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lunajen
09-18-2006, 11:05 AM
I am new here and I am actaully trying to find out if I might have lupus or not....

I have several of the symptoms and tested positive for ANA?

But my Dr. says that you can have ANA in the blood and not have Lupus?

So I am confused....

here is what i have.......

plurisiey
joint pain
fatigue
sore in mouth and on tongue
sores in nose
Rynaruad's syndrome
angioedema(swelling in the hands feet, mouth severe nausea,stomache cramping and diahhrea)
rosacea across checks and nose
tremors in arms and legs
confusion, inability to thinking clearly

and I ahve astham on top of this.
So, what is your guys thoughts on this?


jennifer

vernb2
09-18-2006, 01:21 PM
It looks like a duck, walks like a duck...and quacks like a duck. If you are seeing a regular doc have him/her refer you to a reumatologist. I wasted two years with my regular doc before I got brave enough to insist on a specialist...wish I had done it long before!

lunajen
09-18-2006, 01:50 PM
It looks like a duck, walks like a duck...and quacks like a duck. If you are seeing a regular doc have him/her refer you to a reumatologist. I wasted two years with my regular doc before I got brave enough to insist on a specialist...wish I had done it long before!


I guess....quack!!

Thanks for the info...the Doctor I see specializes in Uriticaria , Asthma, and Immuniology. I think he might be trying to be cautious.

But thanks for the info. :B-fly:

vernb2
09-18-2006, 01:55 PM
I spent two years with a reg doc being treated for everything from thryoid to "its all in your head sickness" finally was refered to a dematologist this summer who diagnosed me....and sent me to a reumatoligist. I saw him for the first time last week. Bottom line is you don't take your bike to the auto shop to have it fixed....

lunajen
09-18-2006, 01:57 PM
I spent two years with a reg doc being treated for everything from thryoid to "its all in your head sickness" finally was refered to a dematologist this summer who diagnosed me....and sent me to a reumatoligist. I saw him for the first time last week. Bottom line is you don't take your bike to the auto shop to have it fixed....

;) Your right....I am going to check out my health cares physicians list.

The worst part is, if this gets to be too much for me to work full time; I am the one with the health insurance, and we will be up a creek.

I seem to behaving a flare up today. Started last night with an angioedema attack and sores in my mouth. When I woke up this morning, my hands were swollen and my feet, legs ache and having muscale spasms.

He called me in prednisone, two weeks worth. Ugh....

vernb2
09-18-2006, 02:01 PM
I know just how you feel...I am a single mom...the sole breadwinner. I have health insurance through my work. Even with heatlth insurance, the co pays and deductables are an added stress. The good news is none of the bill collectors want my kidney now as payment! :D

lunajen
09-18-2006, 02:04 PM
No, they just arms and legs. :lol:

vernb2
09-18-2006, 02:05 PM
Nope mine are covered with hives and lessions so they dont want those either! :P

lunajen
09-18-2006, 02:12 PM
:lol:

Haven't gotten there yet.


I appreciate the help. Thanks.

Did I mention that my paternal aunt was recently diagnosed with discoid lupus? Didn't know if that might be a coincidence?


Jennifer :lol:

vernb2
09-18-2006, 02:18 PM
You may never get the hives....it is different for each and every person. I am the last of 11 children. No one in my family has lupus. But I understand it can run in familys. Its rare that men get it. So I am grateful I have a son.

MARYCAIN
09-21-2006, 07:23 AM
Your post shows Nashville - I assume you mean Nashville, TN. If so, hello to a fellow Tennessean - I was born in Chattanooga although we moved to Alabama when I was a toddler, I went to grad school at Peabody and law school at Vandy

Have you been to the rheumatology clinic at Vanderbilt? They have some excellent rheumies there, who might be able to get a better handle on your situation.

Unfortunately, lupus is so hard to diagnose because it can look like a hundred other diseases, and many of the symptoms, like fatigue and joint pain and Reynauds, aren't specific to lupus. A positive ANA can occur in many auto-immune disorders, including RA, Sjogrens, Reynauds disease, scleroderma, etc. Plus, people with no disease at all can also have a positive ANA - in fact, many relatives of lupus patients also have positive ANA tests. If you have a strong positive ANA (1:160) or higher, doctors will generally run a complete antibody panel, looking for antibody subsets which are more specific to lupus (like ds-dna, anti-sm, etc) These antibody subsets can also help your doctor distinguish between lupus and other auto-immune diseases like RA. If you don't have any of these other antibodies, and your ANA is only borderline positive, your doctor may not think it is significant for lupus.