View Full Version : Is this normal? Anyone else experience this?

12-02-2007, 10:02 PM
For quite some time now, I've had this problem, but I have never really thought anything of it. But then I got to thinking, how come I never notice this on anyone else? On my legs, mostly my thighs, I notice how I get this reddish/slightly purplish veiny look on them. It's very hard to explain. It's like a net-like pattern, I guess? And it isn't there all the time, it is mostly when I am cold. Does anyone else have something like this? It somewhat worries me, but I am hesistant to mention this to my rheumatologist if it's completely normal, know what I mean?, especially if it has nothing to do with my current health problem. But then again, if it's something serious, I don't want it to get worse or anything. Does anyone know what I am talking about? Has anyone else had something like this? Could this be related to this lupus/autoimmune things? Thanks! :)

12-02-2007, 10:40 PM
Hi Giselle,

I have heard of the lace vein thing. I want to say it was in connection with Raynaud's. Do your fingers turn suddenly blue or red? I have heard it is more of an issue of being warm.

I would definately talk you your rhuematologist about it and see what he/she says.

Take care,


12-03-2007, 04:52 AM
look up livedo reticulitis,, its common with lupus, its cause by a liver enzyme

12-03-2007, 08:53 PM

I get that on my legs and the backs of my arms when I am cold. I've never been diagnosed with Raynaud... but then again... I live in Florida and the cold weather brings me so much relief otherwise, I haven't told my rhuemy.

At first I thought I was getting spider veins. But then they go away...

My legs and arms also hurt when I haveit.... but that could be my Fibro.


12-05-2007, 12:58 PM
Thank you so much Faith, Teriod, and SonyaLA for the replies, I appreciate it so much!!
I don't think I have Raynaud's, my fingers and toes never turn purple, blue, etc., although my toes are constantly like ice, lol. But I am not sure if that has to do with Raynaud's.
I looked up the livedo reticularis, and it does look like what I have somewhat. I see mild pictures and some full blown cases of it. So considering this condition has a name, it's probably not normal right? I have also read that livedo reticularis occurs a lot in autoimmune diseases and is seen in lupus..interesting! I guess I should tell my rheumatologist about it, I am just so hesistant to do so because I don't want him to think I am a hypochondriac thinking any little thing is abnormal, know what I mean? But I am going to continue to read about this livedo reticularis and probably will mention it to my rheumy.
Sonya, mine go away too. They are on and off, and they do occur mostly in cold weather on my legs, but mostly my thighs, and sometimes my forearms. But my legs/arms never hurt when I have it.
Thanks again for the responses!! :)

12-05-2007, 04:23 PM
I've had that for years and never thought anything of it. I am learning so much on here!! Thanks!!!

12-05-2007, 08:04 PM
Gisele, there's lots of good reasons to share your symptoms with your doctor. You shouldn't worry too much about appearing to be a 'hypochondriac.' Lupus is always throwing something new at you - just when you think you understand all that it can do, it does something else. That being said, it's important to remember that not every little ailment we have is lupus-related. Still, it's better to let your doctor know what's happening, just in case.

01-02-2008, 01:20 PM
when I went to London to see the specialist there she told me that it was Rayneuds phenomenon on my legs and hands and it does look like i veiny-ish net thing. I get it mainly when i'm cold and sometimes, oddly, when i'm extremely hot.

Hope this was useful.
I don't really think anything bad can happen from Rayneuds though.. i seem to be alright.

Let me know if you discover anything new. :wink: