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Lupieleeshee
01-25-2007, 07:17 AM
Has anyone ever heard or tried this or a similar diet? www.linkremoved.com (http://www.linkremoved.com)I was given this link by my father in law. He met a person who has lupus nephritis and was diagnosed with ESRD (end stage renal disease). The guy was desperate to try anything and swears this saved his life. He still has to take medications every day but has been in remission for several years. It's a vegan diet that sounds pretty tough...I'm not sure I could do it or if it is even heathy?

Alicia

Saysusie
01-25-2007, 10:19 AM
It is generally held that any type of restrictive diet is not conducive to managing Lupus or bringing about Lupus remission. I am usually wary of anything that states that you can be symptom free in a matter of months and remain free for a period of years. I am not saying that this cannot happen, I am just wary of products/regimines that claim that they can make it happen.
Now, there are some Lupus sufferers who spontaneously go into full remission or a form of remission and who are able to maintain some kind of remission for long periods of time (I am one such person) and it usually happens with the help of diet, medication, cooperation with health care providers and lifestyle changes.
Also (and this is just my personal opinion), if it is something that truly works, why not provide the information to everyone? Instead, there is a book which must be purchased!! Someone stands to gain financially from this and that makes me pause a bit.
Before purchasing the book, I would suggest that you talk to your doctor about undertaking such a diet and what he suggests as an appropriate diet. But, do be careful with any restrictive diet!!
Peace and Blessings
Saysusie

MARYCAIN
01-25-2007, 12:35 PM
Hi, Alicia - I've been a vegan by choice since my college days, long before I ever heard of lupus. Although I think it's been very good for my overall health, it does require a very different way of choosing and preparing food without any animal products. Think of baking without milk, butter or eggs. And it's never seemed to make any difference in the type or severity of my lupus symptoms - I have kidney and neurological involvement both. And there have been times when being a vegan has actually been bad for me - I had a very time healing after major surgery because I wasn't getting enough protein in my diet. If you decide to do this, make sure you talk to your doctor and talk with a nutritionist to make sure your diet is healthy and contains enough proteins, iron, essential amino acids and Vitamin B12 - which can be hard to get in a strictly vegan diet.

mnjodette
01-25-2007, 07:24 PM
I've probably not been paying a lot of attention to diet (Lord knows I should be.) Saysusie, you've made mention before about being careful of any restrictive diets - meaning that balanced nutrition is the key, right? Sort of the food pyramid kind of thing, or the American Heart Association recommended diet? My cholesterol (total) is way too high (243) so I better start paying attention to what I'm putting in my mouth. I know I can't do the vegan thing - not my philosophy (although I admire the discipline, Marycain.) But, I know I can do better. Any inspirational thoughts or good advice on healthy eating is appreciated.

Saysusie
01-25-2007, 09:42 PM
Mnjodette :lol:
Yes, most diets that I have read, with reference to Lupus, have stated that following the recommendations of the American Heart Association is probably the best diet for us (with the exception of some foods that we should try to avoid). Basically, a well balanced and healthy diet are what is recommended!

Peace and Blessings
Saysusie

Milagro
01-27-2007, 12:31 PM
Dr. Weil uses on his website. You have to pay like $3 a month to access the part of the site that has the info.

Lupieleeshee
02-02-2007, 01:47 PM
Someone gave me a copy of the book in pdf format so if you are interested in reading it I'll be glad to email to you.

kevinjpepper
06-28-2007, 01:41 PM
Please email me the book. My gf has lupus and would really like it.

kevinjpepper at hotmail dot com

thanks a lot

Stacey
07-30-2007, 12:38 AM
I think it's ok to tell you the info... it's just a phone number.
I'm new...

Here's the number if you'd like to listen:
646-519-5800 Pin code (password): 1014 followed by #

One of the Dr's (I hear) ) is a past Patent Review Examiner and Quality Assurance Specialist at the U.S. Patent and Trademark Office.

His wife had lupus, so I imagine he had good reason to do his homework.

Cheers!
s