View Full Version : Mouth Ulcers

12-16-2007, 11:42 AM
I've never had this particular lupus symptom before, and I wanted to check with others to see if this sounds familiar. About 2 weeks ago I developed a sore on the roof of my mouth, right up in front by my top teeth. (You know...like you bit into a piece of pizza and the hot cheese burned your mouth. :lol: ) But, I hadn't burned it on anything. The sore spread; became many sores, all over the roof of my mouth. They looked like what we referred to as canker sores when I was a kid. (red rimmed; white in the middle) They really hung on - nearly 2 weeks - only recently got better. It was difficult to eat much - everything hurt them. Does this sound like the mouth sores common to lupus? I didn't have them anywhere but on the roof of my mouth, and no sores in my nose. As always, appreciate any info others can share.


12-16-2007, 01:46 PM
Hey Jody
I haven't been diagnosed yet (and I may turn out to have something entirely different) but I hadn't had ulcers either until this past week. I got one beneath my tongue which lasted for four days.. the same four days in which my joints flared up with pain and I was struggling to walk.
Mine was much like yours sounds, bright red and white in the middle and I'm so glad I only had one ~hugs you up~
Will watch this for the response of the others as I'm interested to hear their answers too!

12-16-2007, 03:53 PM
Mouth ulcers are quite common in Lupus (mine was so severe, I couldn't eat as my entire mouth was raw). These ulcers generally occur during flares along with increased joint pains rashes and hair loss. Fortunately, in most people, when the disease settles the mouth ulcers settle as well. However, stress or tiredness can also make your mouth ulcers worse.
Mouth ulcers can be painful and uncomfortable and if they are an ongoing problem, there are simple treatments available such as antiseptic mouthwashes and sometimes steroid lozenges or paste . Occasionally the nose can also be affected in the same way and vaseline cream or steroid paste or nasal spray can be used.
In the vast majority of people these simple measures, and controlling of disease flares with low dose steroids and/or hydroxychloroquine (Plaquenil), are all that is required. Very occasionally ulceration of the mouth or nose can be more severe and if it does not respond to these simple measures there are more specialist drugs available.
Some people with lupus can develop discoid skin lesions which are slightly elevated, red areas of skin. The term discoid came from their appearance of looking like red coins or discs on the skin. Similar lesions can sometimes occur inside the mouth or nose and occasionally they can also ulcerate. This type of problem is much less common in people with systemic lupus and is more likely to occur in people whose condition is fairly limited to the skin (discoid Lupus).

I hope I've answered your question. Let me know if you need anything further.
Peace and Blessings

12-17-2007, 12:38 AM
I too have mouth sores! I was diagnosed with sle and discoid together about twenty five years ago. I have been having mouth sores lately alot. I have also been flaring so much it seems like forever. A lot of new symptoms lately. My whole mouth hurts.My tounge feels swollen and very painful. Just wanted to chime in and let ya know your not alone. Been feeling really bad lately. gotta go

12-17-2007, 07:25 PM
Ditto on the mouth ulcers. They hang around for a week or more, whereas a normal pizza burn normally resoves the same day or overnight.

Yeesh, every time I read this board I can identify new and different symptoms that could not be explained in the past. I can see I have been having flares for over thirty years and not one doc connected the dots until my GP sent me to a rheumy last year for a definitive diagnosis. Now "it" has a label and at least we can do what is appropriate to treat "it" with some success.

The mouth ulcers usually appear when I'm exhausted, feel flu-ey all over and have joint pains greater than usual. The mouth ulcers do not cause the other things, they just come along for the miserable joy-ride.

12-18-2007, 12:37 AM
:shock: Moxie
I really don't know anyone on the site, but I don't remember anyone say that they have been sick for so many years. NOT SAYING IT'S A GOOD THING, but It makes other problems that I've had through the long years, (27) seem more bearable. (that kind of sounds morbid huh?) I think I'm not making a whole lot of sense. Catch you later. :?


12-18-2007, 10:02 AM
Because docs these days specialize, you have to find one who is savvy to the ins-and-outs of autoimmune diseases. In the past, no one in my world seemed to even consider a connection amongst my many symptoms and manifestations of odd stuff.

My docs are now saying "aha!"

It took a rheumy to administer the correct combination of lab tests and to send me to the right combination of specialists.

For instance, I have thus far lost both hips to avascular necrosis, and will find out this afternoon if I will need to get my left knee replaced as well. My ortho will go over the MRI taken two weeks ago. To this point, he never considered extreme arthritis and bone necrosis to have any connection to Lupus/autoimmune disease --- SURPRISE!

We are all learning as we go along. Thank goodness I survived long enough to make it this far.

12-18-2007, 05:39 PM
Thank you all for your replies. Saysusie, as usual your information was very helpful. I was feeling very lousy during the time that I had these mouth sores (other than the sores) so I'm guessing it was all part of a flare.

12-21-2007, 02:02 AM
Has anyone ever had the ulcers down the throat? I've had this bout of ulcers in my mouth for weeks now, and it feels like they are in my throat. My glands are really swollen too. I don't know! I just feel so ugh lately. A lot more depressed lately too. Anyway, if anyone has had this problem, info please. :cry:


12-21-2007, 08:56 AM
It is common for the mouth ulcers to cause chronic sore throat. However, there are some serious conditions that can cause throat ulcers. You should see your doctor about these so that these conditions can be eliminated!

Here is a list of 17 conditions that can cause throat ulcers, some are not serious but some are:
1. Acquired agranulocytosis
2. Bejel
3. Chickenpox
4. Erythema multiforme
5. Hand, Foot, & Mouth Disease
6. Herpangina
7. Oral thrush
8. Primary syphilis
9. Secondary syphilis
10. Shingles
11. Stevens-Johnson Syndrome
12. Throat cancer
13. Tongue Cancer
14. Tongue Conditions
15. Tonsil cancer
16. Tonsil disorders
17. Ulcer

Let us know what your doctor discovers and how you are doing!

Peace and Blessings

12-22-2007, 03:11 AM
Thank you again Saysusie. I don't think it could be thrush or anything like that because I like to keep my mouth and everything else very clean. I've kind of developed a germ phobia. I haven't been with anyone like that for, mmm-about 6 years. Thanks again for the info. :wink:


01-13-2008, 07:10 PM
Which is of course such a joy when combined with a runny nose. Already on plaquenil -- any other suggestions for when the they flare?

01-13-2008, 08:21 PM
Any quick fix for relief on multiple mouth sores? On top of other problems, now this today. Several showed up and causing soooo much pain. :(

01-14-2008, 07:12 PM
Mine are gone now, Cheryl, but I'd sure like to hear any ideas. I just tolerated them until they went away. It's one way to lose weight, though! :lol: I could hardly eat anything 'cause my mouth was too sore.

01-14-2008, 08:26 PM
Dido Jody, I've only had them for 2 days and already lost a couple pounds from lack of being able to eat (do not eat vinerette salad dressing, OWE!!,lol :lol: ). I tried the mouthwash Saysusie mentioned, but it burned to bad. Tried the lozenges too, but didn't numb the pain enough. Maybe I tried the wrong kind? They're so many to choose from. I'm sure there's something that'll help, I'll check back later. :D

01-15-2008, 03:12 PM
My doc recommended Chloraseptic mouth pain spray. It definitely helped, but during the time when the ulcers are really painful you need to keep the bottle handy so you can spray as the numbness wears off.

01-16-2008, 07:19 PM
Thank you Mackie--I'm gonna give it a try. There's one right in the middle of the roof of my mouth that's been there forever. Thanks--- :P