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stjames13
10-04-2006, 07:53 AM
8)
I just want to apologise to all of you for dissapearing for so long.

AS you most know I am a proud man and one who does not like to complain.

But today I got an email from a WONDERFULL FRIEND...BROWNEYEDGIRL

AND I felt compelled to let you guys know what's up.

I have had some very serious problems with my back and neck that have hospitalised me and when I got out I have been in traction since then and EXTREMEME pain.

I know that's no excuse but I can not go online while in traction and without it the pain gets out of control.

I have actually had my doctor coming here to my house in the am before he goes to his office to give me shots of morphine for the pain.

SO PLEASE forgive me as I have not forgotten you at ALL.

I must sign off now as the pain is growing and I must get back in traction.

I expect to be out of it by the end of the weekend,

THANK YOU for email me MY FRIEND....
YOU MADE MY HEART SMILE TODAY !!!!!!

I hope you all are well.......I will be back soon and hopefully with GOOD NEWS and stronger than before. I miss ya'll

SINCERLY
ST JAMES :wink: 8)

littlered
10-04-2006, 09:01 AM
please be well....too bad we can't be on the same hospital floor! love--

stjames13
10-04-2006, 10:10 AM
8)
YOU ARE LIL RED YOU ARE ALL HERE WITH ME !!!!!!!

THANKS

STJAMES 8)

Saysusie
10-04-2006, 11:27 AM
St. James;
As always, you are in my heart and in my prayers. Whenever you are away, I worry because I know that you must be in pain.
I am seeing you, in my mind, as whole and perfect - both in your body, your spirit and your heart. I am holding you up in perfection in everyway and sending you prayers for a recovery that is complete and speedy. I know with absolute conviction that your life is perfect, right here and right now. Claim and accept the love that exists in the world for you. Claim perfect health and abundance. Give great thanks for this Truth and know that because you have named it with your consciousness in alignment with the mind of God, that it is so.
Let your day be filled with Grace, Peace and Blessings
With Love and Friendship
Saysusie

MARYCAIN
10-04-2006, 11:37 AM
James, I can really feel for what you're going through, I've had multiple surgeries for complications (osteomyelitis and spinal cord damage) of several vertebral fractures - there were times the pain was so bad it took my breath away. When morphine and demerol stopped working, my doctor prescribed Duragesic (fentanyl) patches which work for 72 hours. With your liver problems I don't know if they would be okay for you, but they were a godsend for me. After the second surgery I also had an implanted morphine pump that put small amounts of meds directly into the spine - the neurosurgeon recommended it because you need smaller doses of drugs that way, and it doesn't have as much effect on the liver and kidneys. If your pain levels don't improve, maybe a pain management specalist can recommend something to give you more relief. I will be thinking of you and hoping your situation improves.

stjames13
10-05-2006, 04:15 AM
MARYCAIN,

I am on DURAGESIC 75 MCG now and still get MORPHINE for break through pain or when it is this bad !!!!!

HMMMM I am surprised they put a morphine pump in you....the reason why they said NO TO ME was because I have LUPUS !!!!!
Same excuse for when they wanted to implant a spinal cord TENS UNIT....again NO DUE TO LUPUS???HMM WEIRD HUH???

But I also have several other auto-immune problems...so MAYBE that's why.

The DURAGESIC os ok for my liver as it does NOT metabolise in your liver it is PURE and just gets into your blood stream through your pores.

The BEST part is anytime I stopped the DURAGESIC I never felt any kind of DETOX feelings.....so I guess it IS true if you take an addictive med AS PRESCRIBED when you stop there are not adverse reactions as your body need it and never became addicted ...the FENTANYL was just replacing this needed endorphins !!!!!!

I do see a pain specialist and I do somuch research that I always look it up or call my sister in law who is a research scientist at MERCK and she can tell me things that DO NOT show up on labels or in PUBLISHED BLIND TRIALS......
THAT"S A BIG HELP haveing her to check out every drug I get first !!!!!

THE LAST thing I want to do is wake up the LIVER CANCER...even the docs were amazed that I made it through all that....they actually had me write out my last will and testament, a living will and I wrote a private letter to my wife...
WHEW good thing she never got to seet hat as I would have a NEW HOUSE AND NEW FURNITURE ETC.....

Had she seen how much money we really have stashed away I know she would have wanted to move somewhere that I do not have so many daily and seasonal work to do around here.
I LOVE living in the woods and looking out my window in the am while having my coffee and seeing the DEER n stuff.

I LOVE being one with NATURE and it's family of animals.....I feed them all and actually have finch's that take food from my hand !!!!!!

THANKS FOR ALL THE KIND THINGS YOU SAID AND FOR THINING OF ME !

SUZ I have just printed your reply and folded it up and put it in my wallet, to remindme when I am down ..... :wink: 8) :lol: :oops:

YOU GUYS ARE GREAT !!!!

STJAMES

BTW NOT BETTER YET BUT A LITTLE BIT SO I'lL TAKE IT !!!!!! :D 8)

MARYCAIN
10-05-2006, 08:35 AM
I had been on such high doses of pain meds when I switched to Duragesic that the 75 patch didn't give me adequate pain relief, so my pain doc raised the dose to 100, and then 125 (using two patches) at that point I had pretty consistent pain relief. I still had some breakthrough pain especially during pt, so my doctor prescribed actiq for use only for severe breakthrough pain - it works really quickly, but it made me very groggy and disoriented, so I rarely used it except when I was in dire pain. I worried about stopping the duragesic because I took it for a long time, but the only "withdrawal" I experienced was sneezing and runny nose for a couple pf days.

I had the morphine pump implanted as part of my second surgery for osteomyelitis - I guess the neurosurgeon thought since he was doing the surgery anyway, there wasn't that much additional risk involved. I had asked about the TENS at one time and was told my nerves were too inflamed from the lupus, so it wasn't safe for me.

I have just started taking an amino acid supplement called D-LPA on the recommendation of my pain doc, with rheumie's okay. It is supposed to boast the body's natural production of endorphins and help chronic pain,including nerve pain, without the problem of developing tolerance as you do with opiods. I am taking max doses of neurontin and baclofen without much relief from neuropathy, and can't take the antidepressant type meds like elavil or cymbalta for nerve pain, so docs are trying to find a good alternative. I am seeing some effect from the D-LPA but docs says it takes 2-3 weeks to see full benefit, so I will wait and see.

I don't know if you have any interest in alternative therapies, but my rheuemie researchs and recommends some things as complementary therapies in addition to standard meds, and he recommended milk thistle when some of the meds I was taking affected my liver function, My LFTs went back to normal and I was able to continue taking the meds. He says the active chemical in milk thistle has a protective effect on the liver, and recommends it for some of his gulf war patients. My rheumie was a reserve officer who served during Desert Storm, and he is very vocal about the VA's failure to recognize and treat gulf war syndrome. I'm not sure of the biochemistry involved, but perhaps your doc might know whether this would be helpful for you.

I also live in a rural, wooded area with lots of birds and wildlife. The deer are beautiful - I love to watch them, but I don't feed them for fear of getting them used to people. All our property is posted against hunting, but that's no protection against illegal hunters. We do leave nutrient lick blocks out in the areas away from the house, and put out hay, grain and cedar branches if the winter is extremely bad. We also have a big garden and a lot of fruit and nut trees, so there is plenty to go around for us and all the animals. The groundhogs are especially fond of apples, and every morning they show up to get the windfalls. We do clear some areas , but I also like to leave a lot of brambles and hedgerows overgrown so the smaller wildlife has some protection from the hawks and foxes. It might look messy but I'd rather have the wildlife than a perfect yard or garden.

I do feed the squirrels, raccoons, birds, etc., and we have a young possum who has been "adopted" and thinks he is a cat. We also have a great blue heron who sometimes stops by to fish. He is magnificent, but seems to know instinctively when I have a camera, so I've never been able to get a photo. But I do keep trying!

I hope you are able to get out of traction soon, so you are able to enjoy the beautiful fall season!

peach224
10-05-2006, 12:28 PM
Oh St. James,

I am so incredibly sorry that you are going through a hard time, but I don't "feel sorry for you" because I know that you are an incredibly strong person and you don't need pity. I am praying for you and I know that you will get through this episode. I think it is so wonderful and inspirational that you can find the beautiful things about the season and comment about the wildlife and things that surround your home, even when in such pain.

Please take care of yourself and know that we are here praying and pulling for you.

xoxoxoxoxo

stjames13
10-06-2006, 04:31 AM
8)
THANKS PEACH !!!!!

MARY I too take actiq 800 MCG for breakthrough pain.....but it does not do what it does to you to me...thankfully.
I am taking a 75 and a 25 DURGAESIC patch right now....whew ya think that would kill the pain but it still gets through that !!!!

I heard that NOW kids are getting the DURAGESIC PATCHES and scraping the liquid out and drinking it.....and sadly ending up in either the emergency room or the morgue.

When will they stop messing with this stuff???? Sometimes I feel the need to get back into being a CSAC counselor, but after finall gettign SS and my pension I do not want o fool with it by working and I really can't take being on my feet or even sit for to log a period of time

Plus it is a very demanding job and one theat becomes physical when a client goes off and must be restrained.....I got my nose broke once trying to hold down one that was detoxing and throwing a fit.....MAYBE I'll stick to just speaking when asked as I continue to do.

STjames 8)

hatlady
10-07-2006, 04:01 AM
What a journey! St. James, my heart goew out to you, I hope this pain passes...

And SaySusie, what a wonderful prayer. I too will save it!

May all your days be filled with friendship and health.

stjames13
10-08-2006, 04:48 AM
8)
THANK YOU ALL FROM MY HEART AND SOUL !!!!

YOU ARE ALL SPECIAL PEOPLE AND WONDERFULL IN YOUR OWN WAYS


STJAMES 8)