View Full Version : Hi ~ New Here w/a question

07-09-2007, 03:26 PM
Hi, my name is Susan. I'm 39 yrs old and have not yet been diagnosed but am suspecting I could possibly have Lupus.

I have been feeling extreme fatigue for a few years now. Some nights (and I have a laid back desk job - so it's not work!), I will come home and tell my husband that I have to lie down RIGHT NOW. I will sleep for an hour or two and wake up just fine. But the need to lie down is overwhelming, and I feel so weak. (I've been telling him for awhile that I feel like I have something seriously wrong with me.) I finally asked my GYN to order a full blood panel, and the results came back today. I have to go back for more blood work on Monday.

My white blood cell count was "extremely low" as were my hemoglobins.

As far as symptoms go, I have had a lot of pain in my right elbow for months now, even though I never did anything to injure it. I have had hair loss, extreme fatigue, lots of bruising, sores on the roof of my mouth (off and on), and pain in my chest sometimes when I walk just a few feet. I have had some problems with my vision lately, too. Also, I don't know if this would be Lupus related, but for about a year now, my legs itch *LIKE CRAZY* at night. I will rub lotion all over them but I scratch them almost to the bleeding point. Nothing helps, and it drives me insane. About a week or two ago, I woke up with pains in my legs that felt like I had something biting me. Not sure what that would be, but it hurt and kept me awake a good part of the night. (Stinging pain.... very sharp and sudden.)

I have never had a face rash and I don't seem to have a lot of sun sensitivity. I mean, I get very uncomfortable and kind of faint feeling, but no nausea or rashes or anything.

As I said, I go back next Monday for more bloodwork and then they said they may refer me to a specialist from there.

Do you think I'm worrying for nothing, or does it sound like typical symptoms?

My mother had rheumatoid arthritis and Lupus runs on her side of the family (cousins)...

Thanks for letting me ramble. I'm just very confused right now!


07-10-2007, 10:15 AM
I cannot tell you if you do or do not have lupus. I can, however, give you some explanations of some of your symptoms as they relate to Lupus. I want to caution you about attempting any kind of self diagnosis. Lupus mimicks a lot of diseases and your blood work can indicate any one of these auto-immune disorders. However, you should also ask you doctor to test your blood sugar levels as many of your symptoms could also be indicators of diabetes (blurred vision, leg itching etc.)
With reference to Lupus,please know that the diagnostic process for Lupus (and most auto-immune disorders) can take months to a year before you get a definate diagnosis. However, please know that you can come to us at any time to ask any question, address any concern or just to vent your frustrations. We are here to help you in the process as much as we can!
Anyway, here are the explanations:
A) hair loss, extreme fatigue, lots of bruising, sores on the roof of your mouth (off and on), and pain in your chest.
Skin problems are very common in people with lupus and some people have SLE as well as DLE (Discoidal Lupus). Some skin rashes and sores (also called lesions or ulcers) are very specific to lupus, while others can occur in other diseases as well. Mouth ulcers are lesions and are also commonly seen in lupus patients. Nose and vaginal ulcers may also occur.
Many lupus patients lose hair because of discoid lesions. However, some lupus patients may develop a temporary, generalized hair loss due to the disease, this is almost always followed by the growth of new hair. Hair loss may also be caused by infection (common in Lupus) or by use of corticosteroids or other lupus medications. A severe lupus flare could result in defective hair growth, causing the hair to be fragile and break easily.
Fatigue is one of the commonest and often the most disabling symptom experienced by individuals with systemic lupus erythematosus (SLE) and affects up to 80% of patients with Lupus. The fatigue is so extreme that it can make it nearly impossible for the patient to maintain normal activities. Patients often feel exhausted even before they get out of bed in the morning. Although lupus fatigue may sound similar to that of the chronic fatigue syndrome, that condition is clearly distinct from lupus since it does not share features such as the antinuclear antibody or the other signs and symptoms of lupus. Other common systemic signs of lupus are a low-grade fever, generalized aching, weakness and nausea.

B) Problems with vision:
Lupus can cause a range of problems related to the brain or central nervous system, including headaches, seizures, dizziness, vision problems, behavior changes or stroke. These can be serious and should be brought to your doctor's attention right away. The eyes may become red, sore, and dry. Inflammation of one of the nerves responsible for vision may cause vision problems, and blindness can result from inflammation of the blood vessels (vasculitis) that serve the retina.

C) Legs itch at night with stinging pain.
If your legs are itching with no signs of a rash, raised red spots or any form of uticaria, then the chances are that it is not related to Lupus and there may be an underlying condition (as I mentioned before, such as Diabetes) that you should have immediately checked.

I do hope that this has been helpful to you. Please see your doctor about your symptoms to get a correct diagnosis. I wish you the very best and come to us at any time!

Peace and Blessings

07-10-2007, 12:46 PM
Hi SW68!

Welcome to the Forum! :D I'm glad that you found us! :D

Please just know that anytime you need advice, support, information or just to vent or chat, we're all here for you!

With regard to the vision problems, is there a history of Glaucoma in your family? Either way, it would be a good idea to have your eyes examined by an Optometrist/Ophthalmologist. Here is some information on Glaucoma:




I hope that this helps!

Keep well! :)

07-10-2007, 03:20 PM
Wow, thank you both so much for that wealth of information. I really, really appreciate it!

I know it does takes months and sometimes much longer to diagnose; I hate that it's so hard to figure out! Seems like so many people suffer seemingly endlessly until they finally get that diagnosis. Awful!

YES, my mother had glaucoma so that's worth checking into. I did have an eye exam about a year ago but it's probably time for another. Thank you for mentioning that.

I will find out about the blood sugars; I had asked my dr to do a full blood panel (would that be included, I presume??) but I don't know what many of the results were. In fact, I'd like to stop by the clinic and request a copy today or tomorrow. I am wondering what all of the results were, not just the ones that they mentioned! I am due to have more specific blood work next week on Monday, and then they said they might have to refer me to a specialist. One day at a time, I guess.

Thanks again so much, you two ! I appreciate all of your help. :)


07-11-2007, 10:39 AM
It's only a pleasure! :)

07-11-2007, 12:08 PM
You are most welcome :lol: