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Felicia
01-17-2014, 04:50 AM
Hi there,

My name is Felicia and I was diagnosed with lupus nearly 4 years ago. Since then I have been on all the medication that's prescribed for a lupus patient , including methotrexate which did not work for me so my specialist decided to start me on a more aggressive type of chemo which was not taken orally but had to be given via veins which meant i had to go into hospital for the treatment every 3 weeks and yes I lost my hair during that time. It was probably the worst 8 months of my life and i took a lot of strain on my body but it has worked and I have been in remission for 5 whole months now which is fantastic, as last year I was in hospital every month with a flare up and have been hospital free for 5 months now. Yes i still get the odd little flare up but it has not been bad enough for me to go be admitted into hospital.

I really hope to learn a lot from other people in joining this website and there stories.

Thanks and be safe

Regards
Felicia

Saysusie
01-17-2014, 10:41 AM
Hello Felicia;
I am so very happy to hear that you have remained "hospital free" for five months and that the chemo treatment worked for you and that you are feeling relatively good. Have you begun to grow your hair back yet?
I am glad that you have joined our family. I look forward to getting to know you.

Peace and Blessings
Namaste
Saysusie

Nodot
01-17-2014, 07:54 PM
hello everyone. my name is joy s and I have been diagnosed for 7 years with SLE, RA, Sicca, Raynauds, and GERDS. I am on a few meds, and have tried a few..inclucing chemo.. that didn't do anything but make me feel worse... and the dr has prescribed a few that my insurance just won't cover. I am fortunate enough to be on disability and I have a wonderful dr. I am 43...I have been married 23 years this year and we have a 12 year old son. Lupus does not run in my family, that we know of, so I am the "lazy one who complains a lot"...ha ha.. I take 41 pills a day, not counting vitamins, I am a vegetarian and periodic vegan.. I have found that the only way I can keep from getting sick when I take my methotrexate is to eat Ben & Jerrys with it... poor me..ha ha Anyhow...I am so happy to have found you guys and I hope to find encouragement and inspiration here.... I need it

Saysusie
01-22-2014, 02:55 PM
Hello Nodot;
Welcome to our family. You, like so many others, find that you are the only one in your family with this illness and, as such, are labeled as "lazy". That is an unfair cross that many of us have had to bear. Perhaps you can have your loved ones come to this site and read some of the stickys, especially those that deal with the symptoms of this disease. Hopefully, if they become educated about the disease and how it affects you, they will not longer label you.
I really feel badly that you have to take your MTX with Ben & Jerrys..what cruel and unusual punishment *laughing with you* At least that is one enjoyable thing that you can indulge in (lol)

Again...welcome. Make yourself at home.
Peace and Blessings
Namaste
Saysusie

cma
02-28-2014, 09:31 PM
Hi felicia :) I'm cc. I was first diagnosed at 13 and I'm now 22. I've been suffering physically mostly but I have been in remission for almost a year now.its nice to meet you