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View Full Version : ATTN; THE FIGHT OF MY LIFE....PLEASE ALL READ



stjames13
03-18-2007, 10:47 AM
:oops:
HI ALL,
I can only apologise for all the past times recently I have had a health issue and could not be here....thought I had it under control and then something else would happen.

WEll as ALL of you KNOW I am the ONE WHO ALWAYS SAYS KEEP ON FIGHTING and NEVER EVER GIVE UP....

I must sadly tell all of you that I am now IN THE FIGHT FOR MY LIFE !!!
AND FOR THE FIRST TIME SINCE BEING IN VIET NAM I WILL ADMIT

I AM SCARED TO DEATH !!!! :oops: :( :shock:

MY LUPUS has gone FULL BLOWN, my kidneys are slowly not working properly,my heart has put me in the hospital several times in the past few months and now my liver is acting up again.

There is NOTHING I PERSONALLY can do except try to keep fighting and give it to the DOCTORS AND GOD !!!!!

I AM SORRY To tell you this for I have always tried to be the VOICE OF POSOTIVENESS AND WELLNESS.

_Please forgive me for not being to here for you recently, but now I am forced to have to put certain things in order

My GORGEOUS BEAUTFULL HEARTED WIFE is always FIRST IN MY LIFE
Then comes me and my health problems and then everything else.

It has KILLED me to have to give up a chance back at my musical career to now go into the FIGHT OF MY LIFE AND FOR MY LIFE !!!!

I LOVE THE BLUES FOR...I AM THE BLUES

I sincerly care for each on of you and hope you are all well,

I have done well since being diagnosed in 1989 but it seems age and not living such a pure life while I was young has taken it's toll and is now making me pay for my stoopid choices and ways.

GOD alone knows how this will end and with his help I will win this fight..but what was once always manageable for me has now gotten so far out of control I do not know if I am coming or going.

We will soon find out....

I promise to be on the board as much as possible as I go through this fight which is taking it's toll on me everyday more and more.

What kept me going was always a STRONG MIND and willingness to fight, but age and being so tired of always fighting has put me in the hands of doctors and GOD now.

DO NOT feel sorry for me ....for my life has been a good one and is NOT OVER just.....a mess and beating the he11 out of me right now and I felt as if I owe you all an explination.

I CARE FOR YOU ALL......and PROMISE TO CONTINUE TO FIGHT and come on as often as I can which will be more than usual but I can NO LONGER promise GOOD NEWS..or that POSOTIVE STATE OF MIND.

I am tired and now need you......and know I can look to my friends here for that help.
That is one thing I know is that we can not do this alone we need FRIENDS.!!!!! :wink:

But this world has made us all go into our own corner and shut the door for we are all afraid of whom we talk to or tell something....
Well if ther is one thing I know is that we all need LOVE and we all need a
FRIEND ..so please take that chance and make a friend....it makes this all so much easier.

SINCERLY YOURS
StJames

MARYCAIN
03-18-2007, 12:17 PM
James, you have been and always will be a warrior! And you know you are in the hearts and the prayers of everyone here. Take that strength you have shared with all of us so often, and focus it on winning this battle with lupus! You are surrounded by so many people and animals who love you, let that love be a warm and healing balm for your body and your soul. You can come through this - I believe you will.

Hugs, and many prayers - for you and your beautiful wife.

widgelli
03-19-2007, 12:02 AM
James , I can only wish you all the very best in this battle.
As for your wife, I can really relate to what she is going through, as beside the lupus that my husband has, he has also had a battle with cancer and for the moment all is well there, but we live from day to day with the knowledge that it could recurr.
My thoughts are also with her, as it is at these times that you wish you could change things and also help, but as there is little you can physically do, I always feel so useless and I am sure that she can relate to this.
All the very best.
Jo[/b]

littlered
03-20-2007, 08:47 AM
St. James, you are in my thoughts and prayers as well. Get better soon, friend...love, Kathy

IloveHistory
03-20-2007, 08:52 AM
Hi St James

Please know that we are all praying for you and that you are in our thoughts...

God bless you...

stjames13
03-20-2007, 11:41 AM
:oops:
HI and Thank you all

I spent yesterday at and ended up staying overnight again at the hospital.

They flushed my KIDNEY's several times and gaveme bags of water to keep flushing them alomg with some nasty anitbiotics that made me violently ill.

Still this am I could not urinate and will have to go back tomorrow morning to go through the same thing again.

They have tripled my LUPUS meds,and are carefully watching that my liver does NOT come out of remission....I was already given LAST RIGHTS for my liver due to liver cancer in 89 when I was diagnosed with SLE.....

The HEP C is active but manageable....it seems to all be coming down to when back in mid December when my UNION I retired from changed insurance providors and they would NOT give me most of my meds as NONE said anything about LUPUS and since you are not dealing with DOCTORS but CS REPS who go by a book it took 7 weeks for me to get my maintainence meds which put me in a MAJOR FULL BLOWN BREAKOUT

THEY WILL PAY BIG $$$$ should I live or not for this....as they were told it was a LIFEOR DEATH situation and I needed those meds to stay alive but they still put me through the BS and red tape and mademy DOCTOR FIGHT along with my attorney FIGHT to get me my meds and they were told then I was already coming after them....now I am coming BUT NOT ALONE !!!!!!

I have always taken care of my wife and I will ensure she has enough money to live as she pleases if this takes me and if it doesn;t well then I'll get a bit less but THEY WILL PAY so NO ONE has to go through that BS again to get medications that KEEP THEM ALIVE !!!!!!

I am very tired and sick to my stomach and my eyes are very blurry....

So I must go now as I am expecting a DR"s call and do not want to tie up the line.....but as promised I will keep in touch.

IF anyone can get ahold of SUZ please ask her to call me....

Thanks to all
I'm fighting ,but I am just so tired....... :oops:

LOVE YOU ALL

St James 8)

Pretti in Pink
03-20-2007, 03:03 PM
Hello stJames,

I never chatted with you prior to this but I can definetely feel your hurt, frustation and tiredness through your story. I want to encourage you to keep your faith, pray for strength, and only focus on your health right now. The serenity prayer if very fitting for you now: God grant me the courage to accept the things I can not change; courage to change the things I can and the wisdom to know the difference.

You will only magnitude your health issues stressing yourself out with what the union did, once you're better you can handle them and as my grandparents also said, "there's someone who sits high and looks low and does not sleep or slumber". God sees and hears all and fights on our behalf even when we don't realize it.

Two months after i was diagnosed with lupus, while i was pregnant, i had to deliver my baby early (which he did not survive) and two days later i was on dialysis. I also had heart problems and pleurisy.

I got off dialysis in December and I although my lupus is still very active, i am not as bad off as I was. GOD is still in the healing business and answers prayers.

Don't give up! Be encouraged!!!!!!!!!!!!!!!!!!!!!!

stjames13
03-21-2007, 07:45 AM
PRETTI IN PINK....

I am so sorry to hear of your loss of such a young angel.... :(

You're right I have to focus on getting better not fighting anyone or being mad !!!!!

It's usually I who is giving the advice, as I have been lucky enough to maintain and keep this at bay for a long time....but I guess all along I knew this day would come eventually.

I am off to the hospital again to be flushed though I did manage to have some kidney function this am...just a few drops but that is more than what I did have.

I just need to know my liver is ok and today I'll find out if the ENZYME numbers have dropped or at least stayed where they were.
That is what worries me the most..... for if the liver cancer awakens I doubt I cn go through that again and I am so far at the bottom of the transplant list I'll never get one in time.

Then after all that is under control or when I am strong enough they can check my heart to see if I need more work done or is it the LUPUS constricting my arteries again....if that's the problem they will have to do a MAJOR bypass this time.

Thanks for the kind words....I needed that.

Well I am off to the hospital for another day of water and discomfort.

Sincerly
St James 8)

Pretti in Pink
03-21-2007, 09:30 AM
you're welcome. A few drops are better than no drops. I remember when i was in the hospital and i went days w/out being able to use the bathroom. I hope your treatments work well for you and hang in there.

I will continue to pray for you and your family.

MARYCAIN
03-21-2007, 11:17 AM
James, I hope it never comes to the point of needing a transplant, but if it does, with the new techniques available today, it is possible to have a liver transplant from a live donor like a sibling or even a spouse with the same blood type. So you wouldn't necessarily have to wait on the UNOS list. A lady I work with just had a live donor liver transplant last year and she is doing very well now, so it can happen!

angela
03-21-2007, 09:41 PM
hang in there James! my prayers are with you and yor family. as you know, we all know how hard and tiring the 'fight' can be, or is. we are with you.

xoxo
angela :wink:

stjames13
03-22-2007, 05:50 AM
:oops:
HI all,
Well yesterday's treatment left me drained and very nauseaus.

I can NOT eat and am basically living on ENSURE PLUS.

Still unable to urinate and am geting very sore fo r the CATH to drain me!

The antibiotics seems to be doing something I guess it is all a matter of hanging in there and the waiting...I am just so tired !!!!

St JAmes

I am due at the hospital again tomorrow morning for another draining !!!

Missy
03-22-2007, 09:04 AM
Sending you ((((hugs)))) and healing thoughts.

mnjodette
03-23-2007, 12:44 PM
Prayers and good thoughts your way, St. James. You ARE a fighter - we all know that. Keep focused on the healing power of prayer and the love of friends and family (and dogs!)
Jody

Saysusie
03-26-2007, 09:06 AM
calling and calling you...busy signal. Just gonna keep re-dialing until I get you!!!!!

Saysusie

browneyedgirl53
03-28-2007, 08:49 AM
Oh St. James - the tears I can't hide !

As I read your posts and the posts of ALL those who have responded to you - brings tears of comfort, tears of relief, and tears for a man who has so courageously shown us how to LIVE a life out loud and with gratitude.

You inspire me and encourage me - as I read through your post about music. I wonder - could it be my friend, that your being HERE is music to us - that your sharing has become a soothing salve for our ears, for our hearts....and keeps us marching to a tune that you have so courageously whistled in our ears "don't give up, give your all"; don't cry for me - cry for grace. Music is a language that God gave us to glorify Him, it is the only language that is understood by everyone!

Let your soul sing of every moment that you have an opportunity to breathe, to see all the beauty that this crazy world still has in store for us. Sing about the love that keeps us strong, a love that keeps the worries at bay - because we know.......that love in it's purest form is music for our souls.

I hope that wasn't too "out there".....I love you and am grateful that you are here. Stay strong, hold on - it's okay to be tired - rest, relax and keep the faith. God has a plan for you my friend, and without a doubt He knew we ALL would need you here. Please know that you are in my prayers, and yep, I'm gonna put my records on and dance for everyday I wake up - it's cause for celebration.

Much love,\
Browneyedgirl

msdawnie44
03-28-2007, 02:17 PM
James,

My thoughts and prayers are with you. God be with you and your family. Hope you feel better soon.
dawn

joyce dous
03-28-2007, 02:44 PM
i am so sorry i/m new at this but i will try. my prayers r with u. i/m a fighter too but sometimes there/s nothing left to fight with. i know this damn diesease . i/m having trouble now with my stomach and adominal i/m getting scope on monday . i have tickets to fl. 4 wed wondering if i will make it . when i/m done with this then its time to get kidneys ck. blood in urine. i/m not as bad as ur but i spend 2 times a yr in the hospital. don/t give u p u will beat this take care hope ur doing better today god bless joyce

stjames13
03-29-2007, 01:03 PM
8)
ALL MY FRIENDS
SPECIAL THANKS TO BROWN EYED GIRL AND SUZ

THANK YOU ALL FOR YOUR UNDERSTANDING AND CONCERN.
THOUGH THIS FIGHT IS TAKING ALL I HAVE I MUST TELL YOU :
WITH FRIENDS LIKE YA'LL
1..I WILL NEVER GIVE UP !!!!
2..THE BLUES ARE MY LIFE AND
THIS IS ALL JUST TO GIVE ME MORE LYRICS ,AS THE TRIALS AND TRIBULATIONS OF LIFE IS WHAT GIVES ME THE INSPIRATION THAT HAD ALLOWED ME TO MAKE 3 ALBUMS AND MAKE A LIVING OUT OF WHAT I LOVE THE MOST....MUSIC !!!
3..THOUGH SOME MAY SAY....
HOW CAN YOU STILL BE POSOTIVE???
TO THEM I MUST SAY...WHAT OTHER CHOICE DO I HAVE???
GIVING UP IS TO EASY
FIGHTING FOR WHAT YOU BELIEVE IN WHETHER IT BE ON A BATTLEFIELD OR IN A HOSPITAL..
YOU ALLWAYS FIGHT FOR WHAT YOU BELIEVE IN.
I BELIEVE IN YOU PEOPLE HERE....
I BELIEVE IN LOVE...
I BELIEVE THAT WE GO THROUGH CERTAIN THINGS TO FORM THE PERSON THAT WE ARE TO BECOME
4...I BELIEVE THAT A WARRIOR IS ALWAYS A WARRIOR EVEN WHEN HIS SUIT OF ARMOUR IS LAID TO REST.
5..I BELIEVE IN ME...
I BELIEVE IN US....
I BELIEVE IN MIRACLES....
I BELIEVE IN MY WIFE..........

SO SHED NO TEARS FOR ME.....
FOR I KNOW I WILL WIN ONE WAY OR ANOTHER.
FEEL NO SADNESS FOR ME
FOR IT IS GOD'S WILL THAT WILL CARRY ME HOME ONCE AGIAIN.

THOUGH IT TOOK ONLY A FEW WEEKS FOR ME TO GET THIS SICK,
I KNOW I AM IN FOR ALONG HARD RECOVERY,
BUT I KNOW THAT RECOVERY IS IN STORE FOR ME.

I HAVE TO MUCH TO DO...ON THIS BOARD,
FOR THE CHILDREN WHOM I GO TO DRUG RE-HABS AND TALK TO...
FOR THE KIDS WHOM I TEACH HOW TO PLAY GUITAR BECASUE THERE PARENTS CAN NOT AFFORD TO PAY FOR THEM.
I HAVE TO GET THROUGH THIS FOR MY WIFE
FOR SHE IS TO GOOD A WOMAN TO BE HURT AND LEFT ALONE.

I SPOKE WITH A CLOSE FRIEND YESTERDAY WHOSE VOICE ALONE LIFT MY SPIRITS JUST BY HER CALLING ME AND LETTING ME I KNOW I AM IN HER PRAYERS.

I HAVE AN ALBUM I MUST FINISH.... AND I WILL NEVER LEAVE BEFORE I FINISH SAYING WHAT I AM TRYING TO TELL PEOPLE ON THIS ALBUM.

SO THANK YOU ALL FOR YOUR SUPPPORT FOR IT MEANS THE WORLD TOME....
AND THOUGH I MAY NOT BE HERE EVERY DAY MY THOUGHT ARE WITH YOU AND WHEN I CAN COME AND I READ ALL THE KIND THINGS YOU PEOPLE HAVE TO SAY TO ME.....

I KNOW I WILL BE ALLRIGHT.

THERE HAVE BEEN SO MANY WAYS I COULD HAVE SUCUMBED IN MY LIFE,
I WILL NEVER GO OUT LIKE THIS OR TO SOMETHING AS DISRESPECTFULL AS LUPUS.....
SOMETHING THAT WON;T EVEN SHOW IT'S FACE AND FIGHT YA FACE TO FACE..
THIS IS A COWARDLY DISEASE AND ATTACKS THE WEAK AND SICK WHO ARE ALREADY FIGHTING DAILY WITH OTHER PROBLEMS.
SOMETHING LIKE THAT WILL NEVER BEAT ME.

AND I GUARANTEE ONE THING I WILL WIN THIS ONE FOR A FRIEND OF MINE NAMED "LADYBUG"....
FOR SHE IS MY FRIEND THOUGH WE HAVE NEVER MET....
SHE HAS VISITED ME IN DREAMS AND IN A DIFFERENT APPEARANCE THAN SHE HAD WHEN SHE TOO WAS FIGHTING
SHE WAS SO DANTY AND SO PRETTY AND MADE ME AND MY FIREND SMILE THOUGH OUR HEARTS AND BECOME EVEN CLOSER.

I WILL WIN THIS FIGHT FOR ALL OF YOU TO PROVE TO YOU THAT YOU CAN LIVE WITH THIS DISEASE...
SURE IT MAY HAVE IT'S TIME IN THE LIMELIGHT AND IT MAY BEAT ME UP A BIT BUT LIKE I SAID IT IS A COWARD AND ATTACKS YOU WHEN YOU ARE NOT LOOKING.
AND LIKE A COWARD ONE DAY SOON IT WILL GO RUNINNING BACK FROM WHAT EVER ROCK IT CAME OUT FROM WITH IT'S TAIL BETWEEN IT'S LEGS
THEN IT TOO WILL KNOW WHAT IT IS LIKE TO HAVE ONE'S A$$ BEAT FOR NO REASON !!!!

I AM BEGINNING TO GET THE BEST OF IT NOW AND I AM GETTING A LITTLE BIT STRONGER EACH DAY...
AND WITH EACH DAY IT IS GETTING WEAKER KNOWING IT WILL NOT WIN THIS FIGHT.

SO THANK YOU ALL FOR YOUR WORDS OF ENCOURAGEMENT,
AND PROMISE'S OF BETTER DAYS.....
FOR I KNOW SOON I WILL BE ME AGAIN AND EVERY TIME I BEAT THIS THING DOWN JUST MAKES ME SMARTER AND MORE KNOWLEDGEABLE ABOUT HOW TO BEAT IT AT IT'S OWN GAME !!!!!

BROWN EYED GIRL...
YOU ARE AN ANGEL AND HAVE AN INSIGHT INTO MY THOUGHTS AND REASONS FOR BEING A MUSICIAN AND A WARRIOR ALL WRAPPED UP INTO ONE MAN....
YOU ARE A SPECIAL WOMAN AND I THANK YOU FOR BEING MY FRIEND.

YOU TOO ARE AN ARTIST IN YOUR OWN WAY AND ONE DAY SOON I HOPE TO BE ABLE TO TAKE SOME OF YOUR WORDS AND USE THEM IN MY MUSIC....

WHEW I AM EXHAUSTED AND MUST GO LAY DOWN,..... :x

THANK YOU, THANK YOU, THANK YOU.... 8)

REMEMBER AS JOHN LENNON SAID:
THE LOVE YOU TAKE IS EQUAL TO THE LOVE YOU MAKE...... :wink:

THERE IS ALOT OF LOVE HERE
THAT LOVE IS WHAT KEEPS PEOPLE LIKE ME FIGHTING AND KNOWING I WILL SURVIVE.

TALK TO YA SOON
LOVE YA ALL :wink:

STJAMES :wink:

Saysusie
03-29-2007, 02:02 PM
OMG!! Isn't he amazing???? Just no words to describe this man huh?
I spoke with James the other day and he believes that his medications are finally starting to have an effect. His numbers are improving (albeit slowly) and he has had good news! No matter how small the good news, it is good news.
I know, in my heart, that he will eventually pull through this. It is just going to be a very long, hard, arduous journey back to some reasonably good health. But, we are here for him and I know that we are all praying for him. Like he and I said the other day "I've Come Too Far for You To Stop Me Now!"

James..........I am ALWAYS here, Ladybug makes sure of that :-)

Peace and Blessings
Saysusie

browneyedgirl53
03-29-2007, 02:33 PM
AMEN AND AMEN TO THAT SAYSUZE !!!

Love you both so much.
Browneyedgirl

p.s. ladybugs fit rather nicely on your shoulders doesn't she? Ladybug and angels - yep my two favorite things with wings (smile).

PuertoRican-mom-of-2
04-01-2007, 10:54 AM
You guys are all amazing. Reading your stories gives me strength to continue to fight this. I pray for all of you. Thank you for being such warriors in the face of this cowardly invader.

Stjames, my prayers are especially with you. You words are amazing.

stjames13
04-01-2007, 11:51 AM
8)
THANKS ALL,
PR MOM oF 2.....YOU HAVE A GORGEOUS FAMILY THERE !!!!!!

THAT WOULD BE PLENTY FOR ME TOKEEP FIGHTING FOR MANY YEARS TO COME !!!!! :wink: :wink:

THANKS FOR SHOWING ME YOUR FAMILY !!!! and for the prayers and thoughts. YOUR husband is ONE LUCKY MAN !!!

St JAMES :wink:

stjames13
04-02-2007, 06:45 AM
8)
BTW PR MOM OF 2

HOW IS ALL WITH YOU ??????

STJAMES 8)

PuertoRican-mom-of-2
04-02-2007, 09:25 PM
Things are Ok. My biopsy earlier this month showed that the nephritis has pogressed to stage 4. I had an MRI/MRA today looking for CNS vasculitis. I should get the results tomorrow. I see my hemotologist Wednesday to get the final treatment plan that my nephrologist and rhematologist have agreed to and will be done at his office scince they are a cancer specialist and I think that the Cytoxin treatments will be easier there than the hospital. I am very afraid. Everything that I have read says that this is the best teatment to slow or stop this, but I am terrified of what is ahead for me and my family. I hate not feeling well and I hate not knowing what the future will hold. I try so hard to stay postive, but I am terrified.

On a happier note. I was lucky enough to have been able to take a family trip to Disney World last week. It was awsome. My cildren had so much fun. Their little faces were filled with such joy and I have the pictures for all of us to remember our magical trip. I also got to be in the audience at the taping of the Ellen Degenerous show that aired today. It was shot on Friday in Orlando. I wanted to stay at Disney forever. It was MAGIC. I have asked my sister to help me change my picture to one from Disney for all to see. I still don't know how so do it myself.

Thank you for asking about me. If feels good to share with people who have been there and understand. I need to go to bed now. Take Care.

Missy
04-03-2007, 09:26 AM
I'm so glad you had a great vacation! I saw the Ellen show yesterday - looked like a lot of fun! How neat to know you were there!

IloveHistory
04-03-2007, 11:02 AM
Hi PuertoRican-Mom-of-2!

I'm SO glad to hear that you had such a fantastic trip and I can't wait to see the picture!

Keep well!

stjames13
04-04-2007, 09:04 AM
8)
IT SO NICE TO HEAR THAT YOU TOO IN THE FACE OF A FIGHT OF YOUR LIFE..... STILL CAN SMILE AMD ENJOY LIFE...

ALL WILL WORK OUT AS LONG AS YOU KEEP YOUR MIND STRONG AND GET THROUGH ALL YOUR TREATMENTS

You seem like you have way to much to give up on this and you will continue to fight and survive just as I have and will be just fine.

Your to nice of a woman to let this get you !!!!
I will be praying for you !!!

On an UP NOTE ABOUT ME.

I am finally able to urinate without a CATH !!! WHEW that was beginning to HURT little ST JAMES !!! :D :lol: :lol: :lol: :lol: :lol: :lol:

Though they are changing as fast as I wouldlike them to my kidney and liver numbers are slowly getting closer to the HIGH end of what is NORMAL.

Our BIGGEST thing now is to get me healthy enough or strong enough so they can check out my heart to see if I do need a by pass or is that auto-immune problem that constricts my arteries near my heart and the small ones in it can be fixed or if I'll need a by pass to avoid anymore of those probelms.

I thank you all for your SUPPORT for IT HAS WORKED and I am slowly beginning to heal...FINALLY after having leasions on my hands which for a GUITARIST is NOT a GOOD THING have begun to closeup and heal.

I have been read the riot act by my respiratory specialist who diagnosed me with COPD then emphysema about 2 years ago told me if I did not STOP smoking NOW he would not treat me.
Ya know I do see his point and understand it is not a healthy thing ,but is it really fair to put the stress of losing a great doctor by use of having to deal with more stress and be forced to quit NOW and be told you'll have to find another doctor !!!!!

Some of these specialist seem to have lost there compassion and bedside manner's.

They can tell you're on the brink of a nervous breakdown and scared to death and it seems they take advantage of that and then talk to you like your a child or below them......that's not right...we all deserve to be treated with DIGNITY at least.

St JAMES 8)

Saysusie
04-04-2007, 01:24 PM
You are absolutely right..we all deserve to be treated with dignity. I understand how you feel, but I truly do hope that you try to stop smoking. Maybe your doctor is feeling a little frustrated knowing that his treatments are for naught if you continue to smoke. I guess, to some extent, I can see both sides. But, from those of us who truly care about you, we hope that you will at least give it a try.
Have you discussed with him some options to help you stop? Surely he does not expect you to just go cold turkey? If he is so insistent, ask him what he is willing to do to help you, especially now when (like you said) you are under a tremendous amount of stress!
Enough of that...let's move on to the good news. Your numbers are continuing to approach normal!!!! Hal...lelujah...Hal...lelujah....Hallelujah, Hallelujah...Hal..Le...Lu...Jah!!!!!! :lol: :lol: :D :)
Also, I am happy to hear that the lesions on your hands are starting to heal. That means that you will be able to get back to the guitar which, I know, soothes your soul.
I am really, really happy to see you here and able to join us again. But, remember...do not overdo...ok?
So happy to hear good news James :lol:
Always
Saysusie

Missy
04-04-2007, 06:13 PM
I'm so happy for your happy news St James!!!

littlered
04-05-2007, 08:24 AM
Hooray, St. James! You truly are a warrior and have encouraged me many times to fight like h#ll...and somewhere, we ALL still have it in us to fight "one more time!"
I too, looooove the blues. This disease certainly gives us all materials to write it!
But this is my favorite song in the whole world. Written by Charlie Chaplin, who found a way through his own sorrow by making the world laugh....

Smile, though your heart is aching,
Smile, though it feels like breaking,
When there are clouds in the sky,
You'll get by.
If you smile through your fears and sorrow,
Smile and maybe tomorrow
You'll see the sun come shining through.

Smile, let your face show gladness,
Hide every trace of sadness,
Smile though a tear
maybe ever so near.
That's the time you must keep on trying!
Smile, what's the use in crying?
YOU'LL SEE THAT LIFE IS STILL WORTHWHILE
IF YOU JUST SMILE!

(maddie already knows this song, I think!)
much love, Kathy

PuertoRican-mom-of-2
04-11-2007, 03:41 AM
I am so happy to hear that things are getting better for you St James. Thank you for your encouraging words. I start Cytoxan today. I am nervous, but you are right, I have too much to fight for.

How long have you had SLE? What is the longest that you have gone feeing well? I would like to hear more of your life story if you don't mind sharing. Thank you for being here for me and others like me.