PDA

View Full Version : Pregnancy and Lupus???



tanyaw
11-11-2006, 08:52 PM
Has anyone had a baby after being diagnosed with Lupus? I am curious as I miscarried in May (probably due to Lupus, I had no symptoms but they started soon after) and I really wanted that 3rd baby. I was diagnosed in August after a horrific summer of total crippling pain in my joints but now am feeling quite good. I have the DVT antibody as well as the one for "fetal heartblock". I was told not to think about having kids for another two years until this lupus stuff in under control or gone...I am in total agreement with this but what happens if I accidently get pregnant? Can anyone share their pregnancy experience with me? Should I maybe just say Thank God for my two kids and just put the baby desires behind me. Are my odds against me? Let me know if anyone out there has had a pregnancy after diagnosis....Thanks

MARYCAIN
11-12-2006, 09:50 AM
Hi, Tanyaw - there are a couple of women on the forum who are pregnant now, so hopefully they will be able to share their experiences with you. Having the antiphopholipid antibodies is associated with frequent miscarriages, but knowing you have the antibodies before you get pregnant means the doctors can treat you as a high risk pregnancy from the outset. Many women with APLS take daily aspirin durinig the course of their pregnancies to prevent miscarriage.

You should also talk to your doctors about using two reliable forms of birth control to avoid pregnancy until you are ready for it. Some of the medications prescribed for lupus patients can actually make oral contraceptives less effective. And with your history of APLS, hormones patches, etc. are not a good option for you because of your increased risk of DVT. So talk to your GYN about the best contraception for you, and be sure to let him/her know about the lupus and APLS.

So many advances in obstetrical are being made now that many "impossible" pregnancies are now living, breathing, squalling babies. So don't lose hope - get the best care possible and go from there.

kkelly
11-16-2006, 03:40 PM
Tanyaw
I have 2 kids as well and got diagnosed after my 2nd. I too would love a 3rd.....I haven't been doing well enough to even contemplate though until maybe now?? Anyhow, I will post anything I find related to the topic. I do know that it is best to wait 6mths-1 year after rituxan therapy. I have also had heart surgery in the past year - so not sure if my heart can take it. I guess the biggest challenge in my mind is managing without or limiting the meds. I feel pretty uncomfortable with taking anything that has had limited safety testing for fetal health. I am leaning towards a compact family at this point....grateful they have each other.
Karen
PS My first baby had an abnormally slow heart rate right after birth. It was fine within a few days -could this be the fetal heart block they talk about? We didn't know about the lupus at all at that point....It was really scary though.

atedj
11-17-2006, 12:32 PM
Hi Tanyaw,

Let me tell you that I understand what you mean by wanting that third child. I had two children before my diagnosis in April and had already been trying for a year to get pregnant before that. After my diagnosis when I'd bring up the fact that I someday wanted more kids with my rheumy, he said, "Oh, no, too high risk. You already have a boy and girl. Why do you want more?" Well, my doctor is Chinese, so I think he thinks two is alot.
Anyway, I got pregnant in August as a surprise. I was excited, yet incredibly frightened since I still hadn't gotten the Lupus under control and was on medication. I had to stop all meds except the prednisone right away and was told to make sure to take my Vitamin Bs to prevent a miscarriage (this is also good to do BEFORE you get pregnant).
I am now 16 weeks along and things are going great. I have alot of appointments and see specialists all the time to monitor the baby, but so far everything has been smooth. Of course I'm more sore and tired this pregnancy, but overall my symptoms have actually IMPROVED since getting pregnant. Apparently women with Lupus either get better or worse during pregnancy. I've been cutting back on the prednisone because I don't like the thought of being on meds while pregnant and doing other alternative things to prevent the joint pain and inflammation. So far it's worked for me.
I still have a ways to go in this pregnancy, but I have high hopes that I'll have a healthy baby with no complications. I keep telling myself that I had two healthy babies before, so why should this time be any different?
Sorry this is so long, but don't give up hope of having another baby. And if you do happen to get pregnant like I did, it may turn out to be a real blessing in your life. Good luck!
Angie

MARYCAIN
11-17-2006, 07:02 PM
I noticed in the Ft. Campbell news that the 4th Brigade, 2nd Infantry Division, from Fort Lewis, is listed to be deployed to Iraq during the next cycle of troop rotations. I know your husband is stationed at Ft. Lewis - I hope he's not affected by this deployment. Hope you are still doing well with your pregnancy and feeling okay! Any info about the baby's sex yet, or is it still too early?

atedj
11-18-2006, 12:34 AM
Yeah, that's my husband's unit. We are trying to get reassigned to be near family since I've been sick and need help with my kids. So hopefully we won't be here when they get deployed. But they say that they wouldn't deploy him anyway because of our situation. We'll see.
And it is too early to find out the baby's sex. We have to wait another month. Thanks for caring, Marycain. You're so sweet!

