View Full Version : Really depressed big time.........
10-16-2006, 08:22 AM
I went to see the Neurosurgeon today. I waited over an hour to be seen only to be told that I am not a surgical candidate due to my Lupus. He put me on muscle relaxers and told me that he is going to schedule an appointment for me to get another Epidural shot. It makes me mad that he has an attitude like this to me. Maybe I am causing it, but I don't see how. Oh well. I have a herniated disc, degenerative disc disorder ane disc that is completely flat. Oh and he also stopped my PT. He told me that there is nothing more he can do and dismissed me as his patient. I guess he said that he will recommend to my Rheumatologist to add a muscle relaxer to my list of medications. I am very ticked off big time. I flat out refuse to go to see another Spinal or Neurosurgeon ever again. Kathleen :mad:
10-16-2006, 08:50 AM
Dopn't give up on neurosurgeons yet. Just like some of us who have run into ignorant and dismissive rheumatologists - all doctors are not cut out of the same cloth! I am sure that you have a right to ask for a second opinion from another neurosurgeon and to ask that the neurosurgeon work in tandem with your rheumatologist when making medical decisions about you and especially about surgeries.
If he is referring you to a rheumatologist, perhaps he/she can refer you to another neurosurgeon whom they may have already worked with.
Fight for your rights as a patient, do not let one uncaring doctor prevent you from getting treatments that you need!!!
Let us know how it turns out and don't give up!
Peace and Blessings
10-16-2006, 08:55 AM
I'm sorry you are having such a difficult time - unfortunately, back problems are some of the most difficult things to treat. If your pain is mainly in your back and doesn't affect your legs, surgery often doesn't help and can actually make things worse - failed back surgery is a leading cause of disability. Unless the herniated disc is impinging on a nerve causing pain to go down your leg in a specific pattern the corresponds with the path of the nerve, most herniated discs will heal on their own and don't need surgery.
Plus, if you are taking steroids or immunosuppressants for your lupus, it can slow down the healing process and put you at higher risk for infection. I'm sorry the doctor seemed dismissive or callous, but if he doesn't feel the surgery would help, it might be time to look into some other treatments. Even if your doctor discontinued your pt, you should continue to do your back exercises at home the way the therapist showed you. water exercises or gentle yoga stretches may help. You should also talk to your primary care doctor about whether you are a candidate for vax-d treatment, which is a nonsurgical treatment that is very effective in treating back problems. If your pain is persistent, ask your doctor for a referral to a pain management specialist or pain clinic.
Depression and anxiety are a normal part of dealing with an illness, but they can also be caused by the lupus. If your depression is affecting your outlook and your life, maybe you should talk to your doctor about a trial of antidepressant therapy - depression makes it harder to cope with pain.
I'm sorry you are having such a hard time with this, but believe me, you do not want to go thru back surgery unless it will definitely help . There are non-surgical treatments available but you may have to push your doctor for more information.
10-16-2006, 09:23 AM
Hi Marycain and Saysusie,
I am sorry about blowing off like that in the post. I realise that the depression can also be coming from the Lupus as well. The Rheumatologist that I have that is managing my Lupus is a wonderful doctor. He sent me to the Neurologist. I guess I would not have gotten so upset if he would have explained and the Imuran and things like that that would make a surgery on my back dangerous. The pain I have is not constant, but if I stand to long or sit in one position for to long, the pain goes right down my left leg. I have pain medication and muscle relaxer medication now, so I will give that a try. I won't be seeing my Rheumatologist until December, because I have just seen him last week and he just increased my Imuran. Oh well I will be ok. Thank you though for posting and letting me vent. I will be ok. Take care, Hugs, Kathleen.
10-16-2006, 10:37 AM
To listen when you need to vent! Overall, I've not had great experiences with surgeons, a lot of them don't seem to develop a very good bedside manner, and they can be pretty abrasive. The surgeon who did my mastectomies got really huffy with me when I told him I couldn't take flagyl, and said "when did you graduate from medical school". Of course he didn't write it down, so they gave me the flagyl anyway, and I had a grand mal seizure. My rheumie was furious, since the seizure disorder was documented in my medical records had the surgeon bothered to look. Still, there are some great surgeons out there, sometimes you have to do a little investigating to find them. If you know any nurses who work at your local hospital, ask them what surgeon they would choose. If there is a university hospital or a center that specializes in spinal disorders in your area, ask for a referral - they may know about new treatments and procedures that aren't generally available yet, and be more equipped to cope with patients who have medical problems that complicate surgery.
If you don't have osteoporosis, vax-d spinal decompression may be a safe option for you. Ask your primary care doctor or orthopaedic doctor for more information - I am seeing a lot of work comp insurers who are authorizing it as an alternative to back surgery - it is approved by the FDA and can br done as an outpatient.
If there is an arthritis foundation chapter in your area, they often have exercise programs that are very gentle and geared to people with back problems - it could be a good alternative to a physical therapy program.
You are dealing with a lot right now - I know back pain can make you absolutely miserable. Try to protect your back as much as you can - get someone else to pack the groceries in for a while! Hopefully the musle relaxers will kick in soon and give you some relief.
10-17-2006, 02:03 PM
he really sounds like a JERK !!!!!
I'm sorry for you.