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sapphirrasmagick
10-14-2006, 08:39 PM
Today was my annual statewide group picnic, which I'm in charge of.
I had to get up at 8am, which is only a few hours after I normally go to bed.
I had to set-up, decorate, all in the freezing cold.
On 4 hours of sleep.
I played my drum in a drum circle for over an hour.
outside.
(in the sun)
This after a week of preparing, baking, making gift baskets, etc.
Then I had to take-down, clean-up, haul all the supplies back home, and now I am seriously feeling the pain here.
I didn't really have too much trouble afterwards, aside from fatigue last year, but this year...owwwwwie.
I crawled into a warm tub and took inventory...
Already, I've got a rash started on my legs, my kneecaps are swollen, my fingers are like snausages.
My palms are peeling, I have broken blood vessels in my thumbs and wrists, one in my upper arm, and my entire body is one giant knot.
My lower back is killing me.
There is not one part of me that isn't sore, (I think my hair even hurts) and I also have bruised feet.
I'm not sure I can get up from this chair now.
I may have to just let myself flop onto the floor, and then roll down the hall to bed.
LOL
Anyway, I just need to vent my angst...this is stinkaroo.
One day of fun, and I think I'll be paying for it still a month from now.
I think I'll be in bed for the next few days.
And I'll need to use my cane again for awhile.
Phooey.



:roll:

Off to take one majorly serious power nap.

hatlady
10-15-2006, 04:37 AM
{{HUGS}}

Oh sweetie, I feel so bad for you!

Keep those warm baths coming, add some turmeric and ground flax to your diet each day for a bit, and REST. You've earned it.

If you haven't already, invest in a large brimmed HAT, and LOTS of sunscreen. Nxt year, when the picnic is even better, arrange that drum circle in the shade of a lovely tree. And keep the hat on...

Hugs, and I hope this passes more quickly than you expect.

Saysusie
10-15-2006, 06:58 AM
Hello Sapphirrasmagick :lol:
I hope I am not disturbing your much needed (and well deserved) power nap. Your story is SOOOO familiar, probably to almost everyone of us. Hatlady gave you some great suggestions and I only have one to add...delegate my dear, delegate!!!!
Find some nice young, strong eager kids to help you with the heavy work if you can. Do not try to do everything yourself because, as you have learned, you have to do some serious recuperation afterwards!!
Also, pace yourself (if that is at all possible given your time constraints).
Until then, keep resting and then rest some more. Give your body lots of time to recuperate and to ward off exacerbating this "flare".

I am sending you warm hugs, a wonderful body massage, a warm blanket to wrap up in, and many restful days!!

Peace and Blessings
Saysusie

sapphirrasmagick
10-15-2006, 12:26 PM
Turmeric and ground flax, eh?
I have both in my kitchen somewhere, but didn't know they were helpful for Lupus flares...maybe I'll make a nice curry for dinner and then have a fruit smoothie w/ flax for dessert.
That sounds really yummy anyway.
:)

I just woke up...not as bad as I thought it'd be, thank goodness.
I slept quite a long time, under 5 blankets and finally got warmed up, which I think helped my muscle aches alot.
I still feel like I got hit by a truck, but now it's more like a little pickup truck as opposed to a giant semi truck.
I took some ibuprofen, which will hopefully kick in soon...my head feels a little funny and achy right now, and I think I might be running a fever.
And for some odd reason, each and every one of my toes hurts.
LOL

My lungs are also feeling a little sore, but that could just be from all the wood smoke.


Next year I am definitely going to have to delegate more...I am stubborn and have a hard time accepting the idea that I can't do as much as I used to, because I want to do everything, I used to be able to do everything and I don't like asking for help.
Something I really need to work on.

:morning:

MARYCAIN
10-15-2006, 01:42 PM
Ita erat quando hic adveni - it was that way when I got here? Okay, I'm totally intrigued, you've got to share the story behind that one!

Seriously, glad you are feeling better - if you have some arnica gel, it does wonders for bruising and sore muscles - I use so much, I should invest in the stuff. Next time, maybe have the drum circle in a nice shady grove? If you don't mind my asking, what type of drum circle were you having, medicine circle, shaman, wiccan. or just for fun?

I hope your ibuprofen is kicking in by now. If not, hang your NOLI PERTURBARE sign on the door and go back to bed!

sapphirrasmagick
10-15-2006, 02:28 PM
Hey, you're the first person to ever know what my signature means and ask me about it! Cool. :)
There's not really a story...it's just a general, pre-emptive warning label that I really ought to sew onto my clothes.
If something goes awry, it was totally like that when I got here. I had nothing to do with it.
(When you're a klutz and can't function in the morning without large amounts of hot caffeine, it's a handy thing to be able to say.)
:wink:

I don't mind your asking me about the drum circle at all...
The drum circle we had wasn't specific to any one path and wasn't ritual in nature...it was mainly for fun.
If anything else, maybe just to celebrate the beauty of Autumn and the changing of seasons and being alive and together.
It was made up entirely of Pagans and Wiccans and did end up being a really amazing and spiritual experience, but we all went into it just as people who really enjoy making some noise and jamming on our instruments.
(I play the zarb...it's a big metal drum with alot of bass.)
We had all kinds of percussion, and some of the women sang and one danced.
I'm really hoping to be able to get a local drum circle started that meets regularly, maybe once a month.
It's hard to explain what it's like, but if you've ever been in a drum circle, you'll know what I mean...it sounds cheezy but, you get to that point after awhile where everyone is in the same space, and the rhythm is just perfect and there isn't any thought except for the music you're making, and it's almost surreal, like you're not even in your body at that moment...everything just flows and it's so freeing.
I think that's what I like so much about drumming.
It's one time can I feel completely and perfectly healthy, and don't feel any aches and pains or worries.
Well...I guess the other time is when I'm sleeping, and I like that a whole bunch, too.
;)

Anyway, I guess I kinda started rambling on there...heh, sorry about that...don't ask me about drumming unless you have some free time, I guess. I'm obviously quite enthusiastic about it.

:lol:

MARYCAIN
10-15-2006, 03:42 PM
I guess I was amused because it sounds a lot like what my kids say when I find them in the middle of a mess, "but, mom, it was that way when I got here" - it sounds a lot more impressive in latin!

I'm not a drummer, other than the bodhran, but I have seen a zarb - it looks a lot like a doumbek - is it played the same way? I play a lot of celtic music, but my instrument of choice is the hammered dulcimer, which is technically stringed rather than percussion although it is played with hammers that are similar to beaters. Like drumming, it puts a lot of stress on the wrists and hands, so it's hard with the lupus.

I have participated in some medicine circles with friends on the shaman path, mostly for healing. It is an amazing experience - the drum is like the heartbeat of the world, it's easy to get lost in it. Several friends in my celtic group are wiccans, I assume they all walk the right-hand path, but as you certainly know, it's a much misunderstood religion, particularly in some parts of the country, so most wiccans in this area practice their beliefs privately. It's kind of a shame because I think people would be more accepting of wicca if they knew more about it, but I certainly understand why they chose not to be open.

I am glad you had such a special day - hope you bounce back quickly from the sun exposure. Unfortunately for lupies, the song is wrong - it is possible to have too much fun!

browneyedgirl53
10-15-2006, 03:50 PM
Hi Sapphire,

Sounds like a successful event....now for your successful recovery :lol:

I don't know if you can because of meds or not; but epsom salt baths twice a day do it for me. I had been an executive /corporate events planner....and I know exactly how you feel afterwards.....kind of like you were ran over by a semi-truck, and rolled all the way across town; and when you got up you felt like king-kong picked you up and threw you down???? Yep, I've been there.

Take lots of warm baths, drink lots and lots of water....and rest, rest, rest!!

I hope you recover soon; and when you can laugh out loud; it's great exercise for your lungs. I know it works for me.

Wishing you the best.

Much love,
Browneyedgirl

hooversmom
10-15-2006, 04:50 PM
Wow!

I'm impressed you guys are so musical. I scare my dog and children if I sing in the shower! I hope you feel better soon. Be kind to yourself. As women we invest so much time in doing for others sometimes we put ourselves last. I perhaps shouldn't preach - I do the same thing frequantly

sapphirrasmagick
10-15-2006, 08:04 PM
Yep, the zarb is very similar to the doumbek, although it's larger and the neck isn't as narrow or tapered.
Mine has a 12" FiberSkyn head...you can play it different ways...some people like to tuck that type of drum under one arm, and use a beater, but when I play I tuck the neck between my legs so the drum is resting on my lap, and then I play with both hands.
I get the most bass that way, and it's the most comfortable for me, although you're right, it is hard on the wrists and hands.
Totally worth it, though, and sometimes I think in the long run it can only help...a use it or lose it mentality, maybe?
Work those achy puppies!

You're right about Wicca being mis-understood...that's true of Paganism in general and many other non-mainstream paths, unfortunately, but I think we're making progress and most people that I've met have been receptive, interested in learning more, and very polite about the subject if it comes up...I'm very fortunate to live in a place where religious tolerance is more the norm than intolerance...however, if I feel like someone won't understand or will give me a hard time and they press it, I always tell them I am spiritual but not religious and leave it there.
Wiccans have an even harder time I think because of tv shows like Charmed, that portray Wicca in a negative and unrealistic way...it's very difficult to get your religion taken seriously when so many people see that on television and think you're some kind of weenie who believes you can throw fireballs and all that stuff.
Belief is a very personal thing, and I think the most important thing isn't your chosen religion, but what kind of person you want to be and whether or not you try to make the world a little bit of a better place than it was before you got there.
:)

Browneyedgirl, doesn't the salt in the bath dry you out?
My skin is so dry right now...I've even tried bathing in olive oil and putting on super moisturizing lotions, but my skin just can't seem to get hydrated.
I'm trying to drink enough water, and I've been really thirsty, too, but it seems like the only thing I'm accomplishing is increasing the number of times I have to pee in a day. LOL
:P

hee hee...hooversmom, I said I played the zarb.
I never ever said I played it well.
:wink:

sapphirrasmagick
10-15-2006, 08:22 PM
Oooh, I'm a Sea Monkey!
:evilbat:

(I'm easily amused)

stardust
10-16-2006, 06:44 AM
THis sooooooooooo sounds like my week-end a cpl. weeks ago after hosting out of state family.

In fact, I came here to vent !!!!!!

It doesn't seem FAIR why we have to go through so much hassle just to have a busy week-end. :mad: :mad: :mad: :mad: :mad:

stardust

littlered
10-16-2006, 09:42 AM
I am very proud of you...of ALL of US...that we insist--no DEMAND--to continue to live our lives happily and busily! Yes, we pay when we use all our spoons...but doesn't everyone?

My husband bought me (I wish I knew what they were called) these cloth bags filled with rice and spices (I think fennel is one spice, but there are others I can't identify.) Anyhow, you sprinkle them with water, then microwave for 2-3 minutes and lay on whatever hurts. It's flexible, warm wet heat and smells soooo good...better than any hotpad. I own like 6 of them and use them all over when I overdo it...I will ask hubby where he got them.

Anyway, cheers to you! I agree, delegate, and maybe plan to be in the shade more--but enjoy life!!!!!

MARYCAIN
10-16-2006, 12:04 PM
Littlered, I make my own "hot socks" by mixing uncooked rice of any kind with my favorite dried herbs or spices and dried lavendar, putting it in an old tube sock, and fastening the end with a rubber band or sewing it shut if I'm feeling really ambitious - you can also fold over a nice plush handtowel and sew a seam, leaving an opening to fill with the rice mixture - they are super easy to make!

Sapph - is the air in your house dry? That can make your skin dry no matter how much you drink - you might need to use a humidifier in your house. We use gas heat and it dries the air out a lot.

