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delibean
06-06-2007, 08:42 PM
Hi everyone!

My name is Del, I am a 32 year old...soon to be 33 Stay at home Mother. My Husband and I have 2 girls. Clara is going to be soon and Carys was 3 in January.

It was a year Jan since I was diagnosed with SLE. I have been in total denial until now. I am now really able to accept that this will not change. I have the support of my Husband and Family. My friends are still trying to figure out what it is.

I go to my GP and Internal specialist often. I am on meds but they are still trying to get the right dose and RX...

I am on Naproxen now ( after Arthrotec and Hydroxychloroquin) but it is not working for me either. I think the next step from what the Specialist said last week was moving to the Prednasone....

I have horrid R/A that is bi lateral in both arms and knees. I had my gall bladder removed in Jan of this year so I am also on Chlostramin...on top of Zoloft.

I do not do much, but this Aug marks a year of me being a local skater with my Roller Derby team...I love it...gets me out of the house and with a bunch of girls that I can have fun with.

Looking forward to getting to know you all

Del

Oluwa
06-07-2007, 03:17 PM
Hi Delibean...

Welcome. I go by Oluwa. I am new too. I have found a wealthful of information and wonderful people here and so will you.

Currently, I am on Plaquenil, and I think I have found the right regime form me. Your turn will come, Deli. Hope soon.

Keep well,
Oluwa

IloveHistory
06-07-2007, 05:56 PM
Hi Delibean!

Welcome to the Forum! :D I'm really glad that you found us! :D

Please just know that anytime you need advice, support, information or just to vent or chat, we're all here for you!

Keep well! :)

Saysusie
06-08-2007, 01:41 PM
Hello Delibean and welcome to our family :lol:

Saysusie

Henry
06-11-2007, 02:40 PM
I do not do much, but this Aug marks a year of me being a local skater with my Roller Derby team...I love it...gets me out of the house and with a bunch of girls that I can have fun with.
Del

Roller Derby! That's awesome.
I play Disc golf every Sunday (when able). I pay for it every Monday,
with extra fatigue, stiffness, and muscle ache. But like you, I get out,
enjoy the outdoors, get some exercise and best of all, see my friends.

chichibug
06-11-2007, 05:28 PM
Hi Delibean,

Welcome to the group--I am pretty new here, too, and have found a lot of support and information here.

I too have SLE, and autoimmune vasculitis. I have unrelated heart issues (electrophysiological, valves leaking, and now variable heart failure.) Lately docs seem to be leaning towards adding Wegeners Granulomatosis (sp?), too. Oh boy, another thing to add to the list. haha.
I am currenly on Plaquenil (have been for years), Vytorin, Doxepin, Flonase, and now a new med for orthostatic hypotension due to weakened heart muscle. I take Advil for mild pain, and Ultram for moderate pain... I take 'rounds of Prednisone and antibiotics from time to time, as needed, too. For now this regimen seems to work. (although "work" is a relative term haha) Oh, and I recently bought a Far-Infrared sauna that I use daily that makes me feel tremendously better. (I can close my hand now--2 weeks ago I couldn't have done that.)

I am impressed that you can still skate. I wish I had that sort of energy. I used to do bodybuilding and heavy exercise, but had to give that up long ago. <sigh> I miss it!

Have a "best" day,
Kristin