View Full Version : Any people here in their 20's and 30's??

05-26-2007, 03:22 PM
Just wanted to know if anyone around my age is affected with this. I go to the Rheumy and everyone stares at me b/c I look so young. Or maybe I am paranoid!!?? Probably the latter. I don't know. Most of the people in the waiting room look to be 60+. I guess I am having a hard time dealing with this at such a young age. I feel like my life has been flipped upside down, ya know? NOONE at ANY age should have to deal with this!

Take Care :wink:

05-26-2007, 04:46 PM
Ashley, women your age are one of the largest groups of people affected by lupus. Go to the Lupus Foundation of America website and read about lupus. I think you'll learn a lot there. www.lupus.org

Here's what they say about the demographics of lupus:
"Although lupus can strike men and women of all ages, 90% of individuals diagnosed with the disease are women, and 80% of those afflicted with systemic lupus develop it between the ages of 15 and 45."

As far as who you're seeing in your rheumie's office, I expect your doc treats lots of folks with osteoarthritis and rheumatoid arthritis - that could be why there are a lot of older folks there!

So, know that you're not alone! There are lots and lots of young women on this forum (I'm not one of them...I'm one of those oldies!) I'll bet you'll get some replies from the young women here who can relate to what you're feeling.


05-26-2007, 08:00 PM
Thanks Jody,

I will read up on it! I am soo nervous about all of this and my rheumatologist wants to monitor me for the next year and see what is going on...she can't 'Diagnose' me as of yet. The waiting and the unknown kill me!!!

Thanks again 8)

05-27-2007, 10:47 AM

I know how you feel. I am 26 and suffering with Lupus. I hear a lot of people telling me I am "too young" or that Lupus is an "old lady disease". Neither Statement is correct. Yes I am young. but Jody is right OUR age group is the most common age group for diagnosis. I hope that the doctors are able to figure out what is the matter. Keep us posted! Ruth

05-27-2007, 02:54 PM
I had symptoms when I was a young teenager. I "dealt" with them (telling myself for years that I was lazy or weak...) and had many miscarriages, and then two traumatic childbirths (resulting in awesome kids, though!). I had many surgeries, with many complications. No one ever even discussed autoimmune problems...
When things became so bad that they couldn't be "ignored" any longer (by me or the doctors) and I couldn't even walk... well, then they sent me to a rheumatologist... who gave a verbal diagnosis of MCTD / Lupus but didn't want to put it in writing (due to life insurance/medical insurance issues). Finally he had to, and it was "official about 4 years ago. (I am now 39...)
My daughter sees the rheumatologist regularly, too--and she started when she was 14. She has Raynauds very badly, and has positive ANA's, etc. My older daughter has borderline positive ANA and some skin rash. (She only has a yearly checkup with the specialist...)
Anyway, yup--you're in the 'normal' age range.
Welcome to the "you don't look sick" club.

05-28-2007, 09:34 AM
Hi! I'm 29, too. Actually, I'll turn the big 3-0 in just a few short weeks. I know what you mean about the doctor's office. At my nephrologist's office, it seems I am alwasy the youngest by at least a half-century.

I think younger people are also less likely to get continuous treatment for lots of reasons, too: they don't want to think they're sick, have a busy lifestyle or kids and don't want to take the time to get all the labs/appointments, may be healthier compared to their older counterparts, etc.

But, I'm trying to stay the healthies possible for the longest period of time, so I'll be at the doctor's office as often as needed!

05-28-2007, 12:44 PM
hey, I'm 19, and definitely know what you mean about the dr's office. When I go in for infusions at the rheumy, I'm usually the only one there that looks under 40 at least. Don't have as much trouble at the nephrologist's, there hasn't been anybody in the waiting room, but I can imagine how uncomfortable it would be!

I just try to ignore the curious stares and do what I'd be doing if I had my own private room for the infusions.

06-05-2007, 05:50 AM
Hi tbird,

Im 19 and i havent yet been diagnosed, like you i have been told to wait and see what happens, ive been told i could be waiting for years. Im not quite sure what she is looking for or what i should be expecting, this causes huge frustrations :roll: but i live everyday the best i can and try and keep positive.

I see an eye specalist and every time i go in the nurses make some comment on my age and people are always staring at me, my rheumy isnt so bad as there isnt as many patients and i usually try and get the first appointment.

06-05-2007, 06:46 AM

When I go to the Rheumatologist I feel like I am the youngest looking too. I am 46. Hummm...maybe the other patients look at me and say... she looks like a young 60.

Keep well,

06-06-2007, 07:00 AM
I'm 23. I was diagnosed with Lupus when I was 15. It isn't just an old woman's disease anymore.

06-06-2007, 12:00 PM
I am 30 (since February) so I'm right there with the rest of you guys :)

06-06-2007, 08:49 PM
I will be 33 in Aug...told I had SLE when I was 32....

06-13-2007, 09:08 AM
I just turned the big 3-0 in january. Seemed like my body has started to fall apart since then. Actually it was falling apart before then but turning 30 didnt help. I used to laugh at ppl when they said 30 was such a big deal and so depressing, UNTIL I turned 30, trust me I wasnt laughing lol

06-17-2007, 09:31 AM
I'm 19 as well, and every time I go to certain doctors (heart and skin mostly) I get stared at, too. I sound like an old woman when I talk about how I'm feeling, but I still look really young! grrrrr But yeah, I think I know how you feel, even if I don't actually have Lupus (not sure at this point!).

06-23-2007, 07:14 PM
I'll be 28 in August. I really could care less about how old the folks are in the waiting room. WHat really frustrates me, is the attitude that I've obviously become lazy & lost my will to meet my capabilities, when in REALITY, I push myself to the brink of my capacity, ever single day. It really makes the effort that I put forth, feel invalidated.

06-30-2007, 06:00 PM
Well i turn the big 40ty in september.But as a child i was always ill,and i remember having painful joints,only to be told it was just growing pains.

07-06-2007, 05:26 AM
Interesting, because I was 37 when I was diagnosed and the doctor said I unusually old to be getting Lupus!

07-17-2007, 04:46 AM
i'm 25 and was diagnosed at 17, but had mild problems since I was about 8. I've been through the whole course and am now dealing with the transplant, and steroid long-term side effects.