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IloveHistory
12-27-2006, 02:42 PM
Hi!

I have been having the most awful problems with my bladder and my kidneys for the past eight months; I have passed nine kidney stones in total (and I'm sixteen!) and my urinary tract gets infected approximately every two weeks - I'm being serious! :(

At the moment, I am urinating every ten minutes, my urine smells awful (sorry :oops: ), my urine is foamy and I am in a lot of pain! :(

I know this sounds awful, please forgive me because I am worried, but I seem to be getting a yellowy-green discharge coming from my urethra! :oops:

I have a temperature - 39.9 degrees Celsius (103.82 degrees Fahrenheit) and I think that my electrolytes are pretty low. I feel really, really sick and so weak that I feel as if I am floating and that I might faint! :( I also have a very sore throat and my glands are all swollen! :(

I know that my kidneys haven't been working so well lately and I'm very worried! :(

My colon is also driving me crazy at the moment (I have the worst Irritable Bowel Syndrome that my doctors have ever seen) - the pain is unbelievable and my spleen (it is VERY enlarged) has also been driving me insane with pain for the past few weeks! I am going to see a Gastroenterologist, but that's a little while from now.

I am really worried about my kidneys because they are very sore and I REALLY need to see my Urologist, but he is away until next week and so is my Paediatrician/Paediatric Cardiologist! :( I can't see my G.P.s (two partners) because my G.P.s are a waste of time and practically useless in situations like these because my problems are always too complicated for them and they just chuck antibiotics at me, which I don't even need and which don't even help and then my colon goes absolutely crazy because I have Ulcerative Colitis and the antibiotics strip the lining of my colon! :(

I am just so worried; I desperately need to see my Urologist! Does anyone have any advice for me please?

I am going to try and go to sleep with a hot water bottle now...

Thanks and keep well! :)

MARYCAIN
12-27-2006, 03:01 PM
Hon, where are your parents? It sounds like you might have a blockage or an infection in your kidney which needs urgent medical treatment. How close are you to a hospital that sees emergency patients? I know your hospital system is different from that in the United States, but is there a casualty department or something like our Emergency Rooms? Because with fever and infection, you don't need to wait for care. If your mom or dad are at work, I think you would be justified in calling them! Until you know what's causing this, it's probably not a good idea to take anything. So please get your parents involved right away and get medical care. Please let us know how you're doing.

Saysusie
12-29-2006, 12:18 PM
ILoveHistory;
Please let us know if you got medical attention for your symptoms? They are, indeed, worrisome! Please let us know how you are and what the diagnosis and treatments are!!

Peace and Blessings
Saysusie

IloveHistory
12-29-2006, 04:26 PM
Hi!

I'm sorry to have kept you waiting, but I really haven't been so well...

Yes, I am lucky to have two Hospitals which are very near to me (one is five minutes away and the other is ten-fifteen minutes away). All of our hospitals have Casualty departments, which are open 24hrs, so that's where I go when I need medical attention after working hours.

I tried to urinate on Wednesday night and fainted from the pain, so my mother rushed me to the Hospital. I have a Kidney infection (AGAIN!), so I was given treatment for that, which is helping.

However, my colon has become an even worse problem at the moment. I am unbelievably constipated (sorry :oops: ) and cannot get my colon to work, at all! I have passed one stool, and nearly fainted passing it, which was black as coal and there was blood in the water and on the paper. Today, I have taken two Zelnorms (I take these daily), four teaspoons of Agiolax (I take this daily too), three cups of Duphalac Dry, one cup of Movicol, two Senakots and a 135ml enema and my colon still hasn't worked! I have been in an unbelievable amount of pain, my colon is practically "paralysed"; it just won't move! My colon is so impacted that I cannot eat anything; I just vomit (sorry :oops: ) it straight back up because there is no more space left inside of me! My Paediatrician's partner examined me today and was worried about my colon because there is no movement and my abdomen is so swollen that I look practically pregnant! :( Half of my organs are either swollen, "sitting" on each other or both, so there is practically no space in my abdomen! He told me that I would have to go to Hospital again, if it got any worse and didn't begin to work soon.

Now, my bladder is in a spasm as well, so I am taking Urispas, which is helping, thank goodness! I know that my colon tends to "sit" on my bladder, which causes me a lot of trouble, so that's probably what's wrong there.

We are also worried about my kidneys again because whenever I get dehydrated or have any electrolyte imbalances, my kidneys malfunction until the imbalance is fixed and I am hydrated again (last time that I was in Hospital and this happened, it took five litres :!: of Sodium Chloride and quite a bit of Potassium before we managed to fix the problem!).

We are trying to get hold of my Paediatric Surgeon or my Gastroenterologist because it looks like I am going into Hospital in a few hours (Saturday) and they are probably going to have to "flush" my colon out. Something is very wrong here... We want my Paediatric Surgeon because he is probably going to have to open me up and take a look at all of my organs because something very strange is going on and my spleen is still driving me crazy with pain! :( He operated on my inguinal hernia when I was just a few weeks old and my mother used to work for him, so we've known him for years.

