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Kaza studying Nursing
08-26-2006, 06:51 PM
Hi Guys

I have managed to get a little further on my assignment, but think I am just about to lay down and go to sleep again, if I can.

I went to the doctor yesterday, as for the last four days have been suffering from Migranes, extreme back pain and pain in the location of where my kidneys are.

As I have told you all, I do have Hashimoto's Disease, have an appointment with a different endocrinologist mid September, can't get into Immunologist until 4th December. I was just wondering who diagnosed you with your condition. After speaking to somebody else with Lupus, they suggested a Rheumatologist. I am lost, should I be trying to see on of these as well.

I have not tested positive to SLE but have tested positive to Rho52 in Australia or Ro52 overseas which apparently causes Lupus in babies. I asked the doctor that I went to yesterday if all of this could fit under the umbrella of lupus and he said yes, my hips ache as well and although He put me on more stronger pain killers, migrane has subsided but my back is aching big time, as well as my hips.

I am determined to continue with my Diploma of Nursing and are going to make an appointment to see the head of department, and if I turn up for half a day of a Monday (which is prac - stay up to date with that) and half a day on Wednesday which is Medications (as you have to get 100%) pass mark in the test. I thought the rest of the time I could slowly be working on my assignments and laying down sleeping when needed, which seems to be most of the time.

How long did it take all of you guys to be diagnosed? And how many of you out their suffering from Lupus suffer from other Autoimmune Diseases?

Any comments would be most appreciated.

Thanks for all concerned, unfortunately all in this boat together, and it appears to be really rough ride.

Karen

Saysusie
08-27-2006, 10:08 AM
Hi Kaza :lol:
My diagnoses took almost a year (and that was even after my butterfly rash was spotted by a rheumy who was a Lupus specialist on my first doctor's appointment!). By the time I finally got a diagnosis, I had lost almost all of my hair, the lesions on my hand were so bad, I couldn't even hold my toothbrush, I was so sick, I spent almost entire days in bed.....I could go on and on, but I'm sure that you get the picture!!
Like most of us, I have other illnesses on top of Lupus. Mine include Raynaud's, Fibromyalgia, IBS, TMJ and others!!
So, you see, you are not at all alone. We have all, at one time or another, been there....done that :)

I wish you the best
Saysusie

ButterflyRN
08-28-2006, 06:01 AM
Hi Karen! It took the doctors about 3-4 months to diagnosis me. When I was diagnosed I was hospitalized with fluid around my heart and half way up my lungs, fever and swollen eyes/lymph nodes, along with fatigue. They happened to open the blinds one day and in came the sun and out came my butterfly rash.

Hang in there with Nursing school! It it's tough but hopefully your professors will be understanding. Are you doing clinicals at the hospitals yet? Make sure your counts are checked periodically so you are not putting yourself in a dangerous situation around the other sick individuals...especially the communicable diseases.
Seeing a rhematologist would be a good idea. I was diagnosed by a physician in a diagnostic refferal group, but they specialize in finding what is wrong when noone else can. I was first tested for childhood leukemia before lupus was even thought about. I saw that group and my nephrologist until I was 22. Now I see a rhematologist and nephrologist.

Well I hope it all works out for you Karen! Keep us posted. ~Butterfly