MARYCAIN
10-16-2006, 12:19 PM
Sapph, I just picked up on something you said in your earlier post about being really thirsy a lot? Have you had your blood sugar levels checked recently? Many of the medicines prescribed for lupus can affect your blood sugar, particularly steroids, and increased thirst and dry skin can be warning signs of high blood sugar levels. Not trying to scare you here - it's just that everyone with lupus should probably have their blood sugar checked periodically, especially if taking prednisone or other steroids.

sapphirrasmagick
10-16-2006, 03:56 PM
Mary, I have a little blood sugar testing kit here at home and get tested once a year at the doc as well.
I don't have diabetes, but it seems like every single person on my dad's side of the family does have it, so I've always been careful about monitoring myself pretty regularly, and my blood sugar levels are always in the normal range. (I think that's in part due to my vegetarianism)
I'll check it again, though, to be double safe.

Yeah, we do have gas heat here also (I live in an older victorian house with those black wrought iron grates in the floor that cover the heating ducts), and now that I think about it, it does feel kind of dry in here right now.
I boil water on the stove some nights to get the air more humid, and just keep filling the kettle back up until the windows get fogged up, but I don't do it every night, and I really probably should.
I had a humidifier a long time ago, but I lost it somewhere along the way.
I'll check into getting another one next time I go shopping.


Well, I just woke up from a marathon sleep session (over 12 hours) and the first thing I had to do was run to the bathroom, where I then pretty much painfully exploded out everything I ate since the picnic.
I feel like warmed over death today, and according to witnesses, I have acquired a new, never before seen colour of grey in my face.
I guess I've got a little delayed reaction action going here.
Bummer.
My plans for tonight are drink water, sleep on the couch, read a book, eat something mushy and bland, drink water and then go back to bed and sleep another 12 hours.
At least some of my swelling in my fingers, face and feet has gone away.

When you guys are in a flare, do you ever have it where the skin on the sides of your mouth feels numb/itchy?
I don't see any redness, but it feels weird, and I keep wanting to rub at it.
Weird frigging Lupus.

:mad:

MARYCAIN
10-16-2006, 04:15 PM
I'm vegan, so cholesterol, bp and blood sugar are normally good but prednisone screws everything up after I take it for a while.

Are you sure this is delayed reaction and not delayed food poisoning? If you don't start feeling better soon, call the doctor! HUGS!

sapphirrasmagick
10-16-2006, 04:25 PM
I don't think it could be food poisoning...because of the fact that I'm eating gluten/dairy-free, the only thing I ate at the picnic was apples and the cookies that I had baked myself.
I didn't try anything anybody else made, and nothing I ate was really perishable.
When I got home that night I had some oven-baked potato wedges with olive oil and some orange juice, and yesterday I had a little bit of veggie chili with tortilla chips, rice noodles with soy veggie crumbles, onions and Earth Balance, can of peas, and an orange hazelnut muffin (also homemade) with a cup of coffee.
I've eaten all this same stuff before and never had any trouble...and I was wrong, btw.
I didn't explode everything I had eaten...apparently there was something more left, because I just ran to the bathroom again.
Anyone know where I can buy a new butt?
Mine feels about ready to storm off in protest.
:P

MARYCAIN
10-16-2006, 04:48 PM
Hopefully it's just a 24 hour bug that will run its course quickly (no pun intended) You probably want to stay away from your coffee, also avoid sodas and high-sugar juices like apple or grape - anything that pulls water into your gut will make diarrhea worse. If you have a juicer, a carrot/celery blend is good for diarrhea, also blackberry or raspberry leaf tea. Bananas, starchy foods like rice, toast and tea is still a good diarrhea diet even if a little old fashioned, it still works. Hope you feel better soon.

littlered
10-23-2006, 11:46 AM
I've gotten the itchy mouth thing before...I was in flare and taking antibiotics, though. As I recall, the Dr. blamed the antibiotics for the thrush, but could it have been the lupus as well? :?:
thrush IS easy to get rid of, but you want to catch it quickly before it gets in your throat.

sapphirrasmagick
10-23-2006, 02:51 PM
Oh...no, I don't think it's thrush...what I'm talking about isn't in my mouth, it's on the skin of my face on the sides of my mouth...one itchy/numb patch on each side, from the corners my mouth to about an inch out, and about an inch up and down.
There isn't anything visibly wrong with the skin there...it just feels weird.

:roll: