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evilsin
12-26-2007, 07:59 PM
i know i am a newbie and i am lighting up the boards already

but can anybody recommend a rheumatologist or any doctor that is good with lupus SLE in southern california?

sorry if i am being pesky or breaking board rules everybody

i just dont know where to start, so i'm quite literally all across the board

Faith
12-26-2007, 09:53 PM
Hello Evilsin,

Welcome to our Lupus blog. As you probably have already noticed, there are many supportive people on the board. We have either been where you are or are heading in another direction. Lupus effects everyone differently; so it is very helpful to chat with others who may have experienced the challenges you are now facing. What are your symptoms and/or what are you struggling with? We all understand; believe me.

Have you been to a rhuemy and diagnosed? What part or location of Southern California? I have read several books by Daniel J. Wallace who is located in Southern California. I believe he is located in Beverly Hills. Dr. Wallace has several books on "Lupus for Patients and Families" and there is also a Fibromyalgia book. They can be located through your local library or through Amazon and are very helpful. There are times that I reference the books through various stages of the disease.

I hope you blog back in so we can chat. I know how frustrating and lonely it can be to be a newbie and not understand this disease. You truly feel all alone; and no one else understands. This is a great supportive group and I hope you keep us posted. I hope the information has helped and wish you the best. Keep your chin up and continue the fight.

Take care,

Faith 8)

evilsin
12-26-2007, 11:07 PM
hi faith,

thank you for the information and kind words

i am here for my girlfriend, it is not for me directly

i am trying to help her because frankly it stresses her out too much to be preoccupied with lupus and i took it upon myself to help

this is what i know

my girlfriend is of persian ethnicity, 26 years old, diagnosed right after she immigrated to the usa 7 years ago during a tough time in her life

possibility that intestinal infection as a child lead her to lupus sle exposure from what she tells me

who knows

she was on prednisone a few years ago and hated it, quit cold turkey which is very dangerous risk of addison's syndrome

so yeah, she saw a rheumy before

apparently it is non organ threatening lupus sle

she still gets check ups from a doctor but i dont think he is specialist

she is kinda weary of doctors

she takes something called MSM to help with aches

she has pleurisy (i think) and its flaring up right now which is what prompted me to really get involved

she says that she did acupuncture before and that they "balanced" her body. she used to have back pain, then the acupuncture lady said no you are out of balance, you should be feeling it more in your chest, and they balanced her and now she has pleurisy. so.

...yeah, thats what i said

ive only been seeing her for 6 months, we dont live together so its hard for me to take care of her all the time, she does live with her family though but they dont seem too vigilant which i guess i am starting to understand

there has to be a balance, you cant keep reminding somebody that they are not feeling well

she doesnt drink or smoke, used to a little, but not now

she watches what she eats, no brocoli, no beans, no tomatos, no inflamatory foods, not too much sweets

i got her cell salts and fish/flax seed/ borash oil pills

music therapy seems to help

no stress, which can be hard sometimes, but i try to help

i want to have her fillings replaced, get her into yoga or tai chi, get her to see a doctor, and all this kind a stuff

but i am new to this and so we have much to do and i have to start somewhere, so one step at a time

i guess one of my first steps is getting into the lupus community and learning as much as i can

and i really appreciate all the help and advice

i will look up dr wallace

ha! i have his book, duh...

looks good, thanks!!!

-s

cranbrycloud
12-27-2007, 02:34 AM
Hey there,
I am in so cal too and I have a great Dr. at Loma Linda University, Dr. Moldovan. She is great and attentitive and makes time for me, which is important. Anyway, there are plenty of Dr's there who are all pretty good from what I hear. So, check it out if you like :)
Good luck!

evilsin
12-27-2007, 12:50 PM
hi cranbrycloud,

loma linda, got it good to know

thanks!!!

keep the referrals coming!!!

i assume there are a lot of good doctors

but the more leads i have the better

i think that referrals are important for lupus patients

NOW I JUST HAVE TO FIND OUT ABOUT MEDICAL INSURANCE

i'm on the case

that's a whole other post though

hatlady
12-28-2007, 02:28 PM
You are wonderful to try to help her! Remember, you want to be gentle, if you push too hard she will not be happy with you.

It sounds like she is interested in alternative medicines if she has gone to acupuncture. Ask her if she has tried massage therapy - it is a wonderful help for the aches and pains.

And let her know about this forum - we'd welcome her as well.

Faith
12-29-2007, 11:59 PM
Hi Evilsin,

I am glad to hear you have Dr. Wallace's book; it will come in very handy!! Does she have insurance? I hope so.

It looks like you have a couple of referrals and I am very glad. It's always great to have several in case you need a 2nd opinion.

I really wish you and your frield well. Keep us updated ok?

Take care,

Faith