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IloveHistory
12-13-2007, 05:44 PM
Hi Everyone!

I'M BACK! :D

Boy, I've been gone for a long time! :( I am SO sorry that I have been unable to contact you guys for so long, but I will explain why; believe me, I would never abandon you! You all mean SO very much to me! :cry:

After weeks and weeks of suffering severely with my bowels and seeing my G.P. only to be given Spasmo-Canulase, then Flagyl as well, then Librax as well, with two Buscopans every four hours throughout this period, Kantrexil (none of which took my problems away or helped very much) and then fainting in the middle of my Physics Exam because I was in so much pain and having severe fevers, but still being ignored by my G.P. when I explained my family history of Crohn's Disease, Ulcerative Colitis, Colorectal Cancer, Bowel Prolapse, severe G.E.R.D., Ulcers, Stomach Cancer, etc. and begged for scopes to be done, my mother and I had finally had ENOUGH!

So, my mother and I spoke to my Psychiatrist and he recommended a colleague of his who is the best G.I.T. Surgeon around. We made an appointment and I saw him this morning.

He spoke to my mother and I first, then spoke to my Psychiatrist over the phone and then did a Sigmoidoscopy (a type of anal scope) and found LOADS of pin-prick patches of bleeding and inflammation throughout the bottom part of my colon and rectum! :( I have ULCERATIVE COLITIS! He took some urgent bloods and a biopsy and will let me know how they come out when they get the results (will let you know). He's prescribed me some special medicine, which my Pharmacy had to order for me! It wasn't so much painful as uncomfortable when he did the scope, but it was VERY painful afterwards because of the air they had to blow in my colon! :(

My mother was so relieved that I was finally getting some relief for the severe pain that I was in, that she actually began to cry... :cry: She is SO, SO, SO VERY ANGRY :mad: with the doctors who made me SUFFER and IGNORED me when I actually had something really serious going on! That discharge that was coming out of my anus was MUCUS, which was being excreted in massive amounts by my rectum, so that my body could try and show me that something was very wrong and NOBODY (well, doctor-wise) BLOODY (forgive me) listened to me! :mad:

I failed my Mathematics Exams (I have NEVER failed anything in my entire life) because I was forced to write them with fevers of 39 degrees Celsius, EXCRUCIATING pain, severe unstoppable diarrhea and a rectum that was slowly seeping blood and mucus out in a desperate attempt to grab my attention and get some much-needed help! :mad:

I have not really been allowed near the computer before today and here's why. I began to have uncontrollable and frequent seizures and severe migraines again due to all the nutrients my body was failing to absorb and spilling out in massive amounts each day. Although I do not have Photosensitive Epilepsy, my mother did not want me anywhere near the flickering computer screen because she was too worried about the damage it may have caused me seizure-wise. That may sound silly to you, but believe me, I do not blame my mother because I have been SERIOUSLY ill! I have hardly been able to climb out of the bed due to severe fatigue (not surprising in light of my recent diagnosis, is it?) and now, my knees are buckling continuously. I think that the knee-buckling is Cataplexy (Much worse when I'm very tired and happens when I feel sort-of "strange") and that I may now have developed Narcolepsy... :( This does not surprise me because I have spent most nights wide-awake with my mother beside me, either almost screaming in pain or in the bathroom, vommiting or suffering severe diahrrea or unable to lie down due to severe gastric reflux, which not only irritated my esophagus and stomach, but also my throat (already dry and cracked due to Sjogren's) and my Asthmatic chest! :x My sleep patterns, never particularly good, were now shattered and now my brain has had more than enough and I don't blame it!

Sorry to vent so much, but I had to get it out there! :wink:

Thank you SO much for always being there for me! :cry:

Love
IloveHistory.
xxx

magistramarla
12-13-2007, 10:06 PM
Hey girl,
I am sooo relieved to finally see a post from you. I've been lurking in this lounge every evening, just checking whether you were back yet. Isn't it a pain (literally in the right place for you) that doctors tend to ignore what our bodies are trying to tell us until it gets so bad that it is FINALLY clear to them. Hopefully, they are finally on the right track with you. Please keep us posted.
Do you have someone who will advocate for you at school - an administrator, counselor or teacher? It seems to me that you should be allowed to re-take those exams when you are feeling better. Your exam results from when you were so sick are not a true measure of your abilities. You can quote me as a professional educator on that!
Happy to hear from you,
Marla

IloveHistory
12-14-2007, 10:34 AM
Hi!

Thanks for your kind words and support! :)

Well, I got my bloods back today and they are fine, so that's great! :D Now, we're just waiting for the biopsy result...

