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jaynedarcy
08-10-2006, 02:23 AM
I have the fatigue that seems to be ever present with Lupus, but I also have insomnia. Not a good combination.

This week has been a hard one for me, and tonight is another nearly sleepless night. I'm terribly tired, but I cannot bring myself to go to bed.

As I sat here, finding little things to keep me occupied, flipping through tv channels and infomercials, I think I discovered one possible reason for my insomnia.

I dearly wish to sleep, because when I do sleep, I can dream about being healthy and normal. However, when I wake, something new gone weird comes along.

My mind seems to have decided that if I stay awake, I can stop Time and prevent any new, weird, symptom that I have no control over from appearing.

I wish that I could tuck my overactive mind into a little velvet-lined box far under the ground where I cannot hear it working against my sanity.

MARYCAIN
08-10-2006, 06:36 AM
Unfortunately, insommnia and sleep disturbance seem to go with the territory, and a lot of lupus meds just aggravate the problem. There are some natural things that night help, like avoiding caffeine or exercise late in the day. Both chamomile and catnip teas are calming, so are valerian, kava, hops, and passionflower. You can find them in most natural food stores. I have an oasis sound machine I use at night - it can be set for different sounds like ocean waves or thunderstorms and it really helps me to relax and meditate. Lavender and other aromatherapies might also help. If you're desperate, your doc can always prescribe sleep meds. I try to avoid them because I have to take so many other meds.

jaynedarcy
08-10-2006, 10:34 AM
I used to take valerian; it amused me for some reason as to how it smelled like sweat socks. I may try that again, along with the quiet music to get me over that block that wants to keep me awake.

MARYCAIN
08-10-2006, 11:45 AM
I actually do pretty well with catnip tea, sweetened with honey. The only problem is fending off my cat, who thinks the catnip supply in the house is reserved for him. If you don't mind feeling groggy the next day, OTC benadryl also works as a sleeping pill.

jaynedarcy
08-10-2006, 11:52 AM
Catnip tea is one I've never heard of. Benadryl is one thing I can't do. I've used that so often for allergies, it actually hops me up.

Sunshine101
08-12-2006, 03:11 PM
Hey, how about that potion that (I think it was Solesinger) told us about? It was a hot toddy of water and vinegar. I haven't tried it, but she said that she learned of it through her sister and that it works. Keep us posted and let us know if you find something that works well! Sunshine101

jaynedarcy
08-12-2006, 03:23 PM
Water and vinegar? urgh! I'm trying Valerian right now. The doctor ok'd it with my anti-anxiety pill I take.

hatlady
08-13-2006, 04:26 AM
I've been having some of the same issues lately. I like the idea that I'm struggling because I'm trying to stop time - oh how prophetic that statement is Janedarcy :!: :!:

I often try hot milk, sometimes with a bit of honey. A lot of times it will help me sleep the whole night. Other times I still end up sitting staring into space, or reading, until dawn. Then I'm so groggy the next day....sigh....

My doc gave me an Rx for a mild dose of ambien sleeping pills. I filled it, and now it sits on my kitchen table. TAKING sleeping pills? Well, I don't want to take the first one on a weekday night, afraid I'll be too groggy the next day. And on weekend nights? Well, just haven't gotten around to it... so they sit unused. :roll:

buddhabelly
08-13-2006, 06:54 AM
My problem is that I fall asleep early at night :sleeping: and end up waking up a few hours later. Then I'm awake for an hour or 2, then fall back asleep again. But because I didnt get my 5-6 hrs of sleep, I feel so tired when i wake up and get ready for work. :morning: I feel like I only take naps. I hardly ever sleep through the entire night. I used to take Tylenol PM to help me sleep, but I refuse to take anymore medicine. Oh what to do? :?

MARYCAIN
08-13-2006, 07:11 AM
If I start reading something interesting, I'll get involved and stay up all night. So I keep a couple of my old college sociology textbooks handy - they're so incredibly dull that they make me sleepy.

jaynedarcy
08-13-2006, 10:12 AM
Hatlady, do try your Ambien. Just do make sure you have a block of eight hours sleep and when you wake, you won't be groggy. I used Ambien a couple years ago, I believe when it was first being advertised. I had a really bad block of insomnia (I'd stayed up straight three nights in a row) and the doc had me try these.

They worked very well in breaking the cycle of insomnia. The reason I did not stay on them, and I could be wrong, but I understand that they're only to be used for a little while, is that I stopped dreaming. Dreams I believe are very important to one's health.

hatlady
08-13-2006, 10:58 AM
Thanks, Janedarcy, I might just do that!

I just wandered over to your blog - good reading, thanks for sharing!

kimb
08-19-2006, 02:35 PM
:D You must try Ambien, if you can get a prescrpt. from you dr.! My Prednisone keeps me from sleeping, if I happened to get to sleep, I wake a few hours later, takes me 2 hours to get back to sleep. SO....My Ambien comes in 10mg caplets-I break them into 3rds....thats all I need is a 1/3 and I sleep all night!!! I only take it when I have a bad night. Benedryl IS the SAME EXACT ingredient as over the counter sleeping aids- I cannot take it, I feel groggy the next day until 4pm!!!!
Good luck! You do need rest, give it a try.
KimbCalif. :lol:

SoleSinger
08-19-2006, 02:42 PM
No ma'am! It wasn't me!! I take Trazodone and it works pretty well...

buddhabelly
08-19-2006, 03:34 PM
I did it again. :mad: I fell asleep early last night and woke up around 2ish. I couldn't fall back asleep for a while. I laid in bed with my eyes closed, hoping I'd fall asleep. I became so frustrated, looked at the clock, felt like an hour went by, and according to the clock, only 5 minutes went by. Gosh, the time drags when you lay in bed awake tossing and turning. :( I'm going to take some Tylenol PM later, Nyquil also knocks me out. My sleep seems to consist of several naps. I wish I can sleep for 6-8 straight hours. :sleeping:

littlered
09-20-2006, 01:38 PM
In a lot of people, any kind of cold remedy, including nyquil, can cause your blood pressure to ZOOM! I ended up in the emergency room because I was taking Nyquil.
My doctor has me taking Xanax. I take .5 mg during the morning, .5 mg during the after noon, and 10 mg at night. It works for me.

Nee
09-21-2006, 10:11 AM
I have fibromyalgia along with my SLE, which is very common. Fibro comes with a sleep disorder where you can't get into the deeper sleep levels. I would have trouble getting to sleep, then I'd wake up practically once an hour. My rheumatologist prescribed low dose Elavil to take a couple hrs before bedtime. It apparently helps you get into the deeper levels of sleep. It's the only thing that helps me sleep through the night. It also is supposed to raise the pain threshold. It's an old-fashioned antidepressant that raises the serotonin levels or something like that.