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sara
07-12-2006, 06:24 AM
my GP is suggesting that i should include one capsule daily of omega 3 fatty acid and evening primrose oil to combat joint pains better. I tried to get info abt these from the net but the views regarding their role are conflicting and i am quite confused.. i wonder if any one here has tried these and benefitted ?


thanx

buddhabelly
07-12-2006, 07:03 PM
My rheumie suggested that I take Omega-3/Omega-6 Fish Oil twice a day. The oil is supposed to help with inflammation. Ive only started the fish oil 3 months ago, so, I haven't really noticed a huge difference yet.

sara
07-12-2006, 09:09 PM
thanx budhabelly for ur rsponse... thats one prob with lupus...u cannot pinpoint wht exactly helps and wht not . there could be too many possibilities e.g last mnth i decided to switich to only healthy food and included all green veggies, high fibre bread and low fat dairy products in my diet but still ended up with a bad flare maybe coz i was stressed a lot due to prob. at home.. Anyway, as long as u didnt have any side effect of fish oil, i guess there is no harm in taking .....maybe it will work if taken for a longer period :D



My rheumie suggested that I take Omega-3/Omega-6 Fish Oil twice a day. The oil is supposed to help with inflammation. Ive only started the fish oil 3 months ago, so, I haven't really noticed a huge difference yet.

ganesha
07-13-2006, 10:52 AM
I would say you got pretty good information from your GP about the omega 3 and primrose oil. I have tried omega 3 and want to get more regular about taking it, and have heard from many fronts that it is good for us. I have not tried the primrose oil, but Sharon Moore in her book on complementary and alternative therapies for lupus says good things about it and I plan on trying it eventually. I just have to be patient and try things independently of each other so I can figure out which things are really helping. Good luck and let us know if you try these items.
Take care,
Brent

sara
07-14-2006, 01:31 AM
thnx brent ! will keep u posted when i begin my experiment and u do the same :D i am very much interested in complemetary therapies and am currently on homeo. let me know of any useful websites related to these if possible...





I would say you got pretty good information from your GP about the omega 3 and primrose oil. I have tried omega 3 and want to get more regular about taking it, and have heard from many fronts that it is good for us. I have not tried the primrose oil, but Sharon Moore in her book on complementary and alternative therapies for lupus says good things about it and I plan on trying it eventually. I just have to be patient and try things independently of each other so I can figure out which things are really helping. Good luck and let us know if you try these items.
Take care,
Brent

ganesha
07-14-2006, 12:35 PM
You might get a copy of Sharon Moores book called "Alternative therapies that work" She is not trying to sell anything except a book about her experience and extensive studies into lupus. I have read it once, and plan to reread it and start incorporating some of her ideas (On amazon.com you can find sellers of used books and could probably pick this book up for under $5 as I did). Beyond that most are pushing the more western views which have some validity IMO, but I want more. I hear so many on this website taking all sorts of pharmaceuticals and still describe feeling like I do, so I am hesitant. Of course if my kidneys get involved that is a different story, but for now I will put up with just the illness, not the illness and side effects of chemicals. Good luck in your search.
Brent

sara
09-15-2006, 02:37 AM
hi brent,

just wanted to inform you that finally i was able to get a copy of the sharon moore book at last.. and guess where i found time to read it? in the hospital bed when i was recovering from surgery to remove an inflamed appendix. The surgeon who operated me was no rheumatologist but he was all for healthy diet and nutrition . He didnt insist on any particular food but wanted me to more aware what i am feeding to my body since according to him food is the cure or cause of all diseases...Another book that i came across is "new hope for people with lupus"by T.F Digeronimo and i admit that both these books made a very good reading...

Right now i am 2.5mg prednisolone taken on alternate days and symptoms are more or less in control so one of these days i am going to ask my doc whether it can be completely stopped and i could rely on painkillers instead when i feel the need...

stardust
09-17-2006, 12:50 PM
Another good book is "EMBRACING THE WOLF" by

Joanna Baumer Permut

It's the story of a woman who has lupus and talks about her struggles, acomplishments and how this affects her ENTIRE family and ways they all have learned to deal with it.

It was given to me in the start of all this and it really did provide help for me and my husband and kids. It's a very personalized story, easy to understand with just enough medical info as to not confuse you.

peach224
09-18-2006, 09:24 AM
speaking of supplements and joint pain - what particular part of the primrose oil is it that is supposed to help with the joint pain, does anybody know? Is it the GLA? My vitamin/supplement specialist recommended borage oil instead of primrose oil because he said that the concentration of the GLA is higher, but he wanted me to check in with my "experts" here before I did that. Does anybody have any input?

Thanks.