Unfortunately, I cannot re-write my Exams due to the way the system works! :mad: However, next year's Exams are my most important ones and those can be re-written. My mentor/favourite teacher/vice-principal is going to write a special letter with my university application form, explaining how ill I have been, etc. I am not going for early application and entrance because I want better results on my form, so I will apply later...

Anyway, enough about me! How are you doing?

Keep well! :)
xxx

Pretti in Pink
12-14-2007, 03:44 PM
I am glad to see you back but more excited to hear that you are feeling better.

IloveHistory
12-14-2007, 04:55 PM
Thanks, Pretti in Pink! :)

How are you doing?

mnjodette
12-14-2007, 06:17 PM
Wow, was I glad to see your post, Ilovehistory!! We've missed you, and you've gotta' know there were lots of worried friends here, wondering what was happening. I'm soooo sorry for what you've gone through, but soooo glad that someone is finally paying attention. Your Mom must've been absolutely furious at your doctors. I hope everything works out now - the diagnosis leads to the right treatment, medication... It would be great to see you able to do some normal activities without all of the pain and discomfort you've had for so long. Keep us posted - we're all glad to have you back.

Pretti in Pink
12-15-2007, 07:31 AM
Hello IloveHistory,

I am doing well, can't complain. Thanks for asking and again, glad to see you back.

IloveHistory
12-15-2007, 04:10 PM
Hi!

Mnjodette: Thank you SO very much for your kind words and support! I missed you guys too!

How are you doing? Any luck with the Colchicine, i.e. has the Pericarditis ever come back?

Pretti in Pink: I am SO glad to hear that! :) Thanks again! :)

Keep well! :)
xxx

mnjodette
12-15-2007, 05:17 PM
Thanks for asking, IloveHistory. I've had some ups and downs. Still on colchicine, but back up to 10mg prednisone, and just switched me from imuran to cellcept to see if we can get a handle on things. Back to having bouts of pericarditis and pleurisy, and some new symptoms, too. Never a dull moment with our "friend" lupus, right? But, I'm hopeful! Sure nice to see your posts again! Take good care.....

Missy
12-15-2007, 08:52 PM
Welcome back!

IloveHistory
12-16-2007, 08:40 AM
Hi!

Mnjodette: I'm SO sorry to hear that you are still struggling with this problem! :( I've never had Pericarditis, but I know that it's extremely painful! Pleurisy, on the other hand, is a friend who visits often! :lol: :wink:

Missy: Thanks, Missy! :) How are you doing?

Keep well! :)
xxx

Saysusie
12-16-2007, 03:28 PM
ILoveHistory;
I've been out of town and just read your post. First, I am so happy that you are finally getting relief from all of your symptoms. I, like your mother, am very angry with the doctor's who refused to believe your symptoms. I'm reminded of when my daughter would tell emergency room doctors in Nevada that she was having heart problems and they dismissed her saying that this was impossible because she was too young. My daughter finally passed away as a result of the damage that this disease had done to her heart.
I am glad that you and your mother finally stood up for your rights and found a way to make someone listen and get you help. I pray that these treatments will continue to give you relief and that you continue to move towards being symptom free. Especially from the pain and seizures!!
I completely understand your mother's trepidation at the possibility of you suffering from one more thing that might be brought on by the computer. So, while you were truly missed, your absence is completely understandable. Will you be allowed to retake your tests? It seems to me that if your doctor wrote you a note explaining your condition during your test that they should be willing to make allowances for you to retake it! It might be worth pursuing, especially since you've never failed anything before!
Again...I am so happy to see you back with us, so happy to hear that your symptoms are being treated and I hope and pray for your continued improvement in health!

Welcome Home
Peace and Blessings
Saysusie

Missy
12-16-2007, 09:38 PM
Hi ILoveHistory -

I'm doing pretty well. I took a job promotion back in June, which meant more hours than the part time work I was doing (I went from 24 hours a week to 32) and lots more responsibility. It's been hard. Some weeks I work more thatn 32 hours and some days are 12 hour days. Some days it's hard to get a lunch break. I made a commitment to stick with it a year, and I really want to keep that commitment, but I've found that I've had less and less energy for the rest of my life, because work has just been consuming all I have. I'm really trying to balance it the best I can and my boss was actually just diagnosed with an autoimmune disease, so she really understands. So, yeah, I'm just taking it one step at a time and really looking forward to next week when I have a week off and get to see my family and friends for the Christmas holidays.

Thanks for asking!!! You are so sweet!

IloveHistory
12-17-2007, 03:44 AM
Hi!

Saysusie: Thank you SO much for all of your very kind words, caring and support! :) I am SO sorry that you and your daughter had to suffer due to the incompetence of some members of the health profession! :mad: How are you doing?

Missy: I'm glad to hear that! I admire your strength and courage in sticking with your job, even though it is so very tiring and difficult! I'm sending you some cyber-strength! :wink: It's good that your boss understands; there's little worse than having an obnoxious boss who doesn't understand, believe in or support you...

Keep well! :)
xxx

hatlady
12-17-2007, 09:37 AM
It is so good to have you back, ilovehistory! Finally, back on the right track too....

Many many hugs~

IloveHistory
12-17-2007, 12:11 PM
Thanks, Hatlady! :) How are you doing?

Keep well! :)
xxx

Gisèle
12-17-2007, 05:25 PM
Oh my goodness, that's sounds terrible, Ilovehistory! :( I am sorry you've been in so much pain, and how some doctors didn't even care. That's awful. Are you feeling any better with this medicine? And I really hope there is some way that you can retake those exams!
Hang in there, I hope you are doing better!!

Saysusie
12-18-2007, 09:23 AM
ILoveHistory;
I am doing well considering........... Thank You So Much For Asking

I thought that I was going to escape the flu this season...no such luck! But, I am most happy about your health improving. That is a blessing to me :x-mas:
Peace and Blessings
Saysusie

IloveHistory
12-18-2007, 11:49 AM
Hi!

Gisele: Thank you for your concern. Yes, the medication is definitely helping, thanks! :) I have to insert an Asacol Suppository every night before bed and he's given me something called 'Lp299v' - some type of fancy probiotic - to take three times a day.

Saysusie: I'm sorry to hear that you have the Flu! :( Feel better soon!

I had to see my G.P. today because I'm having problems with my ears again; I have Eustachian Tube Dysfunction in both ears with Palatal Myoclonus and am almost deaf in my left ear! :(

Also, I'm having problems with derealisation episodes and olfactory hallucinations; I spoke to my Psychiatrist about some worrisome symptoms and he explained that I'm having derealisation episodes and olfactory hallucinations, but that they're not a psychiatric problem in my case, but rather a neurological one. They're a type of seizure, he said. My first Neurologist felt that I picked up some type of Encephalitis-virus while I was in Austria with the Dysentery and my mom and I are becoming more and more convinced that this is the case... Some virus/auto-immune disease seems to be causing havoc in my central nervous system... :(

Keep well! :)
xxx

hatlady
12-18-2007, 12:17 PM
I'm doing great, ilovehistory, so nice of you to ask!

I hope these olfactory hallucinations go away - and the... derealisation episodes? (Not sure what they are, am going to google it...)

You've had quite the run of it lately, my hopes for you are for a quiet time of comfort, with only the scents that you WANT to smell (like baking cookies - that actually ARE in the oven) and friends around you.

Hugs ~

hatlady
12-18-2007, 12:20 PM
Derealization is a similar term to depersonalization, and the two are often used interchangeably. However, more specifically, derealization is the feeling that "nothing is real," while depersonalization is the feeling that one is "detached" from one's body or world.
from Wiki http://en.wikipedia.org/wiki/Depersonalization

I realize Wikipedia isn't a clinical source, but it at least gave me a definition. What an awful feeling that must be! Ilovehisotry, I hope this goes away soon -

IloveHistory
12-18-2007, 06:26 PM
Hi!

Hatlady: I'm glad to hear that! :)

I love what you said about the Olfactory Hallucinations! :lol:

Here's a good description of derealisation from http://www.thelindenmethod.co.uk/depersonalisation-derealisation/ :

Terms commonly used to describe the symptoms and sensations of derealisation:

-spaciness
-like looking through a gray veil
-a sensory fog
-spaced-out
-being trapped in a glass bell jar
-in a goldfish bowl
-behind glass
-in a Disney-world dream state
-withdrawn
-feeling cut off or distant from the immediate surroundings
-like being a spectator at some strange and meaningless game
-objects appear diminished in size
-flat
-dream-like
-cartoon-like
-artificial; objects appear to be unsolid, to breathe, or to shimmer
-"as if my head were inside a Coke bottle and I'm viewing the world through the thick glass at the bottom"

Keep well! :)
xxx

browneyedgirl53
12-31-2007, 08:44 PM
WELCOME BACK, ANGEL GIRL !!!


Just wanted to share with you what has worked for me. I purchased a screen shield for my monitor and it has made a HUGE difference....I too have seizures, I can't be around flourescent lights, etc. So, I would highly recommend a screen filter for your monitor.

I hope you're doing better, it was great to see you back.

Much love,
Browneyedgirl