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kabape
08-12-2007, 03:12 AM
Hello everyone

I'm Karen form Denmark. I'm 52 years old and was diagnosed for Lupus a year ago. I have tried to keep up my job as a teacher, but recendly I have given it up. I will try to get a pension but nothing is OK about that yet. I must try to accept and learn how it is to live with Lupus now. It is a big change for me, because I loved my job and it will be a change of identity.
But I know that I will find a new one. Maybe this is a start. :)

Greetings from Karen

TERIOD
08-12-2007, 04:50 AM
Hey Karen how ya doin, welcome to the forum :D

Maggie17
08-12-2007, 10:35 PM
Hi Karen,

I can relate. I had to give up a job I loved 3 years ago as a paralegal/mediator. The high stress, long hours and florescent lighting did me in. It took me a long time to deal with the loss of my "identity". I still don't know what to say when people ask me what I do. We were blessed with a beautiful baby girl last year and that has helped. I also found a passion for art that I didn't have time to pursue when I was working. It is very easy to let depression lead to isolation and a downward sprial from there. Because of my limitations with the sun/heat, I constantly battle feelings of isolation and depression. My advice for what it's worth is to try something new and keep trying new things until something clicks. Even if the body isn't willing, it keeps the mind from turning to sludge.

Cheers Maggie17

Saysusie
08-13-2007, 12:31 PM
Hi Karen :lol:
Welcome to our family. I, too, gave up a job, due in part to my Lupus and the Illness of my daughter. I did find a new employment (well, I am self-employed!) and I no longer miss the job I had before. Anyway, I hope that you are able to find something that you feel is just as rewarding as what you were doing previously.
We are all here to help you in any way that we can. I am glad that you decided to join us!

Peace and Blessings
Saysusie

kabape
08-14-2007, 01:23 AM
Dear Maggie 17

Thank you very much for writing. I have been a teacher since I was 17 and I loved it. It is quite a choc for me to have to let this job go. I know that somewhere it the right decition for me. I haven't realised that I had to let the desease rule my life. Welll - I'm a bit stubbern and I thought that the docters shouldn't tell me what to do.
Right now I know that I will find ways to create a new life with the desease.

Greetings from Karen


Hi Karen,

I can relate. I had to give up a job I loved 3 years ago as a paralegal/mediator. The high stress, long hours and florescent lighting did me in. It took me a long time to deal with the loss of my "identity". I still don't know what to say when people ask me what I do. We were blessed with a beautiful baby girl last year and that has helped. I also found a passion for art that I didn't have time to pursue when I was working. It is very easy to let depression lead to isolation and a downward sprial from there. Because of my limitations with the sun/heat, I constantly battle feelings of isolation and depression. My advice for what it's worth is to try something new and keep trying new things until something clicks. Even if the body isn't willing, it keeps the mind from turning to sludge.

Cheers Maggie17

kabape
08-14-2007, 01:31 AM
Hi Saysusie

Right now I'm happy that my children are grown up and that I only have to take care of my self. In a way it that is a releaf. I know that I will find some other things to do.

Greetings from Karen


Hi Karen :lol:
Welcome to our family. I, too, gave up a job, due in part to my Lupus and the Illness of my daughter. I did find a new employment (well, I am self-employed!) and I no longer miss the job I had before. Anyway, I hope that you are able to find something that you feel is just as rewarding as what you were doing previously.
We are all here to help you in any way that we can. I am glad that you decided to join us!

Peace and Blessings
Saysusie

Oluwa
08-14-2007, 05:18 AM
Hi Karen,

Welcome.

Change, a forced change is so hard to do. We reluctantly accept while kicking and screaming as the event takes place. Wondering will we ever feel like a productive person again? You will.

You may wander aimlessly in search of a new you at times, but I like to think of it as discovering who I've always been. Finding my hidden talents, and revisiting others that I left behind as my career advanced.

For me, though I don't give much back to society now. Monetarily I do, charities but of thy self..not yet. I just don't feel so reliable yet, with my wellness being so unpredictable at the moment. I've let the last year and half building of our new home, pool installed, landscaping fill my days with excitement, stress and fatigue. It is all good.

In between, my self fulfillment has been with art, photography, writing, gardening and most recent swimming.

With children, are there grandchildren? More available time with children and grand ones is a plus, eh?

Time to concentrate on you, your health in the long term if you haven't been already.

Find self employment with a hobby and go for the thing that you always wanted to do, but didn't feel it was lucrative, financial supporting. With a pension you can do it now. I "retired" on my annuity.

Just some thoughts to think about while finding a new you..

Welcome to wehavelupus.com. Lots of wonderful people and with you makes one more great person added to the mix.

Be well, Karen,
Oluwa

Oluwa
08-16-2007, 09:37 AM
Hi Karen,

Did you notice you have a new message in your Inbox...I replied to your PM.

How's life in Denmark today? USA, here in the southeast..Hot. I am alive...enjoying my day with my body....you?

Be well,
Oluwa

leelee07
09-30-2007, 06:18 PM
Hi everyone my name is leelee I am a mother of three I was diagnosed with lupus when I was 29 years old.

Saysusie
10-02-2007, 02:16 PM
Hi Leelee :lol:
Welcome to our family. You said that you were diagnosed when you were 29. How many years have you had Lupus? How are your symptoms right now? How are you doing on your medications?
It is wonderful that you have three children. Are they of an age where they can understand your illness?
I am happy that you found us and that you decided to join our family. Please remember that you are not alone and that there is always someone here to answer your questions, provide understanding, give you support and give you information!

Peace and Blessings
Saysusie

Oluwa
01-22-2008, 04:38 PM
Hey Karen...

Here I am..I've been answering your emails. I couldn't forget you....

Love,
Oluwa

sick n tired
01-22-2008, 10:42 PM
Hi Karen,

I also am a teacher (grade school) and have had to give it up. I am 45, (actually my birthday is in teo weeks so I will say 46).:-) I was diagnosed last October. It has been a real adjustment for all of us.

For as long as I can remember, teaching is all I wanted to do. At the moment, I am not even able to substitute teach..........We all have been hit with a new reality. I may be wrong, but I think we might go through the same stages of grief. I know that our family is having to find out what normal is for us and now it is going to have to encompass lupus and all that it means.

Maybe, when you get the flare in remission, you might be able to teach part time. Of course that depends what ages you actually teach. I don't know what the future holds for me in that area. There are times that I do not know my name.....

May God bless you,

Karen