View Full Version : Dysautonomia

07-10-2007, 01:11 PM

I've had Dysautonomia for a long time (I am almost seventeen years old at the moment, but have had this condition since I was approximately ten years old). I was just wondering if anyone else here on the Forum has this?

Thanks and keep well! :)

07-11-2007, 07:03 AM
What is Dysautonomia?

It looks like several of us have viewed your post, it could be the others who have are not familiar with it either. Can you fill us in?


07-11-2007, 10:15 AM
Dysautonomia (alsoknown as Riley-Day syndrom) is a malfunction of the autonomic nervous system.

An autosomal recessive disease of childhood characterized by defective lacrimation, skin blotching, emotional instability, motor incoordination, total absence of pain sensattion and hyperflexia; Seen most often in people of Eastern European Jewish ancestry(Aahkenazi Jews). Its's considered rare in the general population.

Its an inherited disoreder that effects nerve function throughout the body.

Hopes this helps, sorry :oops: I love to read anything.

07-11-2007, 10:35 AM

Sure! :)

It's best explained through these links:

http://www.dynakids.org/ (best link)



Cheryl_v is partially right, but there are many different forms of Dysautonomia and there is far more to it than just that. She speaks of a particular form, but there are many others, which are very different.

Does this help?

Keep well! :)

07-11-2007, 11:15 AM
Thanks for the info. I also found a foundation - http://www.ndrf.org/ - that has information.

How amazing and complex are we human creatures! The upside of that - it is a wonder and a miracle. The downside of that - so many things can go...differently. I'm not going tro say "wrong," just differently.

(Just like I call lupus a CONDITION, not a DISEASE)

Many hugs,

07-11-2007, 12:40 PM
Hello, sorry. I should of stated that there were other forms. I'm just most familiar with this form. My mistake. Of course there's lots more symptoms too. Sorry, I'm like a walking dictionary at times. I actually read it when I'm out of books. :oops:

07-11-2007, 01:20 PM

Thanks, Hatlady! :)

No worries, Cheryl_v! :wink: That's what people say about me sometimes, but that's probably because I have Asperger's Syndrome! :lol:

Keep well! :)