I am hoping that he can help me! My Urologist works just next door to him, so together they will be able to help me, I'm sure!

Thanks for your thoughts and care; I will let you know how it goes and what happens. :)

Keep well!

MARYCAIN
12-29-2006, 04:59 PM
I am so sorry you are having such a difficult time. It sounds like an exploratory laparatomy might be in your best interest - you might have adhesions or scar tissue from your previous surgery causing problems now. No surgery is ever fun, but better than the pain and other symptoms you are having now. You will be in my thoughts and prayers - hope you start doing better soon.

IloveHistory
01-01-2007, 02:40 PM
Hi!

Good news! :)

I have just come out of Hospital and they managed to get my colon to work! :) My kidney infection has cleared up too and I am hydrated again, so I am feeling much better! :)

I am still going to go and see my Paediatric Surgeon when he gets back next week though, as he also practises Paediatric Gastroenterology and we still think that it would be a good idea for him to examine me.

I got my Specialist Physician again, but for some odd reason, she was being very, very nice to me this time?! It's probably because my Psychiatrist phoned her up and put her in her place! :wink: I told her that I have been diagnosed with Lupus, as my Rheumatologist had not managed to send her a report yet, so now she must just accept it and stop arguing about it! She gave me some nice new eye drops for my Sjogren's Syndrome, which is helping, so I'm glad about that! :)

Thanks for your concern and keep well! :)

Missy
01-01-2007, 03:57 PM
I am so glad you are feeling better! I am wishing you increased health in the new year!

IloveHistory
01-01-2007, 06:19 PM
Thanks so much, Missy and the same to you! :)

Happy New Year!

Saysusie
01-02-2007, 12:58 PM
IloveHistory;
I am so happy that you are doing and feeling so much better. We were worried about you!!
Please keep us posted on how you are doing!!

Peace and Blessings
Saysusie

IloveHistory
01-09-2007, 12:25 PM
Hi!

I went to see my Urologist this afternoon and he did a C.T. Scan of my Urinary System, as I was experiencing a lot of pain in my bladder and right kidney. The Scan came out clear though and there are no more stones (YAY! :D), so I am very, very relieved about that! :)

He sent off a urine specimen though and he will phone my mother and I when he receives the results tomorrow. It's possible that I may have another infection (Gees! I should be in the Guiness World Book of Records for this! :wink:). I will let you know what the lab. results are when my Urologist phones.

Does anyone know what it means when they continually find White Blood Cells in your urine?

I have to go off to see my Dermatologist at 09:00 a.m. tomorrow, as she is going to prescribe a special cortisone-based cream for my malar rash (finally! I have the rash at the moment! :(). I hope that the cream works! My Rheumatologist has assured me that the malar rash will disappear within twenty-four hours of applying this cream, so I have high hopes! :) She is also going to prescribe a special sunblock with an S.P.F. of one hundred, which is great! :)

Is anyone else using a cortisone-based cream for their malar rash?

Keep well! :)

IloveHistory
01-15-2007, 09:47 AM
Hi!

My Urologist phoned my mother today and the urine specimen showed an infection, so he has prescribed an antibiotic for that, as well as Ennablex (which he always prescribes for me) for my Overactive Bladder, which drives me absolutely insane when I have an infection because I urinate almost sixty times a day when the infection is particularly bad! :x

I still have some White Blood Cells in my urine though and a little bit of Protein, but my Urologist says that it's nothing to worry about. :)

Keep well! :)

MARYCAIN
01-15-2007, 10:39 AM
Has your doctor done any diagnostic tests to check for urinary reflux, a narrowed urethra, or other anatomic abnormalities that could be contributing to your recurring urinary tract infections? You might also ask your doctor if it would be safe for you to drink cranberry juice daily - normally it is a very safe way to prevent recurring UTIs, but it is not a good idea for people with certain types of kidney stones. So you would need to discuss it with your doctor. Recurring UTIs put you at risk for long-term kidney problems, so your doctors need to be very aggressive in dealing with this problem, and you may need to be on preventive antibiotics on a regular basis. But if you haven't had complete imaging of your kidneys and urinary tract done, it would be a good idea to discuss this with your doctor.

IloveHistory
01-16-2007, 07:12 AM
Hi!

Yes, he has, but he could not find any abnormalities.

I did discuss the Cranberry juice with my Urologist and he encouraged me to continue to drink it on a daily basis, but warned me not to over-do it. :wink:

The problem with long-term anitibiotics is my colon. I am going to see a Gastroenterologist because at first, my doctors could not find any evidence of Inflammatory Bowel Disease, but then they thought that I had developed Ulcerative Colitis, but now, that no longer seems to be the case, as there is only one ulcer in my colon at the moment (well, the last time it was checked, anyway). However, when I am on repeated courses of antibiotics, I start to get blood in my stool, so my doctors are a bit concerned about putting me on long-term antibiotics. I have become immune to a few antibiotics now, as well, which isn't good. :(

Thanks for the advice and keep well! :)