View Full Version : You guys are the best!

08-23-2007, 03:31 AM
I thought a feel good post would be really great for us who are feeling yuk. So what are some of the best tips, supportive words, general great things that you have found from wehavelupus.


08-23-2007, 03:35 AM
The first one I am going to mention is... makeup tips..

I have been getting lupus rashes, vasculitis, blotches all over my body and after reading about the bare minerals tip for covering butterfly rashes and the like from everyone I made a special trip out to get some.

I've only being wearing it for today- so I can't speak of whether it blocks my pores or anything but I am loving it.

I have a few formal functions coming up and I was worried about exposing these areas (it looks like I am contagious or something), and now I feel like I can be pretty :D

08-24-2007, 01:59 PM
I looked at the prices for "bare minerals" and went

:shock: GAAAAK!!!! :shock:

The idea sounded fabulous but I'm not a person who spends much on makeup. So I kept looking at it and saying..."maybe someday..."

"Physicians formula" has now come out with a no-talc line of base powder and blush, I've tried that and like it. I think there's a few other brands who are doing that as well - but watch for the talc - it isn't good for you. It may not have as good of coverage and as many color choices as bere minerals, though.

My fav thing in the winter is long hot baths with lots of bubbles, followed by lavendar scented massage oil. In the summer? A tall cool drink and a good book....

08-24-2007, 06:32 PM
Oh my...where do I start? Good recipes and great stories (Littlered!) and great medical insights and information (Saysusie and Marycain) wonderful inspiration (lots and lots of people, like Browneyedgirl) wonderful support from so many (like Ilovehistory). I could name so many of you who've meant a lot to me this past year. I think the most important lesson I've learned here is to take an active role in your own health care. Read, learn, question, and talk openly with your doctors. I don't know if I would've been nearly as strong an advocate for my own healthcare if I hadn't had this place to come to ask questions. Thanks to everyone who posts here!


08-25-2007, 02:37 AM
Hatlady - yep I did that too :lol: . + I have the import costs. But I'm seriously wearing it on the w/e even as it is so easy. I'm actually going to get the blush next week (don't tell hubby- I already hid the foundation).

I am so craving hot baths now.

Mnjodette - ditto all that. Well said.

Also- Saysusie - for a good whack over the head for me being impatient with my Dr telling me to wait before trying for a baby- whilst still being kind and supportive. I thank you. Sometimes we need to listen to our Drs, even when they are not telling us what we want to hear (just sometimes :P)

Now- I am off to take a bath- heehee.
P.S. Where are those recipes?

08-25-2007, 05:12 AM
I used to LOVE indulgeing in a long, warm bath with bubbles, or scented oil, and massages with a really nice smelling lotion or oil. However, I have many allergies, and the fragrances it seems all started to give me a rash. Now that I have my lupus and allergies more under control, I would love to ease back into trying a few products in the hopes that I can tolerate them and once again enjoy the luxery of a long relaxing bath and/or lotion massage. Any suggestions or favorites?

08-25-2007, 06:58 AM
I don't quite have the allergy problem as such- but I do sneeze at perfume. I just can't stop :shock: . But I do find that I am fine with essential oils, and I can wear them as a "perfume" in a carrier base oil.

You can put I think it is 10 or 20(?) drops of essential oil in your bath. Some of them are meant to be good for skin, (eg. soothing or antiseptic etc.)

Also, if you are reacting you may wish to put them in at lower then the recomended concentration - like half or so. Also if you are pregnant- check first etc, some are contraindicated.

I'm a big aromatherepy fan :)

08-25-2007, 09:04 AM
I'm loving this thread everyone.... :lol: Keep it going!


08-26-2007, 01:22 PM
Aromatherapy I love?

At work I keep essential oils -

and I'll take a sniff of the grapefruit when I'm feeling tired, or rosemary when I'm feeling foggy. Or peppermint for a pick-me-up.

Then again, some days I just put all 3 on a cotton ball on my desk and breathe deeply!

At home I keep geranium - supposed to be good for "general wellness" and put a drop on my wrist in the morning.

Bedtime? Lavendar of course!

09-01-2007, 12:26 AM
Oh, this kind of fits right in with my What's Your Favorite Pick Me Up Song... well, as I keep reading....I keep getting more ideas about what eases and pleases my tired achy body when I'm feeling yucky. I LOVE THE SMELL OF GERANIUM IN THE MORNING....it's the only one that doesn't make me sneeze!

I discovered that hot baths are not so good, mildly warm baths are much more gentler on your nerves and skin. It took quite awhile for me to get used to because I was HOTTUB baby for years....but now if I ever get the water too hot, I really can tell the next morning.

I like Physicians Formula make-up too. I have more allergies than I have hairs on my head...so bubble baths, shampoo, soaps, etc....tend to be more bothersome than anything else. So, I run my mildly warm water, I pour myself a nice glass of ice water in a champagne glass, play my favorite soothing music, I have the luxury of living in a place with a window right above the bathtub...and no neighbors, so I love opening the window....and feeling the wonderful breeze, listening to the music, and melting into my tubby!! I pour just a little of Neurtrogena Body Oil (unscented) into the water and when I'm out....I'm as smooth as a baby's battuttie, and I sleep like a baby too!

I believe that relaxing is so very important to managing our lives with lupus or just managing life period. Having the opportunity to share our frustrations, our joys, our cries of help....is such a relief for all of us!!
So, I'm off to my tubbie time, and cheers to all of you; be well....be good!

Much love,

09-03-2007, 02:03 PM
Ummmm....sounds nice, Browneyegirl! I am STILL a HOTTUB babe! But, the temperature is set lower than it used to be, and I like it best when it's cold outside. (Winter in Minnesota makes that pretty easy!) We haven't used it much this summer, although my husband could sit in it every night! Now that fall is upon us, we've been venturing out there after dark, as the temperatures drop into the 40s or 50s. Winter's best, though. It's really nice when there's snow on the ground, a full moon, stars and a gentle breeze (but no colder than 10 degrees!) Wonderful!

PS - we live in the middle of nowhere with no visible neighbors, so we can go in the tub 'buck naked' after dark - so much more relaxing than a clingy swimsuit! :wink:

09-26-2007, 05:12 AM

Makeup suggestion for the Malar Rash..even Rosacea...works for any skin color tone...whites, olives and browns.

First blend a primer over the clean face. QVC..Models Prefer brand Primer is great. I love primer..it fills in the pores and flaws. Then, if you dust a bit of green powder, pale green like light mint green ice cream. Dust it over your facial rash before applying your foundation (powder or cream). Green tone counteracts the redness.

You can get a green color compact at your local pharmacy..or they also make it in a cream base in a tube form or compact. Purchased at the same pharmacy. Or QVC...MODELS PREFER has a great creamy green concealer in a compact form.

Then I add rogue at the outer edge of my cheekbone to blend it all in with the rash, if any redness show throw the green. The focus on the eye draws it away from the fatty cheek where the rash is...

Practice, start with a little and see how much you need...dab, blend, dab, blend. Fingers warm the makeup and applies it heavier...sponges give a lighter finished look for the creamy products.

If using powder use a light airy brush and not a short tight compact one. Light airy brush, somewhat like a feather duster shape apply less color in one sweep...tight compact add intense color in one sweep.

My paint is my makeup, my face is my canvas...I love to draw and paint. Not just my face but real paper on an easel. Self-proclaimed artist, but it has been a spell since I broke the tools out and colored the world as I see it.

Enjoy coloring..