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magistramarla
09-07-2007, 07:24 PM
Hey all,
Has anyone else noticed that ILoveHistory has not been on any of the forums for a while? I feel very concerned about that young lady. At first, I just thought that she must be very busy with school, but now I'm wondering why she hasn't been commenting at all for so long. Anyone else have any idea what has happened?
Marla

Saysusie
09-08-2007, 01:31 AM
I, too, have noticed her absence. I sent her an e-mail to let her know that we are thinking about her and that we miss her. I hope that all is well with her, she is such a beautiful soul and yet, has so much courage! I truly admire her :lol:

Come back soon, ILoveHistory....you are loved!!

Saysusie

IloveHistory
09-08-2007, 12:44 PM
Hi Magistramarla and Saysusie!

Thank you SO very much for all your kind words, love and support! It is truly appreciated! Thank you very much for the e-mail, Saysusie! :)

Well, I have been really, really sick lately... :( After two years of me being so sick, we have finally discovered what the problem most likely is: it looks as though I have Wilson's Disease... We need to do loads of labs to be sure though and I'm looking at a long hospital stay... We sent my hair away to the U.S.A. for lab analysis and basically I have mercury poisoning and despite me supplementing HEAVILY, I am SEVERELY deficient in Calcium, Magnesium, Zinc, Manganese, Cobalt and Selenium; my Iodine is sky high and my Potassium is too low. I was barely excreting any copper in my hair, which means that it's collecting in my body and not able to be disposed of. Selenium deficiency is extremely rare and because I am so deficient, I am not absorbing properly through my intestine. I do have Celiac Disease, but I haven't consumed gluten for months... We have been advised to look for Crohn's Disease or Ulcerative Colitis, both of which are in my family. Basically, I had a Colonoscopy last year due to severe bowel problems, but they only found one ulcer. However, they never bothered to check out my small bowel! :mad:

I am SO angry because I have seen three Neurologists and not one of them checked for Wilson's Disease, despite my many neurological problems! :mad: If we hadn't discovered this now, the Wilson's would have eventually killed me! :mad: I know that Wilson's is fairly rare, but it was something that I was thinking about in the back of my mind for ages, but I never said anything about it - you know how doctors are...

The tests that have been suggested are:

Bloods and Similar

*Salivary Hormone Tests; Cortisol Saliva Test, four times a day
*TSH
*Free T4
*Free T3
*Thyroid Antibodies
*Renin/Aldosterone
*Serum Cortisol
*24hr Urine Cortisol
*Faecal Copper Test
*Red Blood Cell Copper
*24hr Urine Copper
*Serum Ceruloplasmin
*Glutathione Peroxidase
*Serum Calcium
*24hr Urine Calcium/Phosphate
*Magnesium
*Sodium
*Serum Potassium/Packed Red Blood Cell Potassium (?)
*Urine Potassium
*PTH
*Vitamin D
*Serum Phosphate
*Whole Blood Elements Analysis (?)/Packed Red Blood Cell Elements Analysis (?)
*Serum Uric Acid
*24hr Urine Uric Acid
*Creatinine Clearance
*Amino Acid Analysis (?)
*Baseline 24hr Urine Magnesium Measurement, followed by 0.2 mEq/Kg Intravenous Magnesium, followed by 24hr Urine Magnesium Measurement
*Vitamin B12
*Ferritin
*Folate
*Protein Total, Albumin
*Bilirubin
*ALP
*GGT
*AST
*ALT
*Full Blood Count
*Cholesterol
*Glucose
*Insulin

Surgical/Imaging/Biopsies

*Look for possible bile duct obstruction and/or gallstones/Hepatomegaly/Splenomegaly
*Look for fluid buildup in the lining of the abdomen
*Look for Crohn's Disease/Ulcerative Colitis
*Thyroid Imaging
*Bone Density Scan
*Liver Biopsy
*ECG
*ERCP
*Upper Endoscopy/Upper GI Series

As I said before, long hospital stay...

I have been having the most excruciating pain in my back, right wrist and left side of my chest - a very unusual pain - and when I palpate a certain part of my palm above my wrist, a small lump appears. Now, I am worried about tumours/Cancer (big in my family)... :( I have a Scoliosis, Scheuermann's Kyphosis and Occult Spinal Dysraphism and I have terrible back pain every day of my life, but this pain is so different... It isn't relieved when I lie down and is worse at night, as is the chest pain... The pain spread from my spine area to my whole back to my chest to my wrist... I have been to my G.P. three times with the back pain and he told me to come back yesterday if it wasn't gone, but I wasn't able to go and now he's away the whole of next week! He has given me pretty strong painkillers - Tramacet (Tramadol) though, but it's just not enough! :( Do you think that I should make an appointment to see my Paediatrician/Paediatric Cardiologist?

Keep well and God bless! :)

magistramarla
09-08-2007, 12:53 PM
Hey, ILove History!
It is so good to know that you're still out there! We were worried about you! Hopefully, now that the doctors have yet another name to go on with you, they can actually accomplish something for you. I, too, am about to embark upon a whole series of new tests over the next couple of weeks. While I'm going through mine, I'll think about you and we can hold hands in cyberspace! Stay strong, sweetie! I'd give you some of my strength if I could!
Fortes Fortuna adiuvat!
Marla

IloveHistory
09-08-2007, 01:09 PM
Hi Magistramarla!

Thank you SO very much! :) If you don't mind me asking, what sort of tests are you having?

You've already given me some of your strength; I wish that I could reciprocate!

Keep well and God bless! :)

Pretti in Pink
09-08-2007, 01:28 PM
I love history,

I'm sorry to hear about you going through so much. I was just worrying about my one syptom and here you have a myriad of them. Puts things in perspective for me. I hope you get a final diagnosis soon without going through much more than you have already been through.

You are a very strong and remarkable young lady, I truly admire you. Hang in there.

IloveHistory
09-08-2007, 01:41 PM
Hi Pretti in Pink!

Thank you SO much for your very kind and supportive words! :)

Keep well and God bless! :)

magistramarla
09-08-2007, 06:55 PM
Hi ILoveHistory,
Check out my post called "I have a diagnosis". The neurologist thinks that I have spinocerebellar ataxia. It is a genetic degenerative disease that causes the cerebellum to gradually atrophy, causing movement disorders, and other fun neurological effects. Since you're so interested in neurobiology, you will probably find the info on it that is on the internet to be very interesting. Here's what I'm in for in the next couple of weeks:
Sept. 12 - Botox injections into the vocal chords for Spasmodic Dysphonia
Sept. 15 - Another MRI of the brain & spine, this time with contrast
Sept. 19 - A complete nerve conduction study (when the doc placed a vibrating tuning fork on my knees, I didn't feel a thing)
Whenever I'm called - A specially trained phlebotomist will come to my home or place of work to draw blood which will be specially packaged and sent to a lab called Athena in Massachusetts for genetic testing. (My school nurse is all excited for it to be done in her office).
Sept. 24 - (Jeff's birthday) The neurologist wants to talk to both of us in his office.
See why I said that we should hold hands in cyberspace and give each other strength? My stuff isn't nearly as complicated or scary as yours, but I'm dreading it!!
Love,
Marla

IloveHistory
09-08-2007, 07:27 PM
Hi Magistramarla!

That sounds awful! :( I can assure you that yours sounds even more scary than mine! :( Don't you just hate that M.R.I. Scanner? It is SO loud! :x I will keep you in my thoughts and prayers... Do you have S.L.E. as well? Will you have a local anaesthetic when they inject the Botox into your neck?

What type of movement disorders do you have, if you don't mind me asking? I have tics involving my left shoulder, both eyes and my neck; weird involuntary movements, usually affecting my legs; spasms and tremors (pretty much everywhere).

Do you suffer from seizures too? If so, what type of seizures do you have, if you don't mind me asking?

My birthday is on 25th September and I'll be seventeen! :bday: I just hope that I'm not in hospital then! :roll:

Keep well and Gob bless! :)

Missy
09-08-2007, 07:35 PM
Oh, I hope you aren't in the hospital on your birthday! At the same time, I want you to get better!

I hope things start looking up for you soon, Ilovehistory!

IloveHistory
09-08-2007, 10:48 PM
Hi Missy!

Thank you SO much for your very kind words and support! :)

Keep well and God bless! :)

Saysusie
09-09-2007, 01:48 PM
Welcome back ILoveHistory :lol:
I'm sorry it has taken so long to respond to you. I am so sorry to hear about the additional complications to your health and you impending hospital stay. I, too, hope that you do not have to spend your birthday in the hospital. With reference to your constant pain and the fact that your doctor is out of town: Yes, I do think that you should make an appointment to see someone in the meantime. Especially since Tramadol is doing nothing for your pain and that is a pretty heavy-duty pain killer.
Do not beat yourself up about not mentioning your suspicions about Wilson's Disease. We all have had suspicions of one type or another, but we are so gun shy around doctors (as a result of being told too many times that it is all in our heads and that there was nothing physically wrong with us) and we don't want to be perceived as whiners or hypochondriacs. At least you have a diagnosis, your doctors are doing the appropriate tests and they are making arrangements for treatment (albeit - stuck in the hospital for a while). Make sure that you take your lap top with you (if there is internet access) so that we can continue to be there for you and continue to give you support and comfort!
Please, please, continue to take care of yourself. You are important to us and I will keep you in my prayers!

Peace and Blessings
Saysusie

IloveHistory
09-09-2007, 04:20 PM
Hi Saysusie!

No worries! :)

Thank you SO very, very much for all of your kind words, advice and support! I appreciate it SO much!

Unfortunately, I don't have a laptop! :cry: Just the family computer in the study...

I am going to attempt school today (Monday), especially as I have a very important English Oral to do. It's 01:14 a.m. here, but I am still up, due to pain! :( I've got my period - today (Monday) is day three and even though I'm on Yasmin and am taking Synflex for cramps, I have been in an unusual amount of pain during this period. I had to get up at 05:00 a.m. yesterday (Sunday) to run a hot bath and take some more Synflex because of the pain! This is unusual for me. Before the Yasmin, I used to collapse from the pain, but the Yasmin has been a lifesaver for me and I usually have very little period pain now that I'm on it, so I don't understand why I suddenly have such annoying pain this time? :? The Gynae. is pretty sure that I have Endometriosis; could that be causing this pain even though I am on the pill?

I am seeing my Urologist on Tuesday at 14:00 about my urinary incontinence (yes, my G.P. finally referred me, but even if he didn't, eventually I would have gone anyway). My G.P. said that they have to do certain tests. Do you know what type of tests they usually do? What I have looked up on the Internet sounds painful! Do you know if these tests are painful?

I am seeing my Dermatologist on Wednesday at 12:40 due to my hair continuously falling out in big clumps. :( Do you know what sort of tests the Dermatologist is likely to do for this sort of problem?

Thanks again, keep well and God bless! :)

magistramarla
09-09-2007, 05:30 PM
Hi ILoveHistory,
Yes, Endometriosis can still cause pain, even though you are taking the pill to try to control it. My daughter just went through surgery this summer for it. She's seeing a gynecologic endocrinologist.
As for the MRI, the small dark place and the noise doesn't really bother me.
As for that Botox thing, I have no idea. He says that it will only take 5 minutes and that I can drive myself home, so I'm hoping that it won't be too bad.
I think that the jury is still out about having SLE. I have a malar rash and chest pains and I definitely have bursitis, so I'm still wondering.
The ataxia seems to be mostly affecting my nerves. I have peripheral neuropathy in the feet and toes and unpredictable spasms, mostly in my legs, and mostly late at night. It seems to be starting in my hands, too, since I couldn't feel the tuning fork on my fingers. I have noticed that I've been dropping things a lot lately, and I often have a difficult time keeping hold of a pen when writing.
Arthritis, Alzheimer's, Parkinson's and other palsies have run in my mother's side of the family for a few generations. Her mother's family came from Scotland, and were the MacWilliams family. Grandma married a full-blooded Cherokee Indian, but this time, they can't blame the big Indian for it!!
Take good care of you, and I hope that you have a great birthday in spite of it all! Are you going to be 18? Are you a senior this year? I just celebrated my 50th on Sept. 3; my son will be 25 on Sept. 16 and my hubby will be 51 on Sept. 24. Have you noticed that September birthdays are approximately 9 months after the Christmas holidays?? LOL!
Keep in touch,
Marla

IloveHistory
09-09-2007, 06:09 PM
Hi Magistramarla!

Thanks for the information about the Endometriosis. :) I'm sorry to hear that your daughter had to have surgery and I sincerely hope that the surgery helps her.

I'm so sorry to hear about your nerve problems. :( I have Peripheral Neuropathy too and it's awful! :( Has your Neurologist given you any medication for it?

Do you have seizures too, if you don't mind me asking? If so, which types?

I drop things a lot too; I think mine is because the reflexes in my arms often disappear. :? Tonight, I dropped the cup of tea I was making my mom. :(

No, I'm going to be seventeen. I'm in Grade Eleven; I think that's 'Junior' in the U.S.A. HAPPY BELATED BIRTHDAY! :new-bday: :bday: :D

I definitely don't suffer from Claustrophobia, so the enclosed space in the M.R.I. Scanner really doesn't bother me, but the noise! :mad: When I went, they were SO strict about the scan! They made me strip completely and wear only a hospital gown (i.e. I wasn't even allowed to wear my panties! :shock:)! I feel very proud and patriotic because it was a South African who invented the M.R.I. Scanner! :D :lol: 8) The radiologists are such liars! :wink: They say: "This part will last five minutes", meanwhile, it's fifteen minutes! I had eight pictures done of my brain - 8 multiplied by 5 equals forty and I was in there for an hour and forty-five minutes! :roll:

Keep well and God bless! :)

magistramarla
09-09-2007, 06:43 PM
No seizures, just spasms - luck for me, I suppose. The only meds they have me on right now is a NSAID. I'll see if that changes after the testing is done!
The doc wants the MRI to be both brain & spine, so I may be in for a long one this time, too - Whoopee!
Marla

mnjodette
09-09-2007, 06:43 PM
Nice to have you back, Ilovehistory! I'm sorry to hear that the doctors keep uncovering more trouble for you. Hope the pending diagnosis will lead to some really successful treatments.

If you could do anything you wanted on your birthday, what would it be? (We can't always get what we wish for, but it doesn't hurt to imagine it anyway!)

Please keep us posted on all of your tests. We miss you when you're not around!

Jody

IloveHistory
09-10-2007, 01:34 PM
Hi!

Magistramarla: Is the N.S.A.I.D. helping you at all? Good luck with the M.R.I. Scan!

Mnjodette: Thank you SO much for your kind words and support! :) I've been missing all of you a lot too!

Well, you're going to think that I'm mad, but I'd love to be able to watch a neurosurgical procedure, especially Epilepsy surgery or surgery for a Subdural Haematoma! :lol:

I'm CRAZY about Neurosurgery and Neurology - you should see my walls! They're covered with really graphic pictures and my mom is totally freaked out by them! :lol:

However, I have to do a work-shadowing project for school and I really wanted to work-shadow the Paediatric Neurosurgeon at Red Cross Children's Hospital (the best paediatric hospital in Africa), but the hospital cannot take people under nineteen years of age! :( I was SO disappointed because the Paediatric Neurosurgeon really wanted to take me! :( My mom's best friend is friends with him and both my mom and her best friend used to work at Red Cross Children's Hospital, so they know a lot of the doctors there. :) However, my Paediatrician/Paediatric Cardiologist arranged for me to work-shadow one of his colleagues, who is a female Paediatrician and specialises in Asthma and Allergies! :) I am really excited! :) I go on Friday 28th September! :)

My Psychiatrist keeps insisting that I'd make a brilliant Psychiatrist :roll: and offered to send me to the local Psychiatric hospital to see what Psychiatry is like - still not so sure about that one! :lol:

Keep well and God bless! :)

mnjodette
09-10-2007, 07:59 PM
Ilovehistory, you can be whatever you'd like to be....I truly believe that about you! (I admit, though, that I might find it less than appealing to have posters of graphic surgeries in my house! :lol: )

Jody

IloveHistory
09-10-2007, 09:53 PM
Hi Mnjodette!

Thank you very much! :D :lol:

Keep well and God bless! :)

Oluwa
09-27-2007, 02:02 PM
Okay, now where did you go ILoveHistory?

Missing you,
Oluwa

Pretti in Pink
09-27-2007, 05:57 PM
I was wondering the same thing myself.

IloveHistory
09-28-2007, 02:49 PM
Hi Everyone!

I'm back! :wink:

I saw my Paediatrician/Paediatric Cardiologist on Tuesday and he was really happy with me! :) He prescribed some Iron tablets for me and examined my chest; he also looked at my Asthma chart and took my peakflow and told me that my Asthma had raged out of control (which I already knew myself), so he changed my preventor from Inflammide Novolizer to Symbicord Turbuhaler, which is working brilliantly! :)

I've started getting really severe Gastric Reflux, so I have to take Mucaine now. :( My father has VERY SEVERE G.E.R.D. (Gastroesophagal Reflux Disease) and I was wondering if anyone knows if G.E.R.D. is hereditary? I am SO angry with the nurse at the hospital because I was explaining my reflux symptoms to her (she takes the 'history') and telling her that the burning was SO severe that I couldn't even drink a glass of water. Now, of course, I've lost a lot of weight due to being so ill and not absorbing nutrients from my food due to Gastrointestinal problems. So, the nurse says: "Well, that's a very convenient way not to have to eat anything!" :mad: :mad: :mad: EXCUSE ME?! :mad: I've been really sick, but because I'm "thin", she immediately assumes that I'm anorexic/bulimic, which I can assure you, I'm not! Never mind bothering to ask me if I've lost a lot of weight due to illness! :mad: I could strangle these stupid people! :mad:

I did my work experience today and it went brilliantly! :D

Keep well and God bless! :)

magistramarla
09-28-2007, 06:17 PM
Hey ILove History,
It is so good to see that you are back. Did you have all of those tests done that you were going to get? Did everything turn out ok?
My MRI turned out to be ok. We're still waiting for the results of the genetic testing to prove/disprove spinocerebellar ataxia. I still think that I do have some form of Lupus, since I'm dealing with a few of the symptoms, especially since I have such a noticable malar rash.
I hope that you are feeling much better.
Marla

Saysusie
09-29-2007, 02:27 PM
Hi ILoveHistory :lol:
The research is still continuing on the genetic implications of GERD. In fact, it is believed that half the chance of developing acid reflux disease (GERD) may be due to our genes, and not just our diet. GERD is one of the most common digestive disorders, with about one in five people suffering from the characteristic heartburn and/or regurgitation of acid into the esophagus or the mouth every week. Researchers studied family members and twins who had the same type and frequency of gastrointestinal symptoms and took into account the potential risk factors for acid reflux. The risk factors included smoking, excess alcohol, being overweight, and certain drugs, including some heart drugs, oral contraceptives, and drugs for anxiety.
On the basis of the study, and taking into account the risk factors, the researchers found that 43% of family member's chance of developing acid reflux was attributable to genes. Other research seems to back up their findings, with previous studies recording several family members with GERD or even esophageal cancer. An inherited risk exists in many cases of GERD, possibly because of inherited muscular or structural problems in the stomach or esophagus.
I hope that I've answered your question.
I am happy to see you back, to hear that your doctors are pleased with your progress and to hear you sounding upbeat again. That truly pleases me :lol:
Don't give that nurse a second thought! Some people are so narrow-minded, jealous and ignorant that they do not deserve the time that we give them to be angry! Her statement said volumes about her!

Peace and Blessings
Saysusie

magistramarla
10-10-2007, 06:32 PM
Hey Saysusie,
It's been a couple of weeks since we've seen ILoveHistory on this forum. Have you heard anything from her?
Marla

mnjodette
10-10-2007, 06:39 PM
My thoughts exactly, Marla....I've been thinking about Ilovehistory, too. Hope she's OK.

Jody

IloveHistory
10-11-2007, 04:03 PM
Hi Everyone!

I'm back! :D

Well, I was in Hospital last week for a pretty bad case of Dysentery (yes, again! This is the fifth time! :roll:) and had to be put on a drip. :( The drip was attached to this annoying machine, which went "whir, tick" every three seconds! :x The point of the machine was to make sure that the drip was sending exactly 100ml/h into my vein. Does anyone actually know what this machine is called?

Then, my kidneys failed (for the second time) due to the dehydration. :( Now, I am having serious urinary problems and have to go and see my Urologist and my Gynaecologist (have been having Gynae. problems for a long time; some of them have now gotten worse). I am struggling to get the urine out; when it actually starts to drip out, it suddenly stops and then I have to spend five minutes straining and pushing to start the flow again! :mad: Also, I'm having terrible abdominal and flank pain, which is driving me up the wall! :mad:

I'm currently taking Be-Metrazole (it's pretty much the same as Flagyl) for the Dysentery, Reuteri (probiotic) and Buscopan Co for the abdominal cramps. I've also been prescribed Altosec for G.E.R.D.

I first ended up at the Gynae. in January because I used to faint from the worst menstrual cramps you could ever imagine and I used to bleed for fourteen days at a time and then my period would always come two weeks late and was very unpredictable. So, I had a Pelvic Ultrasound (which showed massive bunches of follicles left behind in the ovaries) and some blood tests (which showed some pretty bad endocrine problems). So, I was put on Yasmin (contraceptive pill), which has been BRILLIANT for the pain and in correcting my cycle. However, I had very bad vaginal discharge, which the Gynae. attributed to my endocrine problems. She said that it would go away after approximately four months of taking the pill. It is now eight months and the discharge is even worse! I'm starting to get bad pains with my period again, as well. I am due to see the Gyane. now, anyway, but she can only see me on 25th October. The Gynae. suspected that I had Endometriosis, which I know could be causing my bladder problems now, so I think she's going to have to do a Laparoscopy to check. The Gynae. problems are concerning because there is a history of both Uterine Cancer and Ovarian Cancer in my family... :(

I am just SO sick and tired of being sick and tired! :( I am missing SO much school and am particularly worried about Mathematics (although I am having extra lessons twice a week to catch up) and Physical Sciences. :( I want to be a Paediatric Neurosurgeon, so my health seriously needs to improve soon! That's my dream and I really don't want illness to take it away from me! :cry:

Keep well and God bless! :)

magistramarla
10-11-2007, 07:24 PM
Welcome back young lady!
We were worried about you! As I've said before, your gyne problems sound much like what my daughters are going through. Meg had surgery for the endometriosis this summer. Hillary has polycystic ovarian syndrome. They are both seeing a gynecologic endocrinologist. I'm thinking that Kayla needs to see him too, since she has some of the same symptoms as her sisters. My oldest daughter, Heather, seems to be the only one who has escaped these annoying problems. Hang in there and be sure to get it all treated.
Take care of yourself, get well from that hospitalization, and join us here again!
It's good to hear from you,
Marla

hatlady
10-12-2007, 06:12 AM
What a time you're having ILoveHistory!

