!!

I wish you the very best!
Peace and Blessings
Saysusie

lyss
02-11-2008, 11:53 PM
hi saysusie,my doc call me and say my lab result was bettter(less protein less blood)so he thouth it wouldnt be neessary(maybe)to undergo biopsy.i had blood test too and all the blood test re normal,the kidneys working>can we know thru the blood ttest if the kidneys working?the doctor tld me sometimes without medication protein and blood can disappear,i dunnno wats goin on here.anyways thanks to you...

Saysusie
02-12-2008, 11:23 AM
Hi Lyss;
Yes, a blood test can determine if there is kidney damage. The kidneys maintain the blood creatinine in a normal range. Creatinine has been found to be a fairly reliable indicator of kidney function. As the kidneys become impaired the creatinine level in the blood will rise. Abnormally high levels of creatinine in the blood indicates a possible malfunction or failure of the kidneys, sometimes even before a person can feel any symptoms. It is for this reason that standard blood and urine tests are used to routinely check the amount of creatinine in the blood.
Normal levels of creatinine in the blood are approximately 0.6 to 1.2 milligrams (mg) per deciliter (dl) in adult males and 0.5 to 1.1 milligrams per deciliter in adult females. (In the metric system, a milligram is a unit of weight equal to one-thousandth of a gram, and a deciliter is a unit of volume equal to one-tenth of a liter.) Levels above these numbers are considered abnormal and can indicate malfunction or failure of the kidneys.
I am happy that the biopsy is not necessary at this time and that your other tests appear normal.

Peace and Blessings
Saysusie

lyss
02-12-2008, 11:54 AM
hi saysusie thanks a lots to you and ya great help,am really indepted to you,a millions of thanks,you are just an angel. :wink: :D

Pretti in Pink
02-12-2008, 12:02 PM
I'm glad things went okay, and yes the laying on your back is not fun.

lyss
02-18-2008, 08:01 AM
hey saysusie i have a question to ask help meout here pliz,can a blood nd protein in urine decreased and disappeared at last without any medication?i think when i drink alots of water i can fell a less protein and if i dont drink i can see a dirty or yellowish or short of bubbles and i always in a fatigue state am always tired but if i start working i dont fell tired or maybe just my illusion?i really need ya suggestion.thanks

Oluwa
02-18-2008, 08:41 AM
Lily... Hi....

Urinary tract infection (UTI) maybe... could cause the distinctive urine color and tiny bubbles.

Have you had a clean catch lately?

Fatigue isn't an illusion, it is real....

Feeling better soon I hope,
Oluwa

Saysusie
02-18-2008, 12:40 PM
I concur with Oluwa. However, many researchers and doctors believe that drinking the required amount of water daily can help your body to overcome many problems. There is a treatment known as WaterCure which claims that water can cure a multitude of ailments....I am not so sure how true this is, but I do believe that drinking sufficient amounts of water can help our bodies.

Peace and Blessings
Saysusie