MARYCAIN
11-18-2006, 08:18 AM
or other arrangements made so he can stay close to you. Glad you are still doing okay - take care of yourself. :)

tanyaw
11-27-2006, 03:27 AM
Hi Angie,

Thanks for your reply to my pregnancy inquiry. I am so pleased that your pregnancy is going well. You answered a lot of questions for me by telling me your story. Right now I am on a progesterone only pill so I am constantly paranoid about getting pregnant and I also get my period twice a month which is odd...I would love to have a third and was hoping to get it over and done with but my last pregnancy was not meant to be. I am worried as I have the DVT antibody as well as the fetal heart block one. I don't know the technical names for these as I am trying to forget about all this stuff that is happening to me...Silly, but this is my way of coping. I often wondered what you did if you got pregnant on all these meds. I hope for another baby in a few years but right now I am a lousy mommy to my two year old as I am always tired and so focused on trying to get myself better that she has been pushed to the wayside. Since I was so sick this summer prediagnosis, she really got her way with the nanny and has gotten seriously out of control and it is like I have no strength to deal with her. She is so different from my son but he was also raised totally by me and she unfortunately has been raised since June by the nanny. The nanny's attitude is let her do as she pleases as well as eat as she pleases (now she is obsessed with candy something that my son knew nothing of at her age)....anyway, I am rambling about a totally different subject...thanks again for taking the time to tell me about your little miracle...all the best to you.

srosenb
11-28-2006, 11:28 AM
Hi Tanyaw:

I am currently 7.5 months pregnant with my second child and I was diagnosed with lupus shortly after the birth of my first. So far, so good...although I have had to continue taking a low dose of prednisone throughout. I had a small flare during the first trimester, but things have levelled off and are going really well now. I typically flare immediately after the birth (so there is that to look forward to lol). We are hopeful that all will go well.

GOod luck with everything!

Whitney Murphy
11-29-2006, 08:48 PM
Actually srosenb and atedj, your experiences are what gives young women like me hope- the first time I got pregnant was about 4 months ago- I thought I was just really sick from the preg. then I went to the hospital and spent 2 weeks straight there. Ended up miscarrying and finding out that I had SLE, after reading about the disease I had no hope for having my own kids,why would you want your child born with the possibility have having this disease? (then again no one in either side of my family has ever had it or any form of it and I still got it) Then I read your stories about having healthy children, it gives me hope! I know its off topic, I just wanted to say THANK YOU!

atedj
11-30-2006, 02:22 PM
Whitney,

I'm so sorry to hear of your experience. What an emotional rollercoaster those weeks must have been! Don't give up hope of a little one. It's amazing of what your body is capable of doing even when you are "sick" with Lupus. I was really worried at first since we hadn't even come close to getting this disease under control. But somehow, my body has risen to the challenge. The baby and I are both doing excellent and all my lab work has come back much improved since before pregnancy. It's truly a miracle. So here's to hope and miracles!

Whitney Murphy
11-30-2006, 02:30 PM
atedj- I have hope, now! I'm glad to hear the you and your baby are doing great, I hope everything goes the way you guys planned! Right now I'm only 20, but maybe in a few years after I've had the disease for awhile and I know how my body will react to certain things- like pregnancy, I'll think about having kids. I'm just glad to know that its not impossible to have healthy ones.

MARYCAIN
11-30-2006, 03:05 PM
Whitney, when I was 21 I was told by my gynecologist that I would probably never had children because of endometriosis. I was dating my college sweetheart at the time, and I became so depressed I broke off the relationship because I knew he wanted kids. After I met Michael, it didn't matter as much because he was an only child and not interested in kids, even though I still wanted them desperately as I watched my other married friends get pregnant and have children. We never worried about birth control because I thought I could not get pregnant, so it was a shock when I started having morning sickness! I was almost 34 and the doctors told me the chances of carrying the pregnancy to term at my age were not good, especially since I was carrying twins. That was almost 11 years ago - I have four healthy sons now. Parenting with lupus can be a challenge, but it is also a joy. So don't give up hope - the "impossible" can happen.

Whitney Murphy
12-03-2006, 07:23 PM
Marycain- you know the more postive things I hear about child birth, the easier dealing with the lupus is. Its such a relief to hear so many diff people who live in diff areas having healthy kids! I can live w/ the lupus, but not having kids would probably make me more depressed than anything! Thank you sharing your experiences w/ me!

PR2001
12-05-2006, 07:40 PM
I think I'm going to cry :cry:

I just finished reading these stories to my husband because we desperately want to have a child. After reading, I know that having a child is possible with lupus. Thanks so much everyone for relieving our hearts and easing our minds. :D

Laura07
12-23-2006, 08:33 AM
My fiance and I are wanting to start trying for a child in about 2 months. We are both scared that I will get worse with the pregnancy, or not be able to get pregnant at all. Right now I am not on any medicines. The rheumy wanted me to take a break since problems with my liver. We have been researching herbal things and eating healthier, thinking maybe I can keep the SLE under control that way. I have been feeling good lately, no pain really. It's just this cold and bronchitis that have me down for 3 weeks now. I'll keep you ladies updated if we do get pregnant. We are so silly, already laying in bed at night picking out baby names. :D

MARYCAIN
12-23-2006, 09:17 AM
I did the same thing - only problem was I kept picking out girls' names and then finding out I was having boys!

Laura07
12-23-2006, 09:19 AM
We have an agreement that I get to pick for a girl, and him for a boy. If it's a hideous name, we will review it at that time. We are hoping for a boy since we already have his 7 year old daughter.