05-25-2007, 11:48 AM
Hi ya'll i'm 21 years old & ever since the 6th grade i've had pain around my joints & major fatigue. I used to miss school often b/c of the prior days p.e. activites leaving me in so much pain the next morning. I was sent to Shriners Childrens Hospital in KY & they did blood work & said they thought i had jr. RA. As i got older the problems i had got worse & new symptoms began to appear. I had shingles at a very young age which is unusal and now that i'm older i have extreme fatigue, extreme pain arount my joints that seems to start at the joint & spread outward, headaches, fevers, hair loss, i get cold very easy, have a very hard time gaining or keeping on weight, swollen glands when i'm not sick, irregular periods, mouth ulsers that appear only on the roof of my mouth every now & then before a flare, mood shifts , photosensitivity, a very mild pinkness over my nose & cheecks that doesn't disappear & looks brighter when i'm in cold weather, a rash on the back of my arms and top of my legs which isn't acne, etc. Then when i was 20 i got pregnant & all those symptoms got 50% worse & new ones came along.. i had a dry mouth all the time & had to keep drinks by my bed at night, viginal dryness, my heart started feeling like it was catching in my chest like it was skipping beats or like i was about to have a heart attack, but since i'm only 21 i was thinking it might have something to do with pericarditis, i also started having kidney infections so bad it hospitalized me when i've never had one before & i was drinkin tons of water, my legs started giving out easily, etc. some have disappeared & some have stayed even after i had the baby. After the baby my hair loss has come back & gotton worse.. i want to cry every time my hair falls out in the shower & have to pull it off my shirt all day. I've been to 1 internist & 2 Rhumies & many physicans. They all have done thier own blood work and my ANA always comes out a little elevated but thats it. My thirod is fine too. The doc.s never spend anymore then 5 minutes with me, rush me out of their office, won't take the time to listen, and treat me like i'm crazy.. it frustrates me so bad i almost cried last time i went cause i feel like i keep hitting dead ends! The pain goes away for a while & then always comes back again like flares & it gets so bad sometimes i can't bare to walk. The pain seems to go from one joint area to the next then jump to the other half of my body. When i asked the doc. about lupus & if he had any info about sjogrens they try to run the other way! Their all very rude & treat me like i'm stupid. The doc's avoid givin me a diagnosis and all they'll tell me is i don't have arthritis b/c my joints don't swell and ask if i wan't a mild pain med. I tell them no b/c i've tried pain med.s and they don't help at all and nither do NSAIDS and they make me sick. I want to be put on a preventive med. so i don't keep fallin apart but they say they won't cause they haven't diagnosised me.. I have a thousand symptoms & all the blood work in the world! What more do i need before i can get help!? Does it sound like lupus to anyone else? The doc.'s act clueless.. i need advive.. i don't want to keep hurting and it's effecting my everyday life style and makin it hard to take care of my daughter.