I hope things settle down now and that you're able to get back on course. Did you try out that Psychiatric Hospital visit? It is the exact opposite of the surgical route - all people and meds focused rather than the opening them up and seeing what's inside! (Hmmm....not sure that EITHER would appeal to me!)

Many hugs -

Saysusie
10-12-2007, 11:51 AM
Hi ILoveHistory;
we are so happy that you are back. I'm sorry that you are having such a difficult time again. As you can see, you are sorely missed when you are away. I do hope that you are able to get some relief....I know it's hard with one thing after another. Remember, we are always here for you!

Peace and Blessings
Saysusie

IloveHistory
10-25-2007, 02:20 AM
Hi Magistramarla, Hatlady and Saysusie!

How are you doing?

PLEASE forgive me for only getting back to you now! :(

Well, I have been SO sick! :( I now have this massive fungal tongue infection (yes, seriously! I mean, how ridiculous! :lol:) because my body is so deficient in the Vitamin Bs. I am having serious malabsorption problems, so my Psychiatrist said that after my Exams, he is going to get a Surgeon/Gastroenterologist friend of his to come and take a look at me and check out my small bowel and the G.E.R.D., etc. My Psychiatrist is going to put me in Hospital for two weeks after the Exams to have all of this done and to get a Specialist Physician of his choice to come and find out exactly what is wrong and do something about it! At last, some action is actually being taken! :)

Anyway, I am going to see the Gynae. at 15:30 this afternoon (Thursday) and then my Psychiatrist at 17:00, so I'll let you know how both appointments go as soon as I get back!

My Psychiatrist took some bloods the other day - TSH, Free T4, Free T3 and Thyroid Antibodies, which all came out fine :), so that's fantastic because there is serious Autoimmune Thyroid Disease in my family.

Will check back later today! :)

Keep well and God bless! :)

Saysusie
10-25-2007, 08:45 AM
Well, your post was filled with mixed news: good news in that someone is finally taking serious steps to help you and bad news in that you've been so sick.
Please keep us posted and let us know how your appointments went, what your prognosis is and what treatments will be started. We are here for you!

Peace and Blessings
Saysusie

IloveHistory
10-25-2007, 03:43 PM
Hi!

Thanks, Saysusie! :)

Both appointments went very well! :) The Gynae. is very happy with me and has agreed to keep me on the Yasmin. She took a vaginal swab of the discharge, so I'll let you know what the results are when I hear.

I don't know if I mentioned this earlier - forgive me if I am repeating myself - but I saw my Urologist about a month and a half ago about the urinary incontinence and he prescribed something called 'Vesicare' for me, which is working wonderfully! :) He wants me to try it for three months and see if it clears up when I cease taking the meds. If not, then he would like me to come back.

Saysusie: I'm not getting e-mail notifications that someone has replied to my responses anymore. :? I was just wondering if something had gone wrong? If, however, you have stopped the practice for whatever reason, then I totally understand and respect your judgement. :)

Keep well and God bless! :)

Saysusie
10-25-2007, 08:55 PM
HMMMM???? No, I have not stopped the practice. I am still getting my e-mail notifications. I do not have a clue what could be wrong. I will ask Conrad to see if he has any ideas :(
Sorry, I am still new at this Administrator gig

Peace and Blessings
Saysusie

IloveHistory
10-26-2007, 03:07 PM
Thanks SO much, Saysusie! :)

Gisèle
10-29-2007, 09:10 PM
I'm sorry you've been sick, Ilovehistory. :( But it does sound like you have an alert and caring medical team to help you. I am your age (17), and I can barely handle the what little I am going through, and I've read all the things you have and all of what you are going through, and it is very inspirational! I know you can become anything you want, like a pediatric neurosurgeon, from what I have read, you have the drive and determination for anything!! I haven't been in school for a couple months, but my school put me on a home-bound schooling program where my teachers will come to my house to teach me and give me homework and tests so that I don't get behind. If you aren't in something like that, perhaps see if your school has a program like that? I don't know what I would do without it, it helps a lot. I want to become a medical doctor, too, and missing school has worried me that I won't be able to, but there is nothing that can stop me, or you, from accomphishing our goals. Stay strong and I hope you are feeling well! :)

IloveHistory
10-30-2007, 09:58 AM
Hi!

Gisele:

Thank you SO much for all your kind words and support! :)

I am delighted to hear that you are the same age as me and that you also want to become a medical doctor! :D I'm sure that you'll make an excellent doctor! :D

Everyone: The vaginal swab came back clear, so that's great! :)

However, I am SICK AND TIRED of painful mouth infections! :x Now, I have Herpangina and Oral Thrush (most likely due to the heavy antibiotics that I was recently on) at the same time! :mad: Has anyone else here had Herpangina? It's a virus, so, basically, there's nothing that they can do about it! :x However, I do have meds for the Oral Thrush, which are definitely working, so that's good!

I am having problems with the Neuropathy, though. :( My feet are driving me CRAZY with the burning! It feels as if someone keeps sticking pins into my feet! :( :x Does anyone know what I can do about this?

Keep well and God bless! :)

IloveHistory
11-03-2007, 11:12 AM
Hi Everyone!

I actually don't believe this: I have Dysentery again! :shock: :mad: It started yesterday and it's really, really bad! :( My stomach is cramping terribly! :( I actually don't know how much more of this I can actually take! I just had a Vitamin B12 injection on Thursday evening and now, I've probably lost all of it through this incessantly bad Dysentery! :mad:

I honestly don't know if I can wait four weeks to have my bowels checked out, but I have to because I am writing very important Exams for the next three weeks! I am SO weak and drained and I absorb so little from my food, that I actually don't know how I'm going to make it for so long! This constant malabsorption with the Dysentery means more fatigue, more fasciculations, more seizures, more migraines, more hypoglycaemic episodes, more fainting, more heart rhythm disturbances, etc., etc. :(

Please forgive me for complaining so much and I know that I sound so selfish, just complaining about all my problems, when I know that many of you are much worse off than me. I really am sorry, but I just need to vent...

Keep well and God bless!

Saysusie
11-04-2007, 01:49 PM
You never have to apologize for sharing with us. I am so sorry that you are suffering with Dysentery again :cry: . You really should try to get some oral rehydration asap. This is usually a solution (water mixed with salt and carbohydrates) to prevent dehydration. Can you at least make a trip to the emergency room, a walk-in-clinic or to urgent care so that you can get rehydrated? I don't think that you should let this go for 4 weeks, you could become gravely ill in that period of time.
Please do take care of this and let us know how you are doing. I am keeping you in my prayers!

Peace and Blessings
Saysusie

Gisèle
11-05-2007, 10:57 AM
:( I am so sorry you aren't feeling well, Ilovehistory. That sounds terrible. I would take Saysusie's advice about getting it taken care of sooner to prevent any further problems. Stay strong and hang in there!! I will pray for you!

IloveHistory
11-05-2007, 03:36 PM
Hi Saysusie and Gisele!

Thank you SO very much for your kind words, advice and support! It is sincerely appreciated!

My mother is giving me 'Rehidrat', which is an oral electrolyte solution, although how much I'm actually absorbing from it, I simply don't know!

Well, I managed to get through my two Examinations today (Monday) - English Creative Writing, which went very well and Mathematics Paper One, which did not go so well... Anyway, at least I went and wrote them! Tomorrow, I write English Literature. I was in SO much abdominal pain today, that I actually thought I would collapse during my first Exam! :( Then, in the middle of my second Exam, my period started, with a gigantic blood clot popping out! :x I am even struggling to urinate because I get such sharp, severe abdominal pain when I try to push the urine out! :(

Also, I've been having this problem every night without fail for about a week. At around midnight, I get really severe pain in the right upper quadrant of my abdomen; the pain is worse when I eat fatty/fried foods. Does anyone know what this could be?

This is a pretty embarrassing problem, so please forgive me if I gross you out! I am having such extremely noxious gas passing out from my anus; it smells like Iron Sulphide and my mother is worried about it because it's SO bad! Now, the same smell is passing through my mouth whenever I burp, although the smell is not as strong (but bad enough)! :(

Also, I've been having a creamy discharge passing out of my anus for the past few days? :?

I just don't know what's going on! My entire abdomen is SO messed up! I don't know how much longer I can take all of this, especially the pain! :(

I hope that you are all well!

Keep well and God bless! :)

Saysusie
11-05-2007, 07:06 PM
The discharge sounds a bit like mucous from the problems you've been having with your digestive system. Hopefully it is not an infection. It is something that you should probably mention to your doctor.

To understand why flatulence occurs, one must look at the human body like it's a small factory. The gastrointestinal tract works as a unit. Once food reaches the stomach, all nutrients are broken down into smaller components (amino acids, fatty acids and glucose) before being absorbed in the small intestine. When food does not get absorbed into the intestinal wall, it cannot enter the bloodstream. Indigestible food and liquids are sent down the track where they reach the large colon (bowel) as waste for liquid reabsorption. It is there, in the large intestine, that the gases are formed.
Different bacteria in the bowel have a symbiotic relationship with the body (in some cases, they actually do more good than harm). The large colon contains a variety of digestive enzymes that feed off of unabsorbed nutrients. In the case of flatulence, foreign enzymes know as "gas enzymes" consume undigested nutrients by breaking their chemical bonds.
This process produces gases and the "end" result is, well we all know what the end result is. Enzymes burn food on a molecular level so passing gas is like exhaust fumes, and like all efficient factories, once an agent has been broken down, it produces gas.
Fermented food produces different types of fumes, some of which smell. Flatulence contains odorless gases, such as nitrogen, carbon dioxide, oxygen, and methane, but it also contains the "oh-so-nasty" hydrogen sulfide, which causes the smell.
How much odor is produced also depends on the types of food you eat and often on the types of medications you are taking. Vegetarians might fart as often as meat-eaters, but their "serenades" do not smell as much because vegetables produce less hydrogen sulfide. The more sulfur rich the foods you eat, the more your gas passing will have a foul odor because bacteria will generate sulfides and mercaptans as they break down the nutrients. Smelly gas is typically hydrogen sulphide which is produced by bacterial fermentation in the colon. This would be the sulfur smell of rotten eggs.
Flatulence occurs when a food does not break down completely in the stomach and small intestine. As a result the food makes it to the large intestine in an undigested state.
Unfortunately, healthy foods such as fruits, vegetables, oatmeal and legumes (beans and peas) are often the worst offenders. That's because these foods are high in soluble fiber. Soluble fiber dissolves in water forming a gelatinous substance in the bowel. Fiber has many health benefits, including keeping your digestive tract in good working order, regulating blood sugar and cholesterol levels, and helping prevent heart attacks and other heart problems. But it can also lead to the formation of gas. In the colon the bacteria thrive on the undigestible fiber. These bacteria are harmless but for those who have an intestinal gas or flatus problem, it is probably best to avoid or carefully test soluble fibers to see if they are contributing to intestinal gas.
On the other hand, insoluble fiber as found in wheat, rye, bran, and other grains does not dissolve in water. It is not used by intestinal colon bacteria as a food source, so these bacteria generally do not produce intestinal gas. Both soluble and insoluble fiber should be eaten on a daily basis.
By contrast, fats and proteins cause little gas. They are absorbed in the digestive tract before they get to the colon.
Sugars are known to create gas. Fructose is naturally present in onions, artichokes, pears, and wheat. It is also used as a sweetener in some soft drinks and fruit drinks. Sorbitol is a sugar found naturally in fruits, including apples, pears, peaches, and prunes. It is also used as an artificial sweetener in many dietetic foods and sugarfree candies and gums.
Foods that may cause gas include: Most beans, especially dried beans and peas, baked beans, soy beans, lima beans, vegetables, such as Cabbage; radishes; onions; broccoli; Brussels sprouts; cauliflower; cucumbers; sauerkraut; kohlrabi; asparagus, potatoes Fruits such as Prunes; apricots; apples; raisins; bananas. Carbonated beverages-
Soft drinks, fruit drinks, milk and milk products, such as cheese and ice cream. Packaged foods prepared with lactose, such as bread, cereal, and salad dressing. Foods containing sorbitol, such as dietetic foods and sugarfree candies and gums
Here are just some medical conditions that can cause smelly flatulence: Colitis (also ulcerative colitis ), Celiacs Disease, Crohn's Disease, Diabetes, IBS (Irritable Bowel Syndrome), IBD, AIDS / HIV (and related conditions), Malabsorptive Syndromes, Lactose Intolerance, Digestive disorders, Spastic colon, Menstrual periods, Vaginal flatulence.

Hope this helps you a bit!
Peace and Blessings
Saysusie

IloveHistory
11-06-2007, 03:05 PM
Hi Saysusie!

Thank you SO much for all of that fantastically useful information! :) I really do appreciate it! :)

My English Literature Exam went really well this morning, so I'm delighted with that! :D I write French Paper One tomorrow afternoon.

Keep well and God bless! :)