View Full Version : Where is the best place to live?
01-06-2008, 03:47 PM
What state is the most lupus friendly?
We have the opportunity to choose anywhere to live and we are wanting to know what area would be the best to live in with lupus?
01-06-2008, 04:46 PM
I live in Scotland so have no idea but my boyfriend lives in Wyoming so shall be watching this thread with interest as we haven't fully decided who is moving to who's country just yet! :lol:
01-06-2008, 05:37 PM
Check out coolibar.com, uv index, and then click on "Climate Prediction Center Of the National Weather Center." It lists uv zones and further breaks it down by cities and uv ratings.
I hope this helps. I would post the shortcut but I don't think I am allowed to.
01-06-2008, 05:38 PM
haa haa good question. I can probably tell you where NOT to live~! NZ has the highest UV in the world (due to the ozone layer being thin over here, the lack of pollution and the bright sunny weather.).
Also I find the people here are naturally too complecent about the sun--meaning if you walk around with sunscreen and other gear--people will tend to comment on it.
I hear places like Hong Kong where Lupus is more common--and where people like to have the lilly white skin look--it is more acceptable to be sun adverse...
That's my 2 cents anyhow...
01-06-2008, 06:22 PM
You know, if I had to pick NoodleMom, I'd look for someplace with really progressive medical care in the field of autoimmune diseases. I think you can probably do some Internet research to help you figure that out. There are some top notch clinics out east, in Chicago...lots of major cities. Might be nice to be close to one of those.
01-06-2008, 06:27 PM
Noodlemum - your screen name looks familiar? Did you used to be a member of the Birthtalks forum? I only ask because I had my two babies in May 2005 and March 2007 and was diagnosed with Lupus in 2007.
If not, sorry for the strange sounding post!
sick n tired
01-06-2008, 11:27 PM
I live in Texas and have a great rheumy, but I would agree with mnjodette and pick an area with great strides in autoimmune disease.
At any rate, please let us know where you finally decide to "light" :D
01-10-2008, 12:32 PM
i live in northern california and i would have to say the medical facilities are very good and people are very active in general and heath conscious so protecting yourself from the sun wont be frowned upon...because i live in san francisco there are so many specialty grocery stores and restaurants that can cater to your diet if you have a specific regimen. So i would say san francisco is a very good place to live for someone with lupus.
on the other hand, I go to school in Pittsburgh, PA and the whole town is filled with hospitals. there is a lupus center which is very very good and specializes in lupus patients as well as doing research to help improve our lives. The medical care i get in pittsburgh is absolutely excellent and I cannot imagine getting medical care anywhere else because it would not be comprable. anyways i hope this helps!!
01-13-2008, 06:46 PM
I would weigh the following factors (as relative for you)
* Good Rheumies
* Local Clinical Trials
* Lots of opportunities to do "what you love most" -- e.g. more choices as to "when" to participate, since we lupies do have those out of the blues flares
* Other family/friends close - as a support network
01-17-2008, 06:39 PM
This is always a hard topic for me, too, when we consider moving. I love the Pacific NW, but I moved to North Washington state and it is cold in the winter; however, I don't think Southern CA would be very good for me either. I mean, where is the happy medium? I guess the answer is nowhere - it's just whatever works best for you.
01-20-2008, 11:24 AM
no was never on that board. My youngest child is seven born in 2000 in Haiti.
I last gave birth in 1994.
Its nice to meet ya tho :D
01-20-2008, 11:26 AM
No new news yet. We are still looking.
I guess tho that we have decided that we need to try to live near a big city.
Kinda a hard thought tho for this country girl.
sick n tired
01-20-2008, 05:43 PM
It depends where you go. I live in Texas near both Dallas and Ft worth, and we are in a smaller suburb and there are places out here with cattle and horses. Not exactly country, but the best that we can do and not be too far out from schools and hospitals. I am sure that there are many other states with country (ish) suburbs.
With a whisper and a prayer,
01-20-2008, 10:18 PM
I can't help jumping into this conversation....just short of living in the world famous rain jungle...I would have to rate Seattle right up there in the cooler temperate zones, a fair amount of clouds, and overall I love the green and blue scenery (mountains and lakes)...being from New Mexico, I still get excited every time I see water.
There have been so many great posts, I too wonder about places that have the greatest impact for research and funding. I am amazed how prevalent lupus is in our society, yet you never hear about fundraisers or even news research. As my disease progresses, I find it extremely difficult to be out in the full sunlight...so I walk just before sunrise...and just around sunset....I do my grocery shopping after dark (bonus...no crowds)....
Funny how we have to adapt to a different lifestyle isn't it? It was difficult at first, but after awhile it becomes routine, and second nature. I believe that this is hands down the BEST lupus support website I've found....and ALL of the members are so encouraging and many with wisdom to help us all.
I wish you the best in your brave new adventure. The web is a great tool while investigating locations, you may also look at who's doing extenstive research...and studies.
Soggy & Soaked in Seattle (smile),
01-21-2008, 12:03 PM
I have to chime in there with BrownEyedGirl. I live in the suburbs of Seattle, and I find the weather better than the sunnier areas. There is still sun here, despite what many believe, just long periods (comparatively) of over cast skies and rain - particularly in winter. But there is little snow to fight in winter, and no serious temp extremes in summer. Lots of trees for protection from direct sunlight, too.
I have a rheumy in Seattle who is with the University of Washington, and he is constantly participating in clinical trials. I was on one for two years, receiving Rituxin (a chemo agent to control B-cell lymphocytes). He is very "cutting edge." The damp cold is hard on my rheumatic joints, but that is really my only complaint with the area. So, the suggestions given to you: check on UV ratings, good rheumys, clinical trials, all are things that help to make a "Lupus friendly" area. I did think of one more thing, though, that actually makes this area less attractive: the traffic. The stress of the terrible traffic is so bad for Lupus sufferers, and there is no relief in site. Traffic considerations might be useful to you, too.
Good luck in your search!
01-26-2008, 04:06 AM
I grew up in Seattle and moved here to Florida and each has their good and bad... if you are prone to migraines Seattle killed me however i did have amazing doctors and there were plenty of disabled spots. In Florida however i seem to flare so much less here however its a fight with the elderly for that spot (then they cuss you out for taking it and being "perfectly fine"...jerks) i lived in Texas for a summer so far i think Florida has been the most friendly inspite of the extreme UV its amazing how much shade there really is :)
02-06-2008, 01:09 AM
My wife and I have struggled with her Lupus Since 1994. And have lived and/or traveled across the U. S.. If money is no object the best for climate is the Bay Area or Seattle is best.
In San Fransisco it is breezy and 60-70 year round. The further inland the warmer the temp. The bay area also has great transit and doctors that are more sympathetic to your pain.
We currently live in Texas and it is very Hot. A large percentage of the doctors are more interested in their pocketbook than research and true patient care. My wife flies to San Francisco for her treatments. Hope this helps.