PDA

View Full Version : What is the life span for a person diagnosed with Lupus?



tigerfan
03-10-2004, 09:09 PM
I was diagnosed with Lupus back in Sept. 2003 and have been on Prednisone and Methotrexate.....then Prednisone and IV Cytoxan (because of my Kidneys) for 5 months. Now it will probably be Prednisone and Imuran. So far the meds are working and I'm feeling pretty good. But I've been reading on the internet that people with Lupus probably will live about 10 years after they have been diagnosed because of complications related to the Lupus.

I was just wondering if anyone on this board had been diagnosed with Lupus for over 10 years?

I'm hoping what I read was wrong and any help would be appreciated........

Saysusie
03-11-2004, 08:41 AM
Tigerfan;
I was diagnosed with LUPUS in 1985...it is now 2004 and I am still kicking. In my case, I had no organ invovlement as I was diagnosed and started treatment quickly (by quickly, in the Lupus world, I mean within a year!).
The prognosis, as you said, depends heavily upon the symptoms and the type and extent of organ involvment.
There is no real "set-in-stone" time line for life span once a diagnosis has been made...there are far too many variables. You should also consider the fact that you may be one of the lucky ones who goes into remission!!
My advice, continue to take your medications, continue to make your health a priority, exercise, eat well, alleviate stress, and live a love-filled and loving existence!!
Peace and Blessings
Saysusie

Missy
03-11-2004, 10:09 AM
And I read on the Lupus Foundation website that 80-90% of those diagnosed live a normal lifespan. I think that sounds pretty good!

tigerfan
03-11-2004, 12:33 PM
Saysusie,

Thanks for the reply. I think your forums are very informative and it does give me a sense of comfort that I am not alone. I don't even know a single person who has lupus. So when I was diagnosed, I was pretty scared......because I didn't know what to expect.

Thanks for helping us to know more about lupus.

All the best to everyone.

Saysusie
03-14-2004, 05:26 AM
Tigerfan;
You are more than welcome :lol:
That is why we are here; to provide comfort, support and information. Most importantly, to let you know that You Are Not Alone and that we understand!!

Peace and Blessings
Saysusie

pinkjmf
08-08-2006, 01:14 PM
How are you today ????

MARYCAIN
08-08-2006, 01:44 PM
There is a lady in my local support group who was diagnosed over 20 years ago and she is still kicking. Some people go into remission - others can control their disease with meds, and new treatments are being researched all the time. So I plan on living to be the crazy old lady in the neighborhood!

pinkjmf
08-08-2006, 01:49 PM
I'm with you Mary. I want to live life to the fullest. My dad died at 49 yrs old with cancer and I am going to live for the both of us.

sisterloudjoy38
09-26-2006, 02:30 PM
My brother had lupus for 26 years. Now I have it. Unfortunately, my brother passed away March 2005. He couldn't afford his medicines anymore. That was caused his death.

Lynn
09-26-2006, 02:43 PM
SisterLoudJoy

My sympathies on the loss of your brother.

I don't know if it is OK to recommend books, but I have found Peace in the Storm by Maureen Pratt.

They say your life changes once you get your diagnosis. I found out on January 6, 2003. So I am rather new to the disease and this forum.

MARYCAIN
09-26-2006, 02:56 PM
I'm very sorry to hear about your brother - I lost an older brother to cancer two years ago - it makes a hole in your heart that never quite heals.

sisterloudjoy38
09-27-2006, 06:50 AM
Thanks for all the encouragment. I went to take a MRI this morning. When I got there I couldn't do it. It was to tight. I tried. It was very hard. It takes 45 mts and I could be held closed in for that long.

Saysusie
09-27-2006, 09:46 AM
Sisterloudjoy
I am so sorry to hear about the loss of your brother. I know, all too well, how such a loss can have a lifelong affect on you and your family. The pain never goes away, it never gets better....we just handle it differently with the passing years!!

With reference to you MRI...could they not offer you a sedative? They gave my mother a sedative for her MRI because she had the same issues as you. She was then able to complete the test.

I wish you Peace, Grace and Blessings
Saysusie

sisterloudjoy38
09-27-2006, 10:27 AM
I had a sedative. I was uncomfortable with taking it. I called the radiologist and she told me that it was open and it look like a donut. She didn't tell me it was tight. They would have to put me completely asleep to take one. I don't even know if I want to try again.