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jen6967
10-30-2007, 07:04 PM
My 15-year-old daughter was diagnosed with autoimmune thyroid disease two years ago. Her thyroid antibodies were extremely elevated and she went from hyperthyroid to hypothyroid. She was on medication for this, but was able to stop it a several months ago. The endocrinologist told me she may “grow out of it” and we thought she did. She had an episode about a year ago where she had pain in her chest when she would take a deep breath that continued for days, we took her to the emergency room, and they said it was probably a muscle pull. They did not do an x-ray at that time. Recently she started complaining of terrible leg pain (she had one episode in the middle of the night where she woke me up crying from the pain). She has also started to be tired all the time. She is sleeping all the time and has no energy. She has said that her legs felt like they would not work sometimes, espically during physical education at school. She stays in the bed more than out of the bed. She has also had some bad headaches recently. This is not her normal behavior. She has always been very active, but has times where she just isn’t herself. We thought her thyroid was the problem and took her back to the doctor who did an exam and some lab work. They called and told me that her thyroid levels were normal, but she was anemic and had protein in her urine. They told me to start her on iron and they would check these again in a month (along with her urine) and could not explain her fatigue. Her skin has also been broken out terribly for the past few months and we have just attributed this to acne, but it is definitely different. We just feel like something is not quite right and don't know exactly what it is. I have been researching on the internet and am concerned that maybe this could be lupus. I have read that a lot of autoimmune disease go hand in hand. She will be going back to the doctor soon and I would like to know if I should ask for any specific lab work. Are labs only abnormal during flare-ups? How is lupus diagnosed? Thank you for any advice you can give. Jen

lornak
10-31-2007, 05:14 PM
I am so sorry to her about what your child is going thru. I am a mom too and could not imagine my child going thru this without being able to help. as far as the tests go. I think we all have had so many tests done that we all look like pin cushens :D . my advise to you is, ask you primary to give you a referral to see a specialist. that is what I had to do to find out for sure. I dont believe the primary knows everything and sometimes I believe that you have to fight for what you need, or even think you need.

I hope you little girl feels better soon and give her a hug.

cheryl_v
10-31-2007, 08:08 PM
I agree with lornak, ask to be reffered to a specialist. A Rhuemitologist would probably be best. Thats the specialist most go too.

Neicee99
11-02-2007, 08:08 AM
Hi
It must be difficult to see your daughter in pain. I have a 16 year old daughter who was diagnosed with SVT (Supre Ventricular Tachacardia) last year and she was also tested for thyroid and anemia of which both were negative. But the thing that triggered my response to you is that all of a sudden, her face has broken in with horrible acne. She went from 1 or 2 small pimples to a full blown acne like overnight and rosecea (sp?). I took her to a dermatologist and he said it is acne vulgaris. I asked if it could be lupus because they do not look like regular pimples and he said no to the lupus. That made me feel better but it just seems weird to me. She is tired ALL the time too. I think I may have some bloodwork done on her but not tell her what they are looking for. I just pray to god that I do not pass my bad luck onto my kids.

I hope your daughter feels better soon. I would bring her to a rheumatologist too.

Denise

dlavietes
12-04-2007, 03:14 AM
Jen
I also have a daughter, (16) sho has been having headaches for almost three years. Now the doctor says she's got bursitis in her hip. I pray to the gods that she isn't walking down the same road as I. I know it's hard to see your child in any kind of pain. I wish you and your daughter the the best. I'm sorry I don't really have any answers. I asked my daughters doctor to do an ana blood work up, and she told me that she can't justify a test like that. Not enough reason! Good luck to you both.

Diana :roll:

Neicee99
12-04-2007, 06:55 AM
HI Diana
Thanks for your response. I truly hope your daughters issues are just that, a fluke. Like you said, nobody wants to see their child in pain. I pray that I only pass down traditions, hobbies, kindness, etc. to my three daughters, and not my lengthy medical problems.

Have a wonderful holiday season.

Hugs
Denise (NH)


Jen
I also have a daughter, (16) sho has been having headaches for almost three years. Now the doctor says she's got bursitis in her hip. I pray to the gods that she isn't walking down the same road as I. I know it's hard to see your child in any kind of pain. I wish you and your daughter the the best. I'm sorry I don't really have any answers. I asked my daughters doctor to do an ana blood work up, and she told me that she can't justify a test like that. Not enough reason! Good luck to you both.

Diana :roll: