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also_ran
01-06-2008, 11:20 PM
I've always had skin trouble since when I first got diagnosed with lupus. Every possible type of rash...I've had it. But lately I've been finding weird spots on me, I had no idea what they were. When I looked up 'lupus rash' online I found a picture of the spots under Discoid lupus. Everything I read said that discoid lupus rarily turns into SLE but can ppl with SLE have discoid lupus too? I mean, whose to say...aren't we all different? Does anyone have a clue?

Saysusie
01-07-2008, 01:00 PM
Absolutely. In fact, I was one of those persons who had SLE with Discoid Lupus! At the time, my doctor said that this was not a common occurrence, but lately, I am reading about more and more persons having both.

So, you are not alone. My treatments included treatment for SLE (Prednisone, Methotrexate, Imuran) and for Discoid Lupus (Plaquenil).

I hope that you are able to get treatment that will give you relief from your symptoms soon!

I wish you the best
Peace and Blessings
Saysusie

cjc
01-25-2008, 09:25 PM
You aren't alone. I was diagnosed with both Discoid and SLE at the same time. I seen alot of drs in the past that always told me it was sun poisoning, but in September of 2007 I met with a new rheumy who said no it is Discoid lupus.... boy was I shocked. He determined that I had started the symptoms (sp) of Lupus in 2001, makes you wonder about some drs. So don't think you are all alone, there are alot of us who have multiple symptoms with SLE. Hope this helps, and know that you can always come here when you need to vent. :) . Here is a cyber hug just for you... hope you have a better day.

dlavietes
01-26-2008, 03:36 PM
I was diagnosed with both sle and discoid 26 years ago. Since then, I have had many different symptons with both. It's nerver boring, that's for sure. Hang in there.
Diana

joakris
01-28-2008, 09:11 AM
I havent been diagnosed yet but I have a have been having a bunch of weird rashes and they still cant figure it out. One thing I know for sure is that the scle rash is exactly the same rash i had but my bloodwork doesnt match up with the full blown dx~! so I am still in limbo and now have this weird rash on my bottom half of my legs, ( basically in all the spots that I havent had a rash yet) My prayers are with you. this is very frustrating being in this skin and not knowing if all of a sudden a new rash just might pop up and decide to spread all over! =) so far nothing shocks me any more! =)

redlily14
01-29-2008, 12:22 PM
I was just diagnoised with Discoid, but so far I (thankfully) am SLE free. I had a high sed rate in my bloodwork, and what sealed the deal was a skin biopsy of one of my "disk" shaped red spots.

It is on my face and v-neck area. Ask your doctor to take a biopsy of the area if you suspect DLE.

joakris
01-30-2008, 09:25 AM
I have had 3 biopsy's done and the first one suggeseted scle or an alergic reaction, then the 2nd and 3rd where done with the imuonoflorecence thingy and it came back alergic reaction, the weird thing is I still have the rash but its different this time, either way i am not convinced that i dont have it! I have been through the run a round in regards to the test that they have been doning on me and tomrow i have docs appt all day!

oncologist, hemotologist, infectious desies specialist! You name it i have seen or have an appt scheduled, but i think i might give my derm doc a call this week my rash seems to be getting weirder, and my skin is really flakey and wrinkley!

dlavietes
02-09-2008, 10:52 PM
When I was diagnosed with both of them, they took biopsies. I have been feeling way over board with the flaring and feeling bad. gotta go

Saysusie
02-10-2008, 10:28 AM
Dlavietes;
I am sorry that you are having a bad flare. How are you doing today?

Saysusie