View Full Version : not so new, just want to introduce myself - thanks in adv

02-27-2007, 12:49 AM
hi there! i'm angela from northern california. i have lupus (heart, lung, brain involvement), vasculitis, and mctd (??). i've been a member for a while now, but just thought it's time to tell my lil ole story. i'm so thankful that you all are here! and i know that God has been with me and my family the whole way...you'll see.

i'm 38 yo married mom of a little 5 yo girl that we all call ladybug. which we think is how the lupus thing started for me. i was very ill and in and out of the hospital while preg with her and the doc's just couldn't figure it out. they'd say 'you're very sick, we just don't know what's wrong exactly...'. i got a bit better after i delivered her, but was still not well. we had a reasonable explaination for every symptom happening, so i just kept on keepn on. then in oct 2003 i got a cough i just couldn't shake and it was an AWFUL and painful cough!! ( i broke 3 ribs :!: ). i went to the non emergency outpatient hospital nearby and they said it was bronchitis first; went back a month later and said it was pneumonia. no one ever bothered to take a chest xray by the way.... so then, i just collapsed in jan 2004. my darling hubby rushed me to the ER in the hospital that we normally would go to and they took me immediately. i was in icu for a few weeks, then critical care for a few more, then they moved me to oncology. they wanted to start me on chemo right away eventhough they still hadn't figured out what was wrong with me. i was and still am very fortunate because i got diagnosed very quickly by an area expert. i only had to go thru 2 crazy doc's :lol:

i continued to try to work. i'm fortunate (and not) to be self employed as a mortgage broker and was able to do quite a bit from home/hospital! but that just didn't work. i was really sick. lupus was in my heart, lungs along with all the other havoc it wreaks. so, trying to work just wasn't working for me! my doc's "forced" me to get disability. god has been in it all.

on my wedding anniversary (oct.3 of last year) i suffered a siezue and fell down the stairs. as a result, i suffer from short term mem loss, continued seizure, severe aphasia, speech damage, and even more mobility issues than before the lupus in now in the brain.

and thru all this in the last short 2 years, god has kept me and my family. it only took a few months to get accurately diagnosed, and by a recognized "lupus specialist" - very little doc drama. applied for and got medicare disability lightening fast and with no problems-REALLY!! god has kept us.

i have my moments. i've been in one long and continously crappy flare :mad: from day one, and at times, i just don't see an end in sight :cry: . my hubby is scared and frustrated, and my little girl is starting to understand what "mommies legs are'nt working right now" really means. and yet, i really am ok. it really could be worse. I AM SO THANKFUL, GREATFUL.

ok, i'm pooped and will turn in now. thanks for reading some of my story.

thanks for being here everyone. i'm here for you :wink:

02-27-2007, 08:24 AM
Thanks for sharing your story. It's nice to meet you and I look forward to "talking" with you again!


02-27-2007, 07:51 PM
Thanks, Angela. I hope it was helpful to tell some of your story. I'm glad to have you with us.


02-27-2007, 11:39 PM
thanks you guys! it did help. it was time. i'd been running. not in denial, just not wanting to have to say anything if i coud get away with it. i didn't really know what to say or how to say it. and it was heavy on my chest. it's gotten to the point now to where i have to say something. aaahhh!!

and like so many more of us, there's even more to the story.... how do you eat an elephant? one piece at a time :wink:

02-28-2007, 12:40 PM
Hi Angela :D
Welcome to our family and to this site which is dedicated to my daughter, Lauri, who we also called "Ladybug". If you will note the bottom of the page, our Beloved Administrator has put a Ladybug on the page in honor of my daughter!
Thank you so much for sharing your story with us!. Your Lupus story sounds like so many of our stories and you are fortunate to have been given a diagnosis so quickly and also to have been approved for disability so quickly (many of us have been denied or are still fighting denials on appeal!). You are also very lucky to have an understanding and supportive family. So, in many ways, you are indeed blessed.
Now, you have found us and everyone here is generous, kind, comforting, informative and supportive. We welcome you and want you to know that we are here for you whenever you need us!

Peace and Blessings