View Full Version : Squiggle lines in eyes? Optical Migraines?

04-11-2007, 08:45 PM
Hi all,
Before I was diagnosed in April 05, 6months before, I had these really wierd squigglie lines in my sight, half of my line of vision was crooked, and or I lost sight in half of my eye or had a large black spot blocking my vision. :? I havent had them, until......Well, this happened again this week, twice, they last about 15min each time. The first was followed by a headache. My eye dr calls them optical migraines, do these have anything to do with Lupus? And has anyone else had these?
Curious, :roll: Kim

04-12-2007, 03:47 PM
Hi, Kim, I have these, and unfortunately they don't seem to be phased by my normal migraine meds. I'm not sure of any connection to lupus, although mine do seem to get worse when I'm having a flare. Being tired or short on sleep seems to trigger them too.

04-13-2007, 07:02 AM
Ditto.....Have had them for over 20 years...and sometimes I lose half of my vision....anyway...I take an imatrex and pain meds...that seems to help some. God BLess

04-13-2007, 08:36 AM
an optical migraine is different from typical migraines because they also involve an aura/ vision disturbance that usually comes before the migraine attack. The aura does not involve pain. The migraine always involves pain, sometimes severe pain. Optical migraines are also known as acephalgic migraine or visual or ocular migraine. The migraines that come with an aura are rarer than common migraines. Normally you will have the vision disturbance for a period of 5-20 minutes. These disturbances seldom cause any permanent damage or mpairment to the eye. The auras or visual disturbances vary from patient to patient, and can even change from headache to headache. I have found nothing that links optical migraines with Lupus, other than the fact that many of us suffer from Lupus Migraines. However, these migraines are quite different from typical migraines.

The appearance of an aura usually occurs before the beginning of migraine pain. It can appear in different forms, which include blind spots, flashing light or bright colours, zigzagging lines or other geometric patterns. It can also include "floaters", which are very small objects that appear to float across the eye in a repetitive manner (This is what occurs with mine). These strange disturbances may also cause dizziness and nausea, a feeling of confusion or a sense of imbalance. These symptoms may occur in one or both the eyes.

For me, I have found that the best thing to do is to lie down in a dark and quiet room. I usually put something cool over my eyes or forehead. I stay there until I can go to sleep because that is the only way that I can get rid of the aura. However, I do have prescription medication that my doctor has given me for those times when the pain is unbearable or when it is impossible to stop and lie down!
Prescription medications either can be given on a day-to-day basis, to act as a preventative measure; or can be used at the first appearance of an optical migraine, to decrease or even eradicate the later symptoms. There are a number of treatments available to reduce and even eliminate the number of optical migraines you can get.

Here is an interesting tidbit I found when researching optical migraines:
"It is believed that Lewis Carroll (1832-1898), the author of "Alice in Wonderland", suffered from optical migraines. Possibly, it was his fascinating aura, in association with a pictorial imagination, which brought him to invent a world of disappearing cats, shrinking people, and talking flowers. Today, many physicians refer to the "Alice in Wonderland Syndrome" when talking about the diversity of auras that can take place during an optical migraine sequence."

Peace and Blessings

04-13-2007, 09:39 AM
:D Thanks, Saysusie!
I have read a bit about these visual migraines. Funny, sometimes I dont get a headache after(good thing).
That was interesting about Lewis Caroll- Maybe I should take note during my aura, and write a book like Harry Potter!!!!! :lol:
Thanks again for all the great information and support you provide to all of us!

04-15-2007, 12:40 PM
You Are Most Welcome...That is why we are here, to help!! :lol: :D
Let us know when your book is published, I'd like to see what great visuals your optical migraines conjure up (lol)

Peace and Blessings

04-15-2007, 12:53 PM
I've always loved Lewis Carroll, but I didn't realize his migraines were the inspiration for his writings - I always assumed he probably tippled a little too much from the wrong bottle. So I guess we should be grateful for his migraines even if ours are a royal pain. I wish I could get some writing inspiration from somewhere - I definitely need it this week.

05-14-2007, 08:22 PM
I've had optical migranes a lot latly, and I'm experiencing a lupus flare as well. At first i was a little scared when i saw the auras thinking there was a problem with my retinas or something. It's nice to see that I'm not the only one that has had this kind of stuff happen. I wish you the best.

05-15-2007, 02:10 AM

Lewis Carroll also had Epilepsy and some of the things which he wrote about in 'Alice in Wonderland' (which I've always LOVED!), were what he experienced during his pre-seizure auras. Perhaps he had Optical Migraines as an aura before he had a seizure?

Just thought you might be interested! :)

Keep well! :)

05-15-2007, 10:04 AM
I too have these and it really used to scare me before I realized what was going on. I would have these black spots that would spread out like I was moving through a tunnel or someting and zig zag lines; white with black tails or vice versa...kinda like little comets. I am glad to hear others have this.I really thought I was loosing my mind!!

With love

05-15-2007, 11:59 AM
I get these, too--can lose most of my vision--not that it's "blacked out" but just "gone". not black, but gone. It can effect one side of the vision or the middle (that's really funny, to see your husband but he has no head LOL!). I do not have pain with mine.

I do have spots in my vision that do not ever go away. There are now 3 of them, in a triangle, in my right eye. The opthamologist says he can see them. He sent me to a retinal specialist, but there isn't any cause for alarm yet--but they did tell me to watch out for signs of retinal detachment, because that's the next step. It seems that the vitreous gel of the right eye has liquified and that's a "problem" LOL...

Leave it to me to be the "one" with the problem.. haha

06-06-2007, 07:58 AM
I have these too. I get the "blindspots" which chicibug described as not black, just gone. I too have the headless husband syndrome LOL!

Sometimes instead of the blindspots, I have "snow vision" like tv snow. Like everyone else I've been told by my Ophthalmologist that these are aura migraines. I've been given imitrex and if I take it as soon as I start losing spots of vision, seeing spots or just feel the pain coming, it will often stop the migraine dead in its track and leave me with the same mild headache I have all the time.

So I'm really contributing nothing to the conversation, except this: When I get the blindspots, I have traveling numbness. Often this starts with one half of my hand (i.e. ring and pinky fingers) then the feeling comes back and the back of my lower arm is numb, then my upper arm then all of a sudden my cheek and then my nose. This is the most bizarre symptom I've ever had and I always think I'm having a stroke! I have been assured by my GP and my Ophthalmologist that this truly is one more symptom of an aura migraine. Still so odd...