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cureeus
10-27-2003, 10:04 PM
Hello,
New to the site! I haven't had a diagnoses yet, but I see a specialist on 10/29/03. I've had problems for about 10 years but have been shuttled from a lot of different doc's that just looked at one or two symptoms but not the full picture. I have had Bells palsy (or TIAs depending on which doc you ask) 8 times in the past 10 years, I have anticardiolipin antibody disorder (blood is 4x thicker than normal) and take 7.5 of coumadin daily to help that. I have arthritis and severe fatigue and depression. My psychologist has taken me out of work because of the fatigue and stress making my condition worse and I don't know how long I will be out of work. I can't concentrate and my memory is shot! My ANA was 180 in 2001 and is now 230, my GP didn't know what to make of it so he referred me.

I know the fatigue, depression and arthritis is pretty normal, but what about the rest of it? Is anyone else having the other problems? Is being out of work pretty standard? Anyone that can answer anything is really appreciated!

Saysusie
10-29-2003, 08:59 AM
Cureeus:
Lupus (and/or other conditions that compromise the immune system) can increase the chances of developing Bells Palsy. Have you experienced the facial paralysis?? Approximately 40,000 Americans develop Bells Palsy every year.
All of your conditions are not uncommon for SLE patients. You must meet four (4) of eleven (11) criteria in order to be diagnosed with LUPUS. Here are the eleven (11) criteria: Malar rash, Discoid rash, Photosensitivity, Oral Ulcers, Arthritis, Serositis (pleuritis, pericarditis), Renal Disorders, Neurological Disorder, Hematologic Disorder, Positive ANA and Immunoligic Disorder.
Here is a brief description of the manifestations of the above disorders: LUPUS presents Dermatological Manifestations (rashes, itching, pain, mouth & vaginal ulcers, Raynaud's Syndrome); Musculoskeletal Manifestations (arthritis, anthralgia, osteonocrosis); Hematologic Manifestations (abnormal blood conditions like anemia, thrombocytopenia and clotting disorders, false positives tests for syphillis); Cardiopulmonary Manifestations (Pericaritis, Myocarditis, Vasculitis, Serositis); Renal Manifestations (kidney damage); Central Nervous System Manifestations (Central Nervous System disorders - some may be related to medications, Cranial or peripheral neuropathy, strokes, seizures); Gastrointestinal Manifestations (anorexia, bowel perforation secondary to mesenteric arteritis, nausea, vomiting, diarrhea, pancreatitis); Ophthalmologic Manifestations (Visual impairment due to drug treatment for SLE, glaucoma, retinal detachment, cytoid bodies, Sjogren's syndrome, glaucoma, cataracts caused by corticosteroids.)

As you can see, your symptoms CAN all be contributed to SLE symptoms. Make sure that you are competely thorough when describing your symptoms with your specialist. There are precise tests that are run in order to determine if you do, indeed, present symptoms of SLE. Keep in touch and let us know how your appointment with the specialist goes!!
Peace and Blessings
Saysusie

cureeus
11-05-2003, 07:43 PM
I went to a specialist and he has to run some more tests before he can tell me much, but of course the day that I went, I didn't have any rashes, mouth sores and my arthritis wasn't that bad that day. His initial conclusion is that I don't have enough symptoms of Lupus to qualify as a diagnosis. I really don't understand that, but I will be going back at the end of November to discuss the new test results....