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4sons
08-08-2007, 03:54 PM
Hi ..

My name is Ruth, I'm 52 and from MI.

Within the past three weeks I have had HORRID tingling/numbness in my arms and legs (now also in my face). I went to my doctor who said it was anxiety. A week later she prescribed Xanax (which I don't take). I FINALLY got her to refer me to a neurologist and he noticed that while I don't have "diffuse" neuropathy I DO have damage in my lower left leg. I get an MRI tonight and am having blood work done to test my ANA.

Four (and two) years ago I had "fever of unknown origin" with sore hands, sweating, and a huge weight loss. Both times it started with a bad cold/sore throat. Four years ago it lasted three months and two years ago it lasted sixw weeks. Two years ago I lost a good deal of hair three months later.

I have been sick again for a month ... weight loss, anxiety, tingling and low grade fever. I am so exhausted I can barely get out of bed and haven't slept more than three/four hours a night for a month.

Can any of you relate to this?

Thank you SO much for your input. I am a single mom, a teacher who is SUPPOSED to start back to school in two weeks, and TERRIFIED!!!! There is no WAY I can feel like this and teach 27 kids!

Saysusie
08-08-2007, 06:16 PM
Hi Ruth :lol:
Unfortunately, your symptoms could be the result of several auto-immune disorders. The problem with Lupus (and most auto-immune diseases) is that the symptoms mimic those of other diseases. That is why it is not uncommon to find that most of us have several auto-immune illnesses at the same time (such as Lupus+Fibromyalgia/ Polymyositis + Raynauds/ Sjgoren's + Rheumatoid Arthritis)....anyway, you get my meaning, I'm sure!
Most of us, prior to our diagnosis, have determined that we suffered from symptoms for many, many years before we were finally told what diseases we had. It appears that you are (and have been) going through the same thing. I cannot tell you what you may be suffering from, but it certainly does sound like an auto-immune disorder. The fevers and hair loss could be symptoms of Lupus - the tingling and numbness in your face could be shingles (which are also often seen with Lupus patients) or even symptoms of dermatomyositis/polymyositis; the sore hands could by symptoms of lesions due to Lupus or arthritic pain due to RA. As you can see, there is no way of knowing what your symptoms actually are until your doctors run tests and do lab work.
I can tell you that, no matter what the diagnosis, over stressing yourself will invariably worsen your symptoms. Please try not to stress too much!
We are here to help you in any way that we can and to provide you with as many answers as we can! I wish you the very best!

Peace and Blessings
Saysusie

4sons
08-09-2007, 05:10 AM
I don't know how not to stress about this.

My urine is dark and smells. I have NO appetite and am losing a RIDICULOUS amount of weight.

I just don't know where to turn.

TERIOD
08-09-2007, 05:35 AM
I cannot STRESS ENOUGH ABOUT NOT STRESSING, find and recieve some help from someone to help you make it through this time, stress alone will make things 100% WORSE, I have done this and it put me in the hospital, and i dont mean to scare you, but right at this point in time you have to stop and learn how to create an atmosphere that doesnt effect your health, I can tell you're a very busy lady and as you have not had a clinical diagnosis yet, that doesnt stop the fact that you show symptoms of an imunicological disease and while none us of are doctors we can see the handwriting on the wall, not to say that there are a few that are quite knowledgable such as saysuzie above,

it is time to step back and take several deep breathes

please give the area of the country you are in maybe someone on this forum is close and can give you a hand


I really hope you're not an english teacher, i know ive made mistakes
:lol:

Best wishes Terry

TERIOD
08-09-2007, 05:36 AM
I don't know how not to stress about this.

My urine is dark and smells. I have NO appetite and am losing a RIDICULOUS amount of weight.

I just don't know where to turn.

And one more piece of advice,,,,,,,see a doctor soon about this,asap

4sons
08-09-2007, 06:23 AM
I'm in West Michigan. I am going to see my GP right now. Something is terribly wrong. I am going to BEG for complete testing.

cheryl_v
08-09-2007, 07:02 AM
Good luck, let us know what doc says.

Missy
08-09-2007, 07:10 AM
I think that's a great idea (to get to a doctor). Keeping track of your symptoms is important in trying to find the problem. The dark urine, smelly, losing weight is definitely something to tell the docs, as Terry said.

Also, I know they mentioned anxiety, but have they checked your blood pressure? When I had high blood pressure (due to Lupus kidney problems), I felt the symptoms of anxiety from having high BP. It's a bizarre and "wrong" feeling.

Best of luck and let us know how the doctor appointment goes.

TERIOD
08-09-2007, 09:19 AM
yes please let us know how everything turns out

4sons
08-09-2007, 09:44 AM
Ok .. I had the following tests run with the past 48 hours:

ADA
RA
SED rate
CBC
2 blood cultures
ESR
stool sample
CPK
Thyroid with C3 and C4
Lyme titer
SPEP

An EMG which does NOT show diffuse neuropathy but does show nerve damage to my leg.

An MRI of my left leg.

Hopefully I should know SOMETHING within a couple days. We did check previous lab work and when I first got really sick five years ago they did NOT do an ANA. Grrrr.

TERIOD
08-09-2007, 11:35 AM
how was your blood pressure???and are they going to do a protenuria test?? they should

4sons
08-09-2007, 12:27 PM
My blood pressure was good ... 117/84

Protenuira ... I'll ask for one next time.

The urine was to be "cultured if indicated" but I do see a test for "24 hour protein." I'll ask next time I go in ... next Tuesday.

TERIOD
08-09-2007, 02:10 PM
24 hr is proteinuria test

4sons
08-11-2007, 07:27 AM
Three more days until my tests all come in and I am having such a hard time coping. My arms/legs/face tingle so MUCH and burn much of the time. My fever comes and goes (fine in the morning but increasing by noon) ... it's low grade but sooo bothersome.

Are any of you who deal with this single and middle aged? Have any of you had to take time off from work because of this? My doctor told me last week he couldn't imagine I'd be able to start school because I'm so exhausted.

I move in slow motion ... yet am all keyed up inside.

Does this sound familiar?

Blessings -
Ruth