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04-05-2014, 05:50 AM
Hello, my name is Stacey and I am 26. I was diagnosed with SLE in November 2012 and have had some serious ups and downs since then. My main symptoms are joint and muscle pain, numbness and tingling in my hands and feet, sun sensitivity and fatigue. My rheumatologist has been trying to figure out the right meds since my diagnosis, we have tried: plaquenil, prednisone, myfortic and vimovo. I am still taking the plaquenil and vimovo but don't get all that much relief. The myfortic made me extremely ill and the prednisone had very little positive effect. Just last week he referred me to a new doctor who is listed as a "pain management & physical rehab" specialist. He has also decided to try me on Cymbalta (I was diagnosed with anxiety/depression in the fall of 2013 by my gp but with Paxil and seeing a therapist have been feeling much better in that area). He said Cymbalta has the added benefit of pain relief... or something. I was feeling a bit overwhelmed at my appointment. It seems that he is now thinking I may have something in addition to Lupus. Anyway, that's a bit about me :)
Hello and welcome to WHL! We are so very glad that you found us. I am so sorry you are having a hard time but sadly it often takes us a long time to find the right combination of medicines that work on what is happening in our body since Lupus is such an individual disease. Hopefully they will get it sorted out quickly
please make yourself at home and I look forward to getting to know you
04-06-2014, 11:15 AM
Hello and welcome to our family. As Tgal mentioned, sometimes finding the right combinations that treat our specific symptoms can take some time and experimentation. I am glad that you have a doctor who is doing all that he can to help you.
It is quite common for those suffering from any auto-immune/connective tissue disease to also develop other auto-immune/connective tissue disease. I think that most of us have more than one overlapping illness occurring simultaneously. I have Lupus, Fibromyalgia, Raynaud's, and a few others. So, don't let this aspect of your illness frighten you too much. You are very lucky that your doctor understands this and is willing to try to treat you if you do have overlapping issues.
We are here to help you as much as we can...I am glad that you joined our family!
Peace and Blessings