View Full Version : breathing problems

morning star
06-13-2007, 09:01 AM
Does anyone have any breathing prob's? Mine started out really slow about 6 mo's ago and hasn't improved yet. I've been to my PCP, Pulmonologist, ER, I've taken Albuterol inhaler, Asmanex and just tried 2 weeks of prednisone and I finally felt wonderful, but now after being off of it for about 3 days, my breathing has gotten worse again. The humidity and heat seems to make it even worse, my chest hurts when breathing in but not all the time, the ER told me I had anxiety which my pulmonologist told me that was incorrect and said it was asthma. My question is what is my diagnosis? I have constant shortness of breath which will get worse and a little better throughout the day it doesn't matter if I'm sitting still or what and it also seems worse after I eat(maybe I shouldn't eat so much, haha) I have to take my Albuterol all the time and it doesn't do much good. It feels like my lungs are restricted and maybe infected for lack of a better word, I did also have a croupy kind of cough with no production but after I started the Asmanex this did improve and haven't had this since. I think I'm going to request a PFT test or CT Scan. Anyone have similar prob's? If so what is wrong with me. Thanks. :)

06-13-2007, 09:17 AM
I just dealt with the same symptoms you just listed. I couldnt breathe, had a croupy cough but it was dry, felt like a brick was on my chest and I couldnt shake it off. I went to the dr and took a breathing treatment while in the office. That didnt help, so they put me on a medrol dose pack (steroids), antibotic and a cough med. I too have asthma but she said that this didnt sound asthma related that it was more lupus related. That there seemed to be a lot of inflammation she looked in my nose and said that was swollen too. Imagine that lol. I felt fine after I got the steroids in me but its been 3 days since Ive been off of them and I am wheezing and starting to feel heavy chested again. I cant spend my life on steroids. I know what you are going thru and its nothing comfy. I hope you find peace and comfort soon.

06-13-2007, 02:37 PM
I've been there. My pain would shoot through shoulder areas of the chest.
I found it perplexing. The pulmonologist said the nerves run up that way too.

Albuterol, pain meds and steroids. 2 1/2 years later it mostly cleared up.
But, I still have to take the Medrol every other day. Just less of it.

Definitely, follow up with your doctor. Don't suffer longer than you have to.

06-15-2007, 05:23 PM
hi there morningstar. i'm not a doctor, but my sle began with breathing problems, and i continue to deal with them because my sle is focused on my heart, lungs, and brain involvement. do you, or have you been diagnosed with lupus?

it sounds like you either have pleurisy, or the sle is in the lungs, like me. "Pleurisy, also called pleuritis, is an inflammation of the pleura, which is the moist, double-layered membrane that surrounds the lungs and lines the rib cage. The condition can make breathing extremely painful, and sometimes it is associated with another condition called pleural effusion where excess fluid fills the area between the membrane's layers" (from http://www.webmd.com/a-to-z-guides/understanding-pleurisy-basics ).

many people with sle have this because sle is all about tissue inflammation. i do hope this helps.

be well :wink:

06-16-2007, 06:04 AM
Everytime there's a respiratory 'bug' passed around in my office, I pick it up and end up with breathing problems that take a long while to go away. My SLE started (well...at least the first really obvious symptom) was pericarditis, and that and breathing or respiratory stuff has been my primary problem ever since. I don't have a lot of other symptoms, so I guess sometimes that's just where the inflammation has chosen to attack. So far, no asthma, but pleurisy and pneumonia - I feel for you all. It can be debilitating.


06-19-2007, 10:10 PM
Sounds like everything I had, and I was diagonosed with Pleurisy. Take asprin or tyenol to bring down the inflammation, that's what my docter got me to take.

Not much you can do except if you smoke, you're going to have to stop, and take your medication.

morning star
06-20-2007, 02:13 PM
Does anyone also have chest pain(burning) in lung area when walking I do, it almost feels like I'm having heart failure or something.

06-21-2007, 04:52 AM

I have Asthma and also suffer from Pleurisy and very bad cases of Costochondritis, which cause the most excruciating chest pain.

I suffer repeatedly from terrible attacks of Bronchitis, which shock my Paediatrician/Paediatric Cardiologist (I am sixteen years old) and I recently had Pneumonia, which made me VERY ill.

So far this year, I have had: Bronchitis, Bronchitis, Whooping Cough (yes, I was vaccinated against Pertussis, but I got it anyway), Bronchitis, Pleurisy, Bronchitis, Pneumonia and Respiratory Syncytial Virus, which went straight to my chest. My Costochondritis is pretty much permanent, so I won't bother to include it in this list.

Since the Pneumonia, my chest has never recovered. I have been short of breath for approximately two months, despite being on Ventolin (two puffs at night and when needed), Inflammide Novolizer (Cortisone inhaler, used twice daily) and my Nebuliser, containing Combivent. I also inhale regularly with Friar's Balsam to try and open up my chest. When I have Bronchitis/Pneumonia/very bad Pleurisy, my Paed./Paed. Card. gives me Prednisone, which really helps.

It seems that my Asthma has been completely out of control since the Pneumonia and I just don't know what to do anymore... Some days, my chest is alright; other days, I'm cyanotic from lack of Oxygen.

I hope that your chest problems improve soon, Morning Star!

Keep well! :)

morning star
06-26-2007, 12:52 PM
Well I obtained my med rec's from my pulmonologist because my Rheum appt is next week and they want all rec's. I have a question about something that was noted, the Dr said JVD or thyromegaly is noted. I understand what thyromegaly is(a thyroid prob-however I've been tested for this and show no prob's). I believe JVD is Jugular Venous Distention. But my question is what is a result of possible pericarditis/myocarditis/endocarditis or cardiomyopathy or something else given the above listed symptoms associated with my breathing. Thanks.

11-04-2007, 10:53 PM
lungs were brought up so here's background for question/problem:
first, i've never smoked, seldom drink, athletically active since childhood: tennis, backpacker, paddler, hiker, touring biker, etc. undiagnosed juvenile arthritis into widespread adult rheumatoid, which i've stubbornly worked through regardless of pain, osteoarthritis - ditto; dupy-something in hands - ditto; bad carpal tunnel surgery on both wrists - that's enough for now - i'm beginning to feel ill. i've taken 2 medications for decades and don't want any more.
a few months ago i became short-winded going up or down the stairs. started panting after even a 25' walk. finally my partner insisted i get a chest xray and he took me to get one. after the x-rays dried i was ordered into hospital that afternoon. x-rays, mri, more x-rays, scans. result (after three days and the cost of a decent car): the right lung, only the right lung, was filled with over 2 litres of fluid, which was drained, analyzed and found to be noncancerous. (i concluded they drain from the back so you don't see the garden hose sized needle they use.)
my fear was that my cutting, grinding and polishing rocks and welding (which i love) - with dust exhaust system - had caused the problem, but i was told that would affect both lungs.
no prognosis from all the tests, scans and x-rays. left hospital. breath shortness returned in less than a week. my partner returned me to dr. an x-ray showed the right lung had filled to capacity again. on our way out instead of a diagnosis, the dr. handed me a 6 month of 'scripts for lasix and potassium - and another bill.
I do not want to start a treadmill of specialists and bills, nor do i want to return to hospital, but having only half of the oxygen my brain and lungs need has affected every facet of my life has depressed and frustrated me beyond describing. i cannot work or even market for groceries - my partner is neither a shopper or cook
after endless searches for the one lung recurring effusion problem - mostly googling - (being computer illegitimate) without finding any results even close; i could spend a fortune using even just some of the medical sites. before i stand on an expressway ramp holding a sign with my question, i'll try here.
now the question: has anyone heard, experienced, dreamt, read, or seen the same one lung effusion condition anywhere, anytime, from any source?

11-05-2007, 07:45 PM
My daughter (to whom this site is dedicated) had pleurisy and pulmonary hypertension..both at different times and each time, in one lung! She was put on high doses of prednisone and NSAIDs to reduce the inflammation, reduce the fluid that had built up and to ease the pain.
Both conditions are common in Lupus patients:
Pleural Disease (Inflammation of the lung lining) ;
This is a disorder of the lining of the lung (pleura) and is the commonest manifestation of lung involvement in lupus. Inflammation gives rise to pleurisy, a type of chest pain characterised by sharpness, which is worsened by breathing in. The pain has a knife-like quality. this sort of problem has been recorded in about half of all patients with lupus. It may also occur without giving rise to any symptoms and has been seen in many patients who do not recall having had any chest pain at all. If the pleura does become inflamed then fluid may collect. this is normally small volumes and it is unusual to get large collections around the lungs.
The fluid that collects around the lungs in patients with lupus has certain characteristic abnormalities which may assist the doctor in diagnosing what the cause of the fluid is. In all patients other causes of fluid in the lungs needs to be excluded. the main lines of treatment are non-steroid anti-inflammatory drugs but small doses of oral steroid tablets (Prednisolone) are sometimes required to effectively relieve the pain. More aggressive treatments including surgical removing of the lining of the lung are, fortunately, rarely needed.

6. Pulmonary Hypertension (High blood pressure in the lungs):
Severe high blood pressure within the lungs is rare but mild cases are much more common. The most common complaints are shortness of breath on exertion and a chronic cough. Fatigue is another common but difficult to assess symptoms. It is thought that there is a strong genetic contribution to the development of this condition. there are a large number of treatments which can be tried, but none are terribly successful.

Here is a web-site that explains all of the ways that the lungs can be involved with Lupus: http://www.infotech.demon.co.uk/Lung.htm

I hope that I've been helpful :)
Peace and Blessings

11-09-2007, 07:40 PM
I was diagnosed with a condition called upper airway dysfunction long before I was diagnosed with lupus. I also get mild asthma so when it first started happening they just upped my asthma meds but they didn't help.

I don[t know if it is secondary to lupus or totally unrelated. Does anybody else have this - it's also referred to as vocal chord dysfunction.

Regards, Kaz :P