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icegurl121691
08-26-2007, 05:50 AM
-=-=-=- YOU-=-=-=-
1. Name:
2. Age/D.O.B:
3. Boyfriend/Girlfriend's Name:
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour:
5.Your favorite meal to cook:
6.Your favorite meal to eat out:
7.Your Favorite drink:
8.Your favourite movie:
9.Your favorite song:
10.Your favorite Actor/Actress:

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed?
12. What are you taking now?
13. Does it help?
14. What have you taken?
15. Do you want kids?
16. Does anyone else in your family have LUPUS?

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters?
18. Neices or nephews?
19. What state do you live in?
20. Where would you live if you had the chance?
21. What is your lucky number?
22. Are you in school?
23. What kind? ( High School, college, etc.)

24. Anything else that you want to tell us!!

icegurl121691
08-26-2007, 05:56 AM
-=-=-=- YOU-=-=-=-
1. Name: CARLY
2. Age/D.O.B: 15
3. Boyfriend/Girlfriend's Name: N/A
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: RED,PURPLE
5.Your favorite meal to cook: PASTA
6.Your favorite meal to eat out: CESAR SALAD
7.Your Favorite drink: PINA COLADA
8.Your favourite movie: 2 MANY
9.Your favorite song: WAY 2 MANY
10.Your favorite Actor/Actress: HUGH LAURIE I LUV HIM!

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 15
12. What are you taking now? NOTHING YET
13. Does it help?
14. What have you taken?
15. Do you want kids? YES
16. Does anyone else in your family have LUPUS? NOPE

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 BROTHER
18. Neices or nephews? NO
19. What state do you live in? NEWYORK
20. Where would you live if you had the chance? FLORIDA
21. What is your lucky number? 3
22. Are you in school? YES
23. What kind? ( High School, college, etc.) HIGH SCHOOL

24. Anything else that you want to tell us!! I HOPE EVERYONE LOVES THIS NEW TEEN FORUM!

applesauce
08-28-2007, 10:36 PM
-=-=-=- YOU-=-=-=-
1. Name: Hannah
2. Age/D.O.B: 17, March 12 1990
3. Boyfriend/Girlfriend's Name: Ah I wish....
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Lime green
5.Your favorite meal to cook: Frozen Pizza?
6.Your favorite meal to eat out: Mm...Noodles Etc :D
7.Your Favorite drink: Strawberry milkshakes. Or vitamin water
8.Your favourite movie: Fellowship of the Ring!
9.Your favorite song: At the MOMENT "Wraith Pinned to the Mist and Other Games"
10.Your favorite Actor/Actress: I like Hugh Laurie as well. Viggo Mortenson is lovely eye candy though.

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 9
12. What are you taking now? Rituxan "as needed"
13. Does it help? Saved my life
14. What have you taken? Prednisone, Cellcept, Enbrel, Cytoxan, Methotrexate, Imuran, I'm sure there is more but I can't remember.
15. Do you want kids? Yes
16. Does anyone else in your family have LUPUS? Eh, like my second cousin once removed who no one likes to talk to cuz she's annoying.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 Brother
18. Neices or nephews? Nope
19. What state do you live in? Illinois
20. Where would you live if you had the chance? New York
21. What is your lucky number? 97
22. Are you in school? Yep
23. What kind? ( High School, college, etc.) Going into my senior year of highschool on September 10th

24. Anything else that you want to tell us!! I'm a budding psychologist, dressage rider, and have a rather violent cat, who is sitting on my arm.

Bubba89
09-10-2007, 06:05 PM
-----You-------
1. Name: Ericca
2. Age/D.O.B: 18 yrs old, June 16 1989
3. Boyfriend's Name: Not at the moment

-------Favorites-----------
4. Favorite Color: royal blue
5. Favorite Meal to Cook: Spaghetti
6. Favorite Meal to Eat Out: Chicken Fingers
7. Favorite Drink: Cherry Pepsi
8. Favorite Movie: Dirty Dancing
9. Favorite Song: Too Many
10. Favorite Actor/Actress: Matthew Perry. Love Friends and he is so funny.

--------Lupus Related----------
11. Age When Diagnosed: 12yrs old
12. What are you taking now? Cellcept, Prednisone, Plaquenil, Enalapril
13. Does it help? Believe so. Slowly but surely.
14. What have you taken? Epogen shots (most likely spelled wrong. Its been awhile), Iron (for anemia), and Cytoxan(for 2 and half years)
15. Do you want kids? Yes
16. Does anyone else in your family have Lupus? No

---------Random---------
17. Any brothers or sisters? 1 Older Sister
18. Nieces or Nephews? No but I do have a 3 yr old cousin
19. What state do you live in? Ohio
20. Where would you live if you had the chance? Hawaii
21. What is your lucky number? 8
22. Are you in school? yes
23. What kind? Freshman at University of Toledo. In pharmacy program.
24. Anything else you want to tell us? I love playing sports (tennis, basketball, volleyball, etc.) and I love cats and dogs!

[/list]

Saysusie
09-11-2007, 09:05 AM
Welcome Erica and Hanna :lol:
Thank you for participating in the Teen Forum. I hope that you are able to meet with and share with many others in your age group here. Remember, you are also most welcome to participate in all of the forums here. Everyone is here to help you as much as we can, to give you support and to make sure that you know that you are not alone!

Peace and Blessings
Saysusie

icegurl121691
09-29-2007, 05:46 AM
welcome everyone http://i231.photobucket.com/albums/ee81/icegurl121691/welcome2-1.gif

Amber13
10-02-2007, 06:04 PM
-=-=-=- YOU-=-=-=-
1. Name: Amber
2. Age/D.O.B: 17 Aug 2, 1990
3. Boyfriend/Girlfriend's Name: Eric

-=-=-=- Favorites! -=-=-=-=-
4.Your favorite color: Pink
5.Your favorite meal to cook: anything new
6.Your favorite meal to eat out: Sushi
7.Your Favorite drink: Iced Tea
8.Your favorite movie: The Prestige
9.Your favorite song: "into the ocean' blue october
10.Your favorite Actor/Actress: Eva Longoria (shes sooo pretty!)

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 7 years old
12. What are you taking now? plaquenil
13. Does it help? not anymore =/
14. What have you taken? oh gosh... methotrexate, prednisone, neurontin, and soo many more.
15. Do you want kids? yes!!!!
16. Does anyone else in your family have LUPUS? my sister and mom

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? just a twin sister
18. Neices or nephews? nope
19. What state do you live in? California
20. Where would you live if you had the chance? im liking it here at the moment =)
21. What is your lucky number? 13
22. Are you in school? yes
23. What kind? ( High School, college, etc.) High School, senior year!!!

24. Anything else that you want to tell us!!
soo much i want to say! after seeing what my mom has gone through i am less than thrilled to have the same disease. she has been in the hospital for months at a time since i was 9. so many medications and complications. Ive had several flares in the past four years. Ive never been hospitalized (thank god) and i hope it never gets to that point. My boyfriend is my biggest support. Its amazing how much he cares about my health. If anyone ever needs to talk, im here for you.

Saysusie
10-02-2007, 08:43 PM
Welcome Amber;
I know what you mean about having to witness a loved-one suffer with this disease. We are here for you and we want you to know that you are not alone!

I wish you much Peace and many Blessings :lol:
Saysusie

Rayhanah
12-26-2007, 06:05 AM
-=-=-=- YOU-=-=-=-
1. Name: Rayhanah
2. Age/D.O.B: 11th June 1992
3. Boyfriend/Girlfriend's Name: How I wished I had one!
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Green
5.Your favorite meal to cook: I don't know how to... hehe
6.Your favorite meal to eat out: Anything nice
7.Your Favorite drink: Mineral Water
8.Your favourite movie: Great movies!
9.Your favorite song: Great songs!
10.Your favorite Actor/Actress: Daniel Redcliff, Jeremy Sumpter

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 13
12. What are you taking now? Steroids and Mychophenolate Mofetil (mmf)
13. Does it help? Better be! Haha
14. What have you taken? Steroids, plaquenil and mmf
15. Do you want kids? Yes!
16. Does anyone else in your family have LUPUS? No

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? No.
18. Neices or nephews? Yes
19. What state do you live in? Singapore
20. Where would you live if you had the chance? Japan, Australia or Britain.
21. What is your lucky number? 11
22. Are you in school? Yes
23. What kind? ( High School, college, etc.) Secondary School.

24. Anything else that you want to tell us!!

Hey! How come there are not much teenagers out there?? Hmf! Anyway, I just want to say hello to everyone and have a good day!

Saysusie
12-28-2007, 03:37 PM
They are here, but they do not pop in on this particular forum very often. In any case, please know that you are not alone and that EVERYONE here is here for you...to help you in any way that we can! :lol:

Peace and Blessings
Saysusie

biancavizz
01-02-2008, 01:37 PM
-=-=-=- YOU-=-=-=-
1. Name: Bianca Vizzaccaro
2. Age/D.O.B: 19
3. Boyfriend/Girlfriend's Name: Blake
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: red
5.Your favorite meal to cook: broccoli and cheese rice and mashed potatoes lol
6.Your favorite meal to eat out: red lobster
7.Your Favorite drink: Windex (it's a drink, not the cleaner)
8.Your favourite movie: Notebook.
9.Your favorite song: Appologize
10.Your favorite Actor/Actress: James Lafferty.

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 15
12. What are you taking now? fricken NOTHING!!! i've been on every NSAID there is and my doctor doesn't think it's a good idea to put me on prednisone or plaquenil.. since she doesn't know much about Lupus to begin with and it takes years to get back in to see the specialist *rolls eyes* at Canada's ehalth system.
13. Does it help? .. i literally want to take an axe and cut my legs off just above the knee cap right now......
14. What have you taken? lol. a lot. such as.. naproxen, celebrex, diclofenac, tylenol 3's, 4's, endocet, demerol, taradol, trazadone, amitryptaline, and the list goes on but im in another country and dont have a list.
15. Do you want kids? in the distant future.
16. Does anyone else in your family have LUPUS? No.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? olderbrother, younger sister.
18. Neices or nephews? none.
19. What state do you live in? Canada.
20. Where would you live if you had the chance? in NC with my fiance.
21. What is your lucky number? 41
22. Are you in school? yea, wayne state university.
23. What kind? ( High School, college, etc.) university..

24. Anything else that you want to tell us!!

I hate having Lupus and there not being a cure. But i'm sure everyone here agrees with me. And i'm finding it harder and harder to not lash out people.. i wish i had someone that understood what i was going through around where i live.

whisper91
01-02-2008, 08:18 PM
1. Name: ivette :oops:
2. Age/D.O.B: 16 born on October 10, 1991
3. Boyfriend/Girlfriend's Name: i wish i had a bf!! :wink:
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: blue red green pink and purple :D
5.Your favorite meal to cook: lasagna
6.Your favorite meal to eat out: chinese food
7.Your Favorite drink: lemon tea
8.Your favourite movie: dont know
9.Your favorite song: tattoo by Jordin Sparks
10.Your favorite Actor/Actress: dont know

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 12
12. What are you taking now? plaquenil and prednisone
13. Does it help? somewhat
14. What have you taken? plaquenil and prednisone
15. Do you want kids? of course. i want 3 or 4
16. Does anyone else in your family have LUPUS? yes my older sister

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 brother 3 sisters
18. Neices or nephews? 1 niece, 4 nephews and another on the way
19. What state do you live in? florida
20. Where would you live if you had the chance? texas
21. What is your lucky number? 10
22. Are you in school? yes
23. What kind? ( High School, college, etc.) sophomore in high school

24. Anything else that you want to tell us!! nope

Saysusie
01-03-2008, 12:48 PM
Hello and welcome Ivette & Bianca:lol:
I am glad that you joined us and I hope that you meet some teens here who can become very helpful to you. Also, every member of this site is here to help you in any way that we can!

Again, Welcome

Saysusie

Samoho
01-04-2008, 07:31 AM
-=-=-=- YOU-=-=-=-
1. Name:
Natashya Jackson

2. Age/D.O.B:
20- August 9, 1987

3. Boyfriend/Girlfriend's Name:
Single lol....not worried about a boyfriednd now

-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour:
Turqoise

5.Your favorite meal to cook:
Fried chicken, potato salad, green beans, and biscuits :)

6.Your favorite meal to eat out:
Spicy chicken enchiladas, beans, rice, and a taco

7.Your Favorite drink:
Mountain Dew Code Red

8.Your favourite movie:
Too many to even mention, it changes as new ones come out.

9.Your favorite song:
Same as the movies, they change, but I love some old R&B

10.Your favorite Actor/Actress:
Dwayne Johnson...lol...only because he's Samoan and I love supportin my Samoans lol

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed?
19

12. What are you taking now?
Cellcept, prednisone, lipitor, synthroid, Caclium/ Vitamin D, lopressor, nexium

13. Does it help?
I'm better off than when I was first diagnosed, but it has been a wild rollercoaster ride this past year dealing with the medicines and changing meds and in and out of the hospital.

14. What have you taken?
Cytoxan, epogen shots, lovanox shots, other bloodthinners, solumedrol, lasix

15. Do you want kids?
Definitely, we have a two child minimum set in my family lol. So I at least want two. :)

16. Does anyone else in your family have LUPUS?
No...just me so far :)

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters?
3 brothers and 1 sister, I am the second oldest.

18. Neices or nephews?
1 neice!!! *big smile*

19. What state do you live in?
Virginia

20. Where would you live if you had the chance?
Wherever God puts me :)

21. What is your lucky number?
I don't really have one, but for some reason I like the number 14

22. Are you in school?
Yes

23. What kind? ( High School, college, etc.)
College

24. Anything else that you want to tell us!!
If you wanna know anything else about me just ask. I'm just trying to reach out to people who are or might be going through some of the same things I am. It's hard talking to the people around you when they really don't understand what you're going through. :)[/b]

Saysusie
01-04-2008, 12:09 PM
Hello and Welcome Samoho

I am glad that you joined us. You will find that we are a family here and we welcome new members with love, support, understanding, and comfort. I know you will find the people here to be the kindest and most informative people anywhere!
I am glad you are here!

Peace and Blessings
Saysusue

livingINmyDayDreams
01-25-2008, 04:41 AM
-=-=-=- YOU-=-=-=-
1. Name: Julie
2. Age/D.O.B: 15/ August 11, 1992
3. Boyfriend/Girlfriend's Name: none, sadly
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Light purple, like lilac
5.Your favorite meal to cook: pasta
6.Your favorite meal to eat out: not sure
7.Your Favorite drink: Grape soda
8.Your favourite movie: too many
9.Your favorite song: ha ha ha what ever I seem to like in the week, I love music, so too many songs.
10.Your favorite Actor/Actress: none

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 13
12. What are you taking now? Cellcept and Hydroxychloroquine otherwise known as Plaquenil
13. Does it help? Yes
14. What have you taken? Cytoxon, Pregnizone (not sure how to spell it)
15. Do you want kids? Yes, I love kids
16. Does anyone else in your family have LUPUS? I think some cusion. Like a third cusion, if there is such a thing. I've never met them so it doesn't matter.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 of each :?
18. Neices or nephews? Nope
19. What state do you live in? Pennsyvania
20. Where would you live if you had the chance? Anywhere in the country
21. What is your lucky number? 4
22. Are you in school? Yes
23. What kind? ( High School, college, etc.) High School, sophmore (Still can't spell)

24. Anything else that you want to tell us!! If you haven't noticed, I can't spell. I really want to talk to teens around my own age with lupus, I think it would be cool. So yeah...if you want to talk go ahead, I'd be pleased to talk to you.

Saysusie
01-25-2008, 11:21 AM
Welcome to this forum and to our family. Hopefully, some of our teens will pop in and chat with you. In the meantime, please feel free to join us in the other forums here. :lol:

Peace and Blessings
Saysusie

ayshi123
02-18-2008, 11:13 AM
1. Name: Ayasha
2. Age/D.O.B: 19 yrs old- 1/11/90
3. Boyfriend/Girlfriend's Name: lol
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: blue
5.Your favorite meal to cook: pasta with chicken and spaghetti sauce
6.Your favorite meal to eat out: taco bell
7.Your Favorite drink: coke
8.Your favourite movie: titanic
9.Your favorite song: too many
10.Your favorite Actor/Actress: jessica alba

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 8th grade
12. What are you taking now? plaquenil/aspirin/vicadin/lortab
13. Does it help? the vicadin and lortab helps
14. What have you taken? prednisone pills/dexamethasone shots/plaquenil/aspirin/vasotec/prilosec nd more but i forgot
15. Do you want kids? omg yes ...luv kids.. but i hear with lupus theres some doubt :""(
16. Does anyone else in your family have LUPUS? nope jus me

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 brother 3 sisters (2 are married)
18. Neices or nephews? yes 2 nephews and a niece on the way
19. What state do you live in? Michigan
20. Where would you live if you had the chance? New York :)
21. What is your lucky number? "3"
22. Are you in school? yes
23. What kind? High school (12th grade)( High School, college, etc.)

24. Anything else that you want to tell us!!
Im so happy that i joined this forum. its good to know that im not the only one.... :wink:

Saysusie
02-18-2008, 01:36 PM
Hi Ayasha :lol:
Welcome to our family. I've read your posts in other forums and I am so happy that you've joined us.
Hopefully, some of our teen members will be here soon to chat with you! Until then, continue to join us in the other forums here, someone will always be available to respond to you!

Peace and Blessings
Saysusie

seekthejoy
02-20-2008, 04:39 PM
=-=-=- YOU-=-=-=-
1. Name: Lizzie
2. Age/D.O.B: Oct. 1989
3. Boyfriend/Girlfriend's Name: none. i'm single and happy
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: blue
5.Your favorite meal to cook: pasta or pizza
6.Your favorite meal to eat out: thai food
7.Your Favorite drink: diet coke
8.Your favourite movie: a love song for bobby long or juno
9.Your favorite song: anything my friend emily sings
10.Your favorite Actor/Actress: scarlett johanson (sp?)

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 18
12. What are you taking now? prednisone
13. Does it help? hard to tell. its my first day on it
14. What have you taken? so far just things for pain (ie hydrocodone)
15. Do you want kids? definitely
16. Does anyone else in your family have LUPUS? no, i'm the first

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 little sister and 1 brother
18. Neices or nephews? no. i'm the oldest
19. What state do you live in? NC
20. Where would you live if you had the chance? where i am. i love the mountains but i want to go to new zealand
21. What is your lucky number? i don't have one
22. Are you in school? yes
23. What kind? ( High School, college, etc.) high school, but college in the fall

24. Anything else that you want to tell us!!
have any of you other teenagers heard of minocyclin induced lupus??? supposedly its the most common form of drug-induced lupus in teenage girls and in the UK they won't prescribe it to people without running multiple tests first. we're trying to figure out if i have drug-induced lupus that will go away in around 2 years or the real deal. let me know if you have any information on this!

Gisèle
03-23-2008, 07:39 PM
-=-=-=- YOU-=-=-=-
1. Name: Gisèle
2. Age/D.O.B: 17
3. Boyfriend/Girlfriend's Name: none
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Lilac
5.Your favorite meal to cook: hmm..probably pasta with salad
6.Your favorite meal to eat out: pasta and salad
7.Your Favorite drink: water
8.Your favourite movie: too many to mention
9.Your favorite song: it changes so much!
10.Your favorite Actor/Actress: Katherine Heigl

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? became suspected 16
12. What are you taking now? prednisone, plaquenil, vit D
13. Does it help? yes
14. What have you taken? prednisone, plaquenil, vit D
15. Do you want kids? I don't really see kids in my future, just not a kid person
16. Does anyone else in your family have LUPUS? Not that we know of

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? twin brother
18. Neices or nephews? no, it would be fun to be an aunt, though!
19. What state do you live in? --
20. Where would you live if you had the chance? Washington, DC
21. What is your lucky number? 22
22. Are you in school? Yes
23. What kind? ( High School, college, etc.) High School, Junior

24. Anything else that you want to tell us!! My dream and ultimate ambition is to become a medical doctor, and actually, this past year, I have become quite interested in rheumatology, I am thinking about interning next summer with my rheumy!

Saysusie
03-24-2008, 09:47 AM
Welcome Back Gisele :D

Darkhime
04-06-2008, 08:56 AM
-=-=-=- YOU-=-=-=-
1. Raine
2. 15, May 8th
3. Boyfriend: Jake
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Blue
5.Your favorite meal to cook: Rice
6.Your favorite meal to eat out: BBQ chicken
7.Your Favorite drink: Yogurt shake
8.Your favourite movie: 1408
9.Your favorite song: Die Die My Darling
10.Your favorite Actor/Actress: Jackie Chan

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 12
12. What are you taking now? Plaquenill
13. Does it help? Yes
14. What have you taken? Plaquenill, steroids, and i forgot the rest
15. Do you want kids? Yes
16. Does anyone else in your family have LUPUS? No

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? Yes, younger sister
18. Neices or nephews? No
19. What state do you live in? NJ
20. Where would you live if you had the chance? Turkey
21. What is your lucky number? 8
22. Are you in school? Yes
23. What kind? ( High School, college, etc.) High School

24. Anything else that you want to tell us!! I am a writer, I love to draw anime, I want to become a computer engineer.

Saysusie
04-06-2008, 12:14 PM
Welcome Raine; I hope that you find support and understanding here.!

Peace and Blessings
Saysusie

crushingpretty
04-08-2008, 12:01 PM
I'm no longer a teen, technically. But it has been a recent change and I'd like to offer any support to the teens in this forum, especially since I am so close in age. :)


-=-=-=- YOU-=-=-=-
1. Name: kate
2. Age/D.O.B: 02.08.1988
3. Boyfriend/Girlfriend's Name: James
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: poppy red and sunflower yellow
5.Your favorite meal to cook: variations of chicken. <3
6.Your favorite meal to eat out: Mexican food!
7.Your Favorite drink: I like water and pomegranate juices.
8.Your favourite movie: So many.
9.Your favorite song: lupus/disease related; Awesome by Darling Violetta
10.Your favorite Actor/Actress: I really like Zooey Deschanel.

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 16
12. What are you taking now? prednisone-lupus, cozaar-kidneys
13. Does it help? I'm pretty healthy these days.
14. What have you taken? too many to count, honestly.
15. Do you want kids?
I was devastated when I learned that I might not be able to have children. But I keep breaking through barriers. So I think I have a good chance at having them. :) If not though, my boy (who has been with me through everything) is more than fine with adoption.
16. Does anyone else in your family have LUPUS?
Multiple girls in my family were checked out when I was hospitalized; a cousin came back positive for it. My mom was recently diagnosed. (And doesn't seem to want to take care of herself. -_-)

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? sister; Sarah
18. Nieces or nephews? No.
19. What state do you live in? Indiana
20. Where would you live if you had the chance?
I love Indy, but I want to travel a lot. I've been to Korea, Quebec, Ireland and this summer I'm going to England and back to Ireland! :)
21. What is your lucky number? I don't have one.
22. Are you in school? Mhhm.
23. What kind? English major? 2nd year college.

24. Anything else that you want to tell us!!

I have dealt with many many many things because of lupus; losing fellow lupus friends, kidney failure, dialysis, HIGH SCHOOL with lupus, parents who get overprotective and overbearing, friends that have no idea what's going on, teachers that don't understand, self-esteem issues, hairloss, weight loss (extreme), and plenty of other things.

And what I mean to say is that I would love to try and help any of you feeling like you'd want an open ear, advice or anything like that. :)

butterfly7
05-12-2008, 12:07 PM
-=-=-=- YOU-=-=-=-
1. Name:Amanda
2. Age/11-20-88:
3. Boyfriend/Girlfriend's Name:single
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour:blue & purple
5.Your favorite meal to cook:steak w/ rice & beans
6.Your favorite meal to eat out:idepends on wat im in the mood for
7.Your Favorite drink:ice cold water
8.Your favourite movie:bronx tail
9.Your favorite song:right now its bleeding love
10.Your favorite Actor/Actress: can't say i got one

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed?13
12. What are you taking now?prednisone & plaquenil
13. Does it help?for the most part
14. What have you taken? wat?
15. Do you want kids? yea but i don't know if its possible
16. Does anyone else in your family have LUPUS? my father

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters?yea
18. Neices or nephews?yea
19. What state do you live in?new york
20. Where would you live if you had the chance?florida
21. What is your lucky number?5
22. Are you in school?yea
23. What kind? ( High School, college, etc.) high school

24. Anything else that you want to tell us!!

Saysusie
05-12-2008, 12:49 PM
Welcome Butterfly7 and I'm sorry I missed you Seekthejoy, you are welcomed here also!

Peace and Blessings
Saysusie

racinie
05-12-2008, 06:35 PM
=-=-=- YOU-=-=-=-
1. Name: Jessica
2. Age/D.O.B: 10/21/1988
3. Boyfriend/Girlfriend's Name: Ben
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: green
5.Your favorite meal to cook: ramen if I'm cooking...
6.Your favorite meal to eat out: Sushi or breakfast
7.Your Favorite drink: diet coke
8.Your favourite movie: Amelie (everyone should see it.)
9.Your favorite song: Letter form an Occupant by the New Pornographers
10.Your favorite Actor/Actress: julie andrews maybe?
-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 7 (first time), 18 (second time)
12. What are you taking now? Cellcept (THANK GOD FOR CELLCEPT), prednisone, lisinopril, plaquinil
13. Does it help? yes!!!! them doctors know what they're talking about!
14. What have you taken? everything i'm on, plus some NSAIDs that didn't work.
I was on heavier chemo drugs as a kid.
15. Do you want kids? I'm not sure. I like the idea of having kids, but I'm not sure that I as a person (not becuase of lupus) could handle it. We'll see!
16. Does anyone else in your family have LUPUS?
My grandmother, she died as an old lady of cancer. My mom had scleroderma, but lost that fight too.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 2 sisters and a brother, all older
18. Nieces or nephews? a bunch... 6, one on the way.
19. What state do you live in? Indiana
20. Where would you live if you had the chance? AMSTERDAM!
21. What is your lucky number? 57
22. Are you in school? yes, Purdue University, West Lafayette,IN
23. What kind? junior, premed/nursing

24. Anything else that you want to tell us!! lupus sucks. I want to go to school to help beat the s*** out of rheumatic disease so no one else needs to put up with it anymore.

Saysusie
05-13-2008, 10:06 AM
Hi Tadpole;
I fell like you are an "Oldie" member since you've already shared so much with our members. But, let me give you a big WELCOME also!

Peace and Blessings
Saysusie

racinie
05-13-2008, 11:00 PM
crushingpretty, if you ever make the trip an hour north to Purdue, give me a shout. jracine@purdue.edu

cuttlefish
09-30-2008, 05:23 PM
1. Name:
Kate
2. Age/D.O.B:
19; 6-7-89
3. Boyfriend/Girlfriend's Name:
Sam
4.Your favorite colour:
orange
5.Your favorite meal to cook:
Uhm, mac and cheese? Can't cook, hah.
6.Your favorite meal to eat out:
pad thai
7.Your Favorite drink:
Sobe Energy
8.Your favourite movie:
Hot Fuzz
9.Your favorite song:
10.Your favorite Actor/Actress:
Robert Downey Jr.
11. How old were you when you were diagnosed?
I was 17 years old.
12. What are you taking now?
Methotrexate (5 2.5mg tabs weekly), Plaquenil (300 mg daily), Folic Acid (2 mg daily), Motrin (300 mg in the morning, and then 300 mg as needed).
13. Does it help?
Very much so, yes. Maybe interested in a different NSAID at some point.
14. What have you taken?
I started off on the Plaquenil and Aleve but that didn't work, so my doctors added Methotrexate and switched me to Motrin for pain and inflammation management.
15. Do you want kids?
I don't know anymore.
16. Does anyone else in your family have LUPUS?
My mom has both Rheumatoid Arthritis and Lupus, as well as several other chronic illnesses.
17. Any brothers or sisters?
One younger sister, 17.
18. Nieces or nephews?
Hah. No.
19. What state do you live in?
For school, Pennsylvania. For family, California. For friends and my love, Massachusetts.
20. Where would you live if you had the chance?
Probably MA. Or Ireland. Wherever Sam is.
21. What is your lucky number?
7
22. Are you in school?
Yes.
23. What kind? ( High School, college, etc.)
I am class of 2011 at Bryn Mawr College.

24. Anything else that you want to tell us!!
I come to this community with the hope that I can find some like-minded young people dealing with lupus. Ultimately, I would like to find someone at my college who also has lupus that I could talk to. I just don't know how to go about finding them.
I'm friendly and I like helping people, so if anyone wants to talk I'm here to listen.
I just really need someone that isn't 50+ to relate to what I'm going through.
:D

Oluwa
09-30-2008, 05:40 PM
Hi you, Cuttlefish...

I am almost an oldie...47. I just wanted to welcome you with warm open arms here.

Feel welcomed to chat up in any forum too...

Hugs..
Love,
Oluwa

rob
09-30-2008, 05:46 PM
Hi Kate,

I'm Rob, I'm one of the moderators here. I was diagnosed with SLE when I was 36. I'm 40 now. I wanted to welcome you, and let you know that the best place to meet people here is in the forum called "Laurie's Lounge", and you can also introduce yourself in the intro area as well. This teen area is a good idea, but it doesn't recieve much traffic. We've got plenty of members here that are close to your age, and in college as well.

We're pretty informal here, so feel free to just jump in and join the group. There are some great people here, and they are very understanding. The only people who really can understand what it's like to live with Lupus are other people with the disease. So, make yourself at home, and don't be afraid to explore the site and join in where you want to.

Rob

P.S. Oh yeah, I think Robert Downey Jr. is a heck of a good actor too. And Thai food rules.

cuttlefish
09-30-2008, 05:51 PM
Thank you both for your kind responses!
More than anything, I just want to talk to people who understand what I'm dealing with.
My mom is the only one who I can really talk to and, while she's amazing and awesome and everything, it probably wouldn't hurt to branch out a bit.

I'll post in Laurie's Lounge next.
Thanks again!

rob
09-30-2008, 05:57 PM
Kate,

I know what you mean, my mother has Lupus too, and for the longest time she was the only person I ever spoke to, or even knew who had Lupus. She needed a break, and I needed to talk to other people and stop isolating myself. Anyway, I'll see you in the Lounge!

Rob

Sann
11-03-2008, 01:40 PM
1. Name: Sandra
2. Age/D.O.B: 20 years old
3. Boyfriend/Girlfriend's Name: Giorgio

-=-=-=- Favorites! -=-=-=-=-

4.Your favorite colour: Black
5.Your favorite meal to cook: Rice with sate
6.Your favorite meal to eat out: Indonesian food!
7.Your Favorite drink: Tea with honey
8.Your favourite movie: Stardust
9.Your favorite song: With Trees
10.Your favorite Actor/Actress: Helena Bonham Carter

-=-=-=- lupus Related -=--=-=-

11. How old were you when you were diagnosed? 19
12. What are you taking now? Nothing
13. Does it help?
14. What have you taken?
15. Do you want kids? Very much... Would love to be pregnant
16. Does anyone else in your family have LUPUS? Grandma, aunt and mother.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 2 brothers
18. Neices or nephews? a lot!
19. What state do you live in? i live in Holland, overseas.
20. Where would you live if you had the chance? Norway, in the mountains.
21. What is your lucky number? 3
22. Are you in school? Finished!!
23. What kind? Multimedia

24. Anything else that you want to tell us:

Hope i'll find some answers and perhaps friends on this forum! I could use some support from others.... :(

rob
11-03-2008, 02:56 PM
Welcome Sann,

My name is Rob, and I'm a moderator here. I just wanted to let you know that you are welcome to post anywhere on this site. This teen area doesn't receive much traffic, so any questions, comments, or just plain visiting you want to do will get the best results in the forum called "Lauri's Lounge", as well as the other forums near the top of the page. In other words, make yourself at home, and don't be afraid to explore! I'm glad you joined us.

Rob

Kcflannery
11-05-2008, 06:02 PM
-=-=-=- YOU-=-=-=-
1. Name: Kathleen (Kat)
2. Age/D.O.B: 19 10/15/89
3. Boyfriend/Girlfriend's Name: Single
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Green
5.Your favorite meal to cook: My mom's whipped potatoes
6.Your favorite meal to eat out: Chicken parm
7.Your Favorite drink: Rasp. Iced tea
8.Your favourite movie: The Grinch
9.Your favorite song: Right now prolly dreamer-chris brown, crush-david archulleta, so what-pink
10.Your favorite Actor/Actress: Sandra Bullock

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 18
12. What are you taking now? Prednisone and plaquenil
13. Does it help? Yes
14. What have you taken? Naproxin. prednisone, and plaquenil
15. Do you want kids? of course
16. Does anyone else in your family have LUPUS? my grandpas third cousin

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 younger brother
18. Neices or nephews? none
19. What state do you live in? MA but right now NH (at college)
20. Where would you live if you had the chance? Ma or upstate NY
21. What is your lucky number? 13
22. Are you in school? yup
23. What kind? ( High School, college, etc.) college

24. Anything else that you want to tell us!! Stay positive and keep your heads up....it gets easier eventually...and please dont hesitate to contact me if you want to talk...i understand what your going through!

Saysusie
11-06-2008, 01:23 AM
Hi Kat;
I've read your posts in some of the other forums here. Welcome to our family and I hope that other teens will pop in to acquaint themselves with you and share experiences with you.

Peace and Blessings
Saysusie

Acey MorFiend
11-14-2008, 08:13 PM
-=-=-=- YOU-=-=-=-
1. Name: Acey
2. Age/D.O.B: 20, March 19th 88'
3. Boyfriend/Girlfriend's Name: Chase [girl]
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Blue
5.Your favorite meal to cook: Stir fry or Sushi
6.Your favorite meal to eat out: Sushi
7.Your Favorite drink: Pumpkin' Spice Latte'
8.Your favourite movie: not sure...
9.Your favorite song: It changes a lot
10.Your favorite Actor/Actress: none

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 14
12. What are you taking now? cellcept. Prednisone. stomach pill. quinipril. depression pill. prenatal. percocets.
13. Does it help? ...no, just the percocets. But i dont have joint pain so i guess the prednisone is helping too
14. What have you taken? Allll those, Chroiquin gives me headaches
15. Do you want kids? I do...
16. Does anyone else in your family have LUPUS? nooope just lucky me

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? a older brother
18. Neices or nephews? nope
19. What state do you live in? Washington
20. Where would you live if you had the chance? Canada or Washington
21. What is your lucky number? 3
22. Are you in school? finished college
23. What kind? Tech. College

24. Anything else that you want to tell us!!
lupus.. sucks..

Saysusie
11-15-2008, 11:11 AM
Hi Acey;
I'm happy that you've joined us. Yes, life with Lupus can really suck. But, I hope that being here, meeting our members, and learning that you are not alone will help you to find some light in the suckiness of Lupus life!

Peace and Blessings
Saysusie

BTW:
Like you, I am a Sushi fanatic!!

Wishing
03-05-2009, 10:16 AM
-=-=-=- YOU-=-=-=-
1. Name:Brioni Dawn or bre
2. Age/D.O.B: 17 july 13 of 91
3. Boyfriend/Girlfriend's Name: Nason k
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Anything Blue
5.Your favorite meal to cook: I like to make grilld cheez lol
6.Your favorite meal to eat out: i love mexican food
7.Your Favorite drink: mt dew
8.Your favourite movie: The goonies
9.Your favorite song: I love music not sure if i have a favorite song
10.Your favorite Actor/Actress: meh..

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 15years old
12. What are you taking now? celcept??
13. Does it help? my kidneys
14. What have you taken? o lanta many many things
15. Do you want kids? YES i do!!
16. Does anyone else in your family have LUPUS? my grandma did

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? yes one older siser and an older brother
18. Neices or nephews? soon ill have a neice this coming summer
19. What state do you live in? Utah
20. Where would you live if you had the chance? CALI
21. What is your lucky number? 11 11
22. Are you in school? yes
23. What kind? ( High School, college, etc.) alternative high school

24. Anything else that you want to tell us!! Im kinda shy but no really i just keep to myself im a really good person to talk to if anyone needs anything i your girl!! and help me out here im new!!

Rastagirl
03-05-2009, 10:31 PM
Hi Wishing...Bre...

Hello and Welcome to the site. Glad you decided to join us. If you need any help, just ask around...people are always willing to help out those that are new.

Looking forward to your posts.

Fondly,

Lori :)

mountaindreamer
03-06-2009, 06:04 AM
hi wishing,

welcome to the forum....there are so many young women here, and I know you all will be able to walk with each other through life with lupus. Us old folks will be here to lean on if you ever need it.

I look forward to learning more about you, and reading your insights.

phyllis

SuperGiv
03-08-2009, 09:33 PM
Just realised I haven't done this!!
-=-=-=- YOU-=-=-=-
1. Name:Giverny
2. Age/D.O.B: 19 9/10/89
3. Boyfriend/Girlfriend's Name: Chris and he's lovely :D
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour:Blue
5.Your favorite meal to cook:Fajitas
6.Your favorite meal to eat out: Curry
7.Your Favorite drink:VImto
8.Your favourite movie:Twilight
9.Your favorite song:Anything by Killswitch Engage
10.Your favorite Actor/Actress:Kiera Knightley cause she's beautiful

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 18
12. What are you taking now? Plaquenil
13. Does it help? Not really, hoping to have the dosage increased
14. What have you taken? Just plaquenil and co-codamol, only been diagnosed 5 months
15. Do you want kids? Yes, but quite scared
16. Does anyone else in your family have LUPUS? Nope

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? One little brother, in age anyway, he's 6"2 though!!
18. Neices or nephews?Not that he's told me about
19. What state do you live in? I live in Manchester in the UK
20. Where would you live if you had the chance? I'm happy in Manchester, but wouldn't mind Germany
21. What is your lucky number? 27
22. Are you in school? Nope University
23. What kind? erm, I'm an Undergrad at university of manchester

24. Anything else that you want to tell us! When i'm not having a flare I like to be busy and do loads of things. Love going out in manchester and shopping, but also love going home (Staffordshire) and seeing the crazy family and my lovely friends

sick n tired
03-08-2009, 09:38 PM
Hey wishing...nice to meet you. you are the same age as my son...

ashleybaby715
03-15-2009, 05:14 PM
-=-=-=- YOU-=-=-=-
1. Name: Ashley<3
2. Age/D.O.B: 16- July 15th, 1992.
3. Boyfriend/Girlfriend's Name: ...currently single.
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: PINK!!
5.Your favorite meal to cook: oh honestly, anything is good with me! :)
6.Your favorite meal to eat out: habatchi grills! && olive garden! or a nice buffet hehe.
7.Your Favorite drink: vitamin water!
8.Your favourite movie: Rent [[which i get to see the broadway performance of april 15th!!!]], hairspray, the hot chick.
9.Your favorite song: ''a little bit longer'' by nick jonas, cuz it relates to my life!! or well , anything by the jonas brothers!!!
10.Your favorite Actor/Actress: adam sandler.

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 16.
12. What are you taking now? oh boy... daily vitamin+iron, prednisone, plaquinel, folic acid, vitamin d supp., methotrexate, zantac....
13. Does it help? seems to be :]
14. What have you taken? all the above...hahaa
15. Do you want kids? Yes!!
16. Does anyone else in your family have LUPUS? no! just me...

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? yupp. an older and younger brother.
18. Neices or nephews? nope.
19. What state do you live in? Pennsylvania.
20. Where would you live if you had the chance? somewhere where its warm all the time!!
21. What is your lucky number? 5!
22. Are you in school? yupp.
23. What kind? ( High School, college, etc.) highschool. [[junior year]]

24. Anything else that you want to tell us!!

heyy guysss!! everybody contact me, i love meeting new lupiess! especially if they're teenagers cuz then i can really relate!!

cheybaby
04-05-2009, 09:27 PM
--------------------------------------------------------------------------------

-=-=-=- YOU-=-=-=-
1. Name: Cheyenne
2. Age/D.O.B:17, 6/21/1991
3. Boyfriend/Girlfriend's Name: CEG
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour:turqoise
5.Your favorite meal to cook:i dont enjoy cooking
6.Your favorite meal to eat out:mexican
7.Your Favorite drink: cream soda
8.Your favourite movie:anything funny
9.Your favorite song: have faith in me- a day to remember
10.Your favorite Actor/Actress:

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed?17
12. What are you taking now? Plaquenil
13. Does it help? ive only been taking it for a month and not so far
14. What have you taken? plaquenil and natural suppplements
15. Do you want kids? no
16. Does anyone else in your family have LUPUS?no

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 2 brothers and a sister
18. Neices or nephews?nope
19. What state do you live in? texas
20. Where would you live if you had the chance? the cariabbean
21. What is your lucky number? 3
22. Are you in school? yeah
23. What kind? ( High School, college, etc.) about to graduate high school

24. Anything else that you want to tell us!!
i'd really like to meet some people around my age with Lupus because i dont know anybody else who has it and nobody really understands what its like unless they have experienced it.

Rastagirl
04-06-2009, 05:38 PM
Hello and Welcome Cheybaby.... :wavey:

Just wanted to welcome you to the forum. Glad you decided to join us. Feel free to browse the other forums and join in on the conversations.

There are a few other teens that are active on the site....you should go visit 'Ashleybaby's' Profile, or check out her Blog. She's a very upbeat, positive, teen member and she's always fun to chat with. I know she'd love to hear from you.

Make yourself at home....and feel free to ask any questions you like. We're all happy to help.

Fondly,

Lori :cool2:

froggal
04-07-2009, 12:35 AM
Hello to everyone!! I am new also so maybe we can learn about this together. I have two teenagers and I am always amazed at the wonderful things that they teach me daily. If it werent for them I would have never joined this site and I would be missing out on some great people. Feel free to talk to me anytime. I am always up for making new friends and a younger perspective on things!! :cute:

Lee_amyj
06-28-2009, 10:00 PM
-=-=-=- YOU-=-=-=-
1. Name: Amy Jalane
2. Age/D.O.B: 19 04/03/1990
3. Boyfriend/Girlfriend's Name:don't have a b/f
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Pink
5.Your favorite meal to cook: Lasagna
6.Your favorite meal to eat out: pizza
7.Your Favorite drink: Orange coke
8.Your favourite movie: The boondock Saints
9.Your favorite song: Embracing Acusations by Shane&Shane
10.Your favorite Actor/Actress: ashton kutcher/ lisa kudrow

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 12
12. What are you taking now? nothing
13. Does it help? no....lol
14. What have you taken? relafen and plaquenil
15. Do you want kids?maybe
16. Does anyone else in your family have LUPUS? Mom,

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? Yes. my parents do foster care so heres the run down....
biological kids:
older sis, older bro, me and younger bro

adopted kids:
2 girls 1 boy

foster kiddos:
2 boys 4 girls
18. Neices or nephews?1 niece and twins on the way (boy/girl twins!)
19. What state do you live in? Texas
20. Where would you live if you had the chance? Colorado
21. What is your lucky number? 143 (when i was younger my parents would page each other and put that in for the call back number... it stands for i love you... get it i=1 love=4 and you=3
22. Are you in school? next semester
23. What kind? ( High School, college, etc.) college

24. Anything else that you want to tell us!!

from my mom down to the youngest adopted kiddo we are all in girl boy order!

jewleeuh
07-31-2009, 10:44 PM
-=-=-=- YOU-=-=-=-
1. Name: Julia
2. Age/D.O.B: 16 3/17/93
3. Boyfriend/Girlfriend's Name: Allen
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Blue, or Pink and Black (But only together)
5.Your favorite meal to cook: Pasta ^__^
6.Your favorite meal to eat out: Sonic!
7.Your Favorite drink: Strawberry Soda
8.Your favourite movie: Hmmm any horror movie
9.Your favorite song: Remember me, oh gog, for good -Watch out! There's Ghosts
10.Your favorite Actor/Actress: None

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? Hope to find out soon
12. What are you taking now? N/A
13. Does it help? N/A
14. What have you taken? N/A
15. Do you want kids? I want to adopt :D
16. Does anyone else in your family have LUPUS? Nope

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 Brother, Albert, 3 sisters, Olivia Sophia and Rosalinda
18. Neices or nephews? Yessum, a nephew Daniel
19. What state do you live in? California
20. Where would you live if you had the chance? Here ^_^
21. What is your lucky number? 7, 13, 52
22. Are you in school? Mhm
23. What kind? ( High School, college, etc.) Highschool

24.Tell them to look up. Tell them to remember the stars.
The stars are always there but we miss them in the dirt and clouds. We miss them in the storms. Tell them to remember hope. We have hope.

scarby
08-13-2009, 10:53 PM
1. Name: Jasper
2. Age/D.O.B: 19 31/10/89
3. Boyfriend/Girlfriend's Name:don't have a b/f
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Green
5.Your favorite meal to cook: Pizza from scratch
6.Your favorite meal to eat out: Sushi
7.Your Favorite drink: Water
8.Your favourite movie: V for Vendetta
9.Your favorite song: Ain't Misbehavin'
10.Your favorite Actor/Actress: not really

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 18/19 but it's not fully confirmed but is being treated as it is.
12. What are you taking now? Plaquenil
13. Does it help? Not yet
14. What have you taken? N/A
15. Do you want kids? Yes
16. Does anyone else in your family have LUPUS? Not that I know of

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? Younger sister
18. Neices or nephews? None
19. What state do you live in? Otago (NZ)
20. Where would you live if you had the chance? Hmmm...
21. What is your lucky number? None
22. Are you in school? No - Am 2nd year at uni
23. What kind? ( High School, college, etc.)

24. Anything else that you want to tell us
I'm not sure....

skaterdudepiking13
08-30-2009, 01:10 PM
1. Name: Keith
2. Age/D.O.B:13 5/6/1996
3. Boyfriend/Girlfriend's Name: no gf
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: blue
5.Your favorite meal to cook: pizza
6.Your favorite meal to eat out: taco bell
7.Your Favorite drink: root beer
8.Your favourite movie: Epic miove
9.Your favorite song: do the rackdaddy
10.Your favorite Actor/Actress: Eddie Murphy

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 11
12. What are you taking now?Prednisone,Plaquinel,Prevacid,Potassium,Captop ril,Calcium,Cytoxan,Pentamadine,Eleval,Maxalt,Zofr an
13. Does it help? Not really
14. What have you taken? Lovenox,Cellcept,Lasix
15. Do you want kids? not really
16. Does anyone else in your family have LUPUS? mom's cousin

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 2 sisters
18. Neices or nephews? no
19. What state do you live in? Hawaii
20. Where would you live if you had the chance? Georgia
21. What is your lucky number? 6
22. Are you in school? yes
23. What kind? ( High School, college, etc.) Homeschool

24. Anything else that you want to tell us!!

Jerzi
08-30-2009, 02:16 PM
I just realized I never got around to doing this. I meant to when I first signed up and rummaged through the forums.

-=-=-=- YOU-=-=-=-
1. Name: Jerzi
2. Age/D.O.B: 18
3. Boyfriend/Girlfriend's Name: N/A
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Purple, and blue.
5.Your favorite meal to cook: Macaroni, because it's easy.
6.Your favorite meal to eat out: Sushi.
7.Your Favorite drink: Slurpees!
8.Your favourite movie: Repo! The Genetic Opera, Rent, Rocky Horror Picture Show. Apparently anything thats a musical and begins with "R".
9.Your favorite song: Tonight, Tonight - Smashing Pumpkins
10.Your favorite Actor/Actress: Yvonne De Carlo.

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 17
12. What are you taking now? Plaquenil, Prednisone, Indomethacin, Methotrexate, Prevacid, daily Iron, Vitamin D & C.
13. Does it help? It tries.
14. What have you taken? All of the above and Naproxen.
15. Do you want kids? Nope.
16. Does anyone else in your family have LUPUS?
Nay, I'm the only one it seems.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? Nope.
18. Neices or nephews? Another no.
19. What state do you live in? I don't live in a state, I live in a province: BC.
20. Where would you live if you had the chance? New York or Paris.
21. What is your lucky number? 17
22. Are you in school? Just graduated.
23. What kind? ( High School, college, etc.)

24. Anything else that you want to tell us!!
The second I get the teensiest ounce of energy back, I run around and cause shenanigans.

rob
08-30-2009, 02:35 PM
1. Name: Keith
2. Age/D.O.B:13 5/6/1996
3. Boyfriend/Girlfriend's Name: no gf
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: blue
5.Your favorite meal to cook: pizza
6.Your favorite meal to eat out: taco bell
7.Your Favorite drink: root beer
8.Your favourite movie: Epic miove
9.Your favorite song: do the rackdaddy
10.Your favorite Actor/Actress: Eddie Murphy

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 11
12. What are you taking now?Prednisone,Plaquinel,Prevacid,Potassium,Captop ril,Calcium,Cytoxan,Pentamadine,Eleval,Maxalt,Zofr an
13. Does it help? Not really
14. What have you taken? Lovenox,Cellcept,Lasix
15. Do you want kids? not really
16. Does anyone else in your family have LUPUS? mom's cousin

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 2 sisters
18. Neices or nephews? no
19. What state do you live in? Hawaii
20. Where would you live if you had the chance? Georgia
21. What is your lucky number? 6
22. Are you in school? yes
23. What kind? ( High School, college, etc.) Homeschool

24. Anything else that you want to tell us!!


Hello Keith,

Welcome to our group. Although we have this forum for teens specifically, it does not mean you have to confine your comments just to this area. The most traffic and conversation here is in the forum called "Lauri's Lounge". Feel free to explore the site, and post wherever you like. Make yourself at home.

Rob
Moderator

ElyMiller000
08-31-2009, 02:53 PM
-=-=-=- YOU-=-=-=-
1. Name: Ely
2. Age/D.O.B: 18
3. Boyfriend/Girlfriend's Name: Husband- Ryan
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Lime Green and Hot Pink and Dark Purple
5.Your favorite meal to cook: Pasta Salad with lots of colors
6.Your favorite meal to eat out: Chicken Alfredo from Olive Garden
7.Your Favorite drink: Jones Apple, Sunny D, Coke, Apple Juice
8.Your favourite movie: I have too many...
9.Your favorite song: I like Flyleaf songs
10.Your favorite Actor/Actress: None

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 18
12. What are you taking now? Too many pills to count, but the two main are Prednisone and Cytoxan
13. Does it help? Yeah, Prednisone has supressed the pain and Cytoxan has been helping my kidneys
14. What have you taken? Well, like I said- I am taking a lot of pills, mainly for blood pressure and other stuff
15. Do you want kids? I sure do
16. Does anyone else in your family have LUPUS? My aunt has the skin kind and my other aunt the systematic kind

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? Sister
18. Neices or nephews? Nephew
19. What state do you live in? Texas
20. Where would you live if you had the chance? Japan!
21. What is your lucky number? 24
22. Are you in school? Technically yes, but right now I'm on a leave of absence...missing too many days for Dr. Appts.
23. What kind? ( High School, college, etc.) College, for Aeronautics

24. Anything else that you want to tell us!!
I love God. I know it sounds cheesy, but what kind of Christian would I be if I didn't tell you I am one.

Arie
09-28-2009, 07:39 AM
-=-=-=- YOU-=-=-=-
1. Name: Ariane
2. Age/D.O.B: 18/ 01-17-1991
3. Boyfriend/Girlfriend's Name:N/a
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: neon color
5.Your favorite meal to cook: anything easy......
6.Your favorite meal to eat out: Ribs
7.Your Favorite drink: since lupus messes with my kidney's i would have to say juice or water.......Apple Juice
8.Your favourite movie:IDK so too many to choose from
9.Your favorite song: Go Hard by Lecrae
10.Your favorite Actor/Actress: too much to choose from

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 10
12. What are you taking now? Cellcept, Enalipril, cozar, zantac, Hydrochloriquin i think, Iron, Plaquinil
13. Does it help? Yeah been on it since i been diagnosed
14. What have you taken? Pregnasone
15. Do you want kids? Absolutly
16. Does anyone else in your family have LUPUS? No

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 2
18. Neices or nephews? 0
19. What state do you live in? North Carolina
20. Where would you live if you had the chance? China
21. What is your lucky number? &
22. Are you in school? Yes
23. What kind? ( High School, college, etc.). High School/college I go to a early college

24. Anything else that you want to tell us!!

Um Im in love with God He is what i live for and believe he gave me this so i could talk to people......um ima christian rapper and when i grow up i wanna be a youth pastor.....um idk besides God my mama is my main support system when it comes to lupus

Saysusie
10-05-2009, 09:49 PM
It is so nice to see so many teens using this thread. Welcome to all of you and I do hope that you find the understanding, friendship, comfort, and information that you need here!

Peace and Blessings
Namaste
Saysusie

lindsayyy
10-28-2009, 01:56 PM
-=-=-=- YOU-=-=-=-
1. Name: Lindsay.
2. Age/D.O.B: 17
3. Boyfriend/Girlfriend's Name: Blake
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Purple.
5.Your favorite meal to cook: Eggs and bacon. (:
6.Your favorite meal to eat out: Anything italian.
7.Your Favorite drink: Coke or water.
8.Your favourite movie: The Notebook.
9.Your favorite song: Theres a lot.
10.Your favorite Actor/Actress: I love Rachel McAdams.

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 14
12. What are you taking now? Hydroxicloriquen(sp?), Naproxin, and Trentinal (sp?)
13. Does it help? Yeahh sometimes.
14. What have you taken? ^^^
15. Do you want kids? Yes i do.
16. Does anyone else in your family have LUPUS? Not that i know of.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? Yess. One brother.
18. Neices or nephews? No.
19. What state do you live in? Texas.
20. Where would you live if you had the chance? New York.
21. What is your lucky number? 4
22. Are you in school? Yess.
23. What kind? ( High School, college, etc.) High School;Senior.

24. Anything else that you want to tell us!!
Im an easy going person.. feel free to talk to me if you need someone. (:

capncrunch
12-02-2009, 05:28 PM
-=-=-=- YOU-=-=-=-
1. Name: Kaf
2. Age/D.O.B: 20/ 04-29-1989
3. Boyfriend/Girlfriend's Name:N/a
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Green
5.Your favorite meal to cook: anything easy......
6.Your favorite meal to eat out: Pizza
7.Your Favorite drink: Apple Juice
8.Your favourite movie: Transformers
9.Your favorite song: Down by Jay Sean
10.Your favorite Actor/Actress: Megan Fox
-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 20
12. What are you taking now? Cellcept or Generic brand Called Mycophenolat
13. Does it help? Yeah been on it since i been diagnosed
14. What have you taken? Predinsone
15. Do you want kids? Absolutly
16. Does anyone else in your family have LUPUS? No

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 3
18. Neices or nephews? Don't No
19. What state do you live in? Pennsylvania
20. Where would you live if you had the chance? China
21. What is your lucky number? 18
22. Are you in school? Yes
23. What kind? ( High School, college, etc.). College

24. Anything else that you want to tell us!!

anne9999
12-10-2009, 12:37 PM
Okay so im not exactly a teen anymore, but i'm still young so what the hey i'll do it!

1. Name: Anne
2. Age/D.O.B: 21
3. Boyfriend/Girlfriend's Name: No BF at the time
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Purple
5.Your favorite meal to cook: Spaghetti and meatballs (Yumm)
6.Your favorite meal to eat out: Sushi
7.Your Favorite drink: Home made Ice tea
8.Your favourite movie: Too many to list
9.Your favorite song: As of right now, Breakeven- TheScript
10.Your favorite Actor/Actress:

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 12 years old
12. What are you taking now? Plaquenil, Vasotec, and some vitamins (Used to take over ten pills per day)
13. Does it help? Yes definitely
14. What have you taken? I can't recall at the time being. I'll have to look at my med. history.
15. Do you want kids? Yes but Unfortunately, I underwent chemo in the past and cannot have children.
16. Does anyone else in your family have LUPUS? Nope, i'm the only one.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? one bro and one sis. I'm the middle child.
18. Neices or nephews? Nope.
19. What state do you live in? Kansas
20. Where would you live if you had the chance? I actually love KS.
21. What is your lucky number? 83
22. Are you in school? Yes
23. What kind? ( High School, college, etc.) Third year college.

wolfwhisper
12-21-2009, 10:12 PM
Sorry, please forgive my tardiness Just found this thread. I've been here for a couple months, so... here I go.

-=-=-=- YOU-=-=-=-
1. Name: Nicole
2. Age/D.O.B: 18/05-28-1991
3. Boyfriend/Girlfriend's Name: Don't have one
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Red
5.Your favorite meal to cook: Chicken en chilada
6.Your favorite meal to eat out: Steak (Love Arigato)
7.Your Favorite drink: Milk!
8.Your favourite movie: Have no idea lol.
9.Your favorite song: Love Story by Tailor Swift
10.Your favorite Actor/Actress: Sandra Bullock

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 3
12. What are you taking now?
13. Does it help?
14. What have you taken?
15. Do you want kids? No. I'm too much of a tomboy
16. Does anyone else in your family have LUPUS? Yes. My dad's cousin

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? Older sister. Only met about 7 years ago
18. Neices or nephews? I wish
19. What state do you live in? Florida
20. Where would you live if you had the chance? Anywhere with wolves and cold climate
21. What is your lucky number? 6
22. Are you in school? Yes
23. What kind? ( High School, college, etc.) College

24. Anything else that you want to tell us!!
I'm friendly, talkative, and want to be a zoologist.
Found the site in August this year, and like the camaraderie here. If you want to know more or just chat, just send me an email at
www.inuyashagirl667@yahoo.com or leave a message on my profile page. If you send an email, please just let me know that you're from this site!

unspeakablejoy
02-03-2010, 10:07 PM
-=-=-=- YOU-=-=-=-
1. Name: CAMARA
2. Age/D.O.B: 19/ AUGUST 7th
3. Boyfriend/Girlfriend's Name: NA
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: GREEN
5.Your favorite meal to cook: DESSERT-RED VELVET CAKE
6.Your favorite meal to eat out: ANY MEAL. LOL.
7.Your Favorite drink: SWEET TEA/WATER
8.Your favourite movie:LOVE & BASKETBALL
9.Your favorite song: SO MANY...
10.Your favorite Actor/Actress:WILL SMITH

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 19
12. What are you taking now? VITAMIN D SUPPLEMENTS
13. Does it help? NA
14. What have you taken? NA
15. Do you want kids? VERY MUCH SO.
16. Does anyone else in your family have LUPUS? YES, MY MOTHER, AND 2 AUNTS.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? AN IDENTICAL TWIN SISTER
18. Neices or nephews? NA
19. What state do you live in? GEORGIA
20. Where would you live if you had the chance? I LOVE WHERE I LIVE
21. What is your lucky number?NA
22. Are you in school? YEP
23. What kind? ( High School, college, etc.) COLLEGE.

24. Anything else that you want to tell us!! I'M A REALLY SWEET GIRL! :)

GreaterLife
02-08-2010, 10:58 AM
1. Name: Sandy :]
2. Age/D.O.B: 18
3. Boyfriend/Girlfriend's Name: Don't have one, it's all good though :]

-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Ah that's a hard one, I love the color red though :], but green and black are close behind. Can't forget rainbow eithe
5.Your favorite meal to cook: Ha ha, I'm better at baking, then cooking. So I love to bake pies for my family during the holidays
6.Your favorite meal to eat out: Shrimp, never make it at home ha ha
7.Your Favorite drink: A strawberry smoothie
8.Your favourite movie: Ooooo now that's a hard questions. Hmmm, I don't really have a favorite movie, but one I can watch and laugh each time is Cloudy with a Chance of Meatballs
9.Your favorite song: Careless Whisper by Seether
10.Your favorite Actor/Actress: Jonny Depp :] very good at changing roles, it amazes me how he can play so many different characters, and give them all their own personalities

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 18
12. What are you taking now? Nothing as of yet, but my doctor thinks I'll need to be put on something after I get a few more tests done
13. Does it help? N/A
14. What have you taken? N/A
15. Do you want kids? Not really
16. Does anyone else in your family have LUPUS? Not that I know of. They thought my older sister had it at a time, but that came up negative.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 2 older sisters
18. Neices or nephews? Nope
19. What state do you live in? PA
20. Where would you live if you had the chance? I actually don't mind PA, but for what I'm going to college for I'll probably have to move to Florida or California but that's all good too. :] I guess my way of thinking, where ever I end up is where I'm suppose to be.
21. What is your lucky number? 6
22. Are you in school? Yep, last year *senior*
23. What kind? ( High School, college, etc.) High School

24. Anything else that you want to tell us!!
I love art. I'm going to the AI in Pittsburgh to further my career in it yay!!! Hmmm, what else to say. I don't like to ramble ha ha, but I just found out today that I have lupus, and that I have to get a bio-opsee *sorry I suck at spelling* done of my skin *eeewwww*. I hate needles and anything that deals with medical things, since I had a surgery done a few months ago D:, but I know the bio-opsee is only gonna' help me out. So, I'm gonna' suck up my fear ha ha, and go get it done anyway. Hmmm, well getting off the medical talk, I'm a very energetic person *when I'm not drained/sick*. I like to think positive, but with the current situation it's been rather hard. I think that is only because I'm not all the familiar with lupus.

jessie0
06-27-2010, 06:24 AM
I know this forum hasn't been posted in for a while, but I thought I may as well introduce myself in this sub-forum too :). This board doesn't appear to be used a lot though :(

-=-=-=- YOU-=-=-=-
1. Name: Jess
2. Age/D.O.B: 18. Born in November 1991
3. Boyfriend/Girlfriend's Name: Max... slightly on/off though hahaha

-=-=-=- Favorites! -=-=-=-=-
4.Your favorite color: Light blue
5.Your favorite meal to cook: I love cooking any desserts (if only I wasn't on such a massive dose of prednisone I could probs eat more :()
6.Your favorite meal to eat out: chicken parmagiana
7.Your Favorite drink: Lemonade
8.Your favorite movie: Shawshank redemption. But admittedly, I like a bit of everything... can never go past a good chick flick like Mean Girls.
9.Your favorite song: Don't have one - I listen to a bit of everything.
10.Your favorite Actor/Actress: Meryl Streep, Gerard Butler

-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 17 years old
12. What are you taking now? plaquenil, methotrexate, prednisone
13. Does it help? I'm noticing the biggest difference with the methotrexate
14. What have you taken? Methylprednisolone, dextamethosone (sp?), Imuran, hydrocortisone
15. Do you want kids? Absolutely.
16. Does anyone else in your family have LUPUS? No, but I have a history of autoimmune diseases like crohns and RA in my family.

-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 2 sisters and 1 brother.
18. Neices or nephews? nope
19. What state do you live in? Victoria (in Australia).
20. Where would you live if you had the chance? I probably wouldn't move, but I do like the idea of moving to Queensland (Australian state) to escape the cold!
21. What is your lucky number? I've never really had a lucky number, but I'll go with 9 because a lot of good things which have happened have revolved around that number :)
22. Are you in school? Yes - final year
23. What kind? ( High School, college, etc.) High School, year 12.

24. Anything else that you want to tell us!!
Although I was diagnosed with Lupus at 17, I've been showing signs of it since 2005. A diagnosis eluded so many so-called experts, who insinuated that I was either feigning my symptoms or exaggerating them. After so long, I just attempted to ignore my aching joints, my pain on breathing and my nausea and vomiting, because I thought I was crazy. It didn't work... I ended up missing 2 years of school (thereabouts) and had to undertake distance education. I was finally diagnosed after a neurologist referred me to a rheumatologist after I experienced difficulty handwriting due to pain - so it was a bit of a fluke. He basically diagnosed me with Lupus on the spot and was shocked I hadn't been referred to a rheumy yet considering my symptoms. He did blood work for ANA, C3 and C4 and ESR etc which all came back positive. So I'm unfortunately quite tainted and disillusioned with the medical profession. I'm sure because of Lupus's tendency to mimic a myriad of other conditions, that my experience is not unique, particularly amongst young adolescent females (where, unfortunately, doctors tend to make certain assumptions, which is so unfair...) I do want to turn my bad experiences with the medical world into a positive though - I would like to help others who have been through similar ordeals when I leave school. After all that whining, I do consider myself incredibly lucky that I was able to obtain a diagnosis at all and that I did attend the appt with the rheumy!

Angel Oliver
06-28-2010, 05:57 AM
Just to say hello and welcome to all the teens ive missed out in saying hi too. If ever you want to chat just come and post we will answer you and understand.If you click on ''quicklinks' at the top of the page and scroll down to 'whose online' you can also chat to someone then n there if you see people online.Always someone here.Ive not been on in a while,so also you can leave messages on members profiles too if you need info with anything.
I long for one day....that diagnosis can be done so much more quicker instead of some members including myself have to wait many years.So just rest,dont ignore symptoms or be intimidated by doctors.You know your body.....so keep telling them till they listen!!
Love n hugs
Amanda.xxxxxxxx