View Full Version : Does this happen to you??

07-06-2006, 07:34 PM
:?: I've been officially diagnosed with Lupus just 4 months ago. I'm beginning to learn about the disease. I've also become more aware of the symptoms that I have. I'm on CellCept and Prednisone. I'm so exhausted after a long day at work. I just want to sleep as soon as I get home. I noticed that every night, I end up falling asleep earlier than my usual bedtime, and I find myself waking up in the middle of the night around the same time to make a bathroom trip (to pee). Does that happen to anyone else? Are the meds. to blame? :?:

07-07-2006, 12:01 PM
Well i was diagnosed about a month ago and i havent worked since then.. but i remember when i did, as soon as i got home... i just KNOCKED OUT! I also wake up at 3 or 4 am just to Pee!Glad i'm not the only one! i dont think it's the meds... it's the Lupus - which i HATE! We have to drink a lot of water! So i carry bottles of frozen water around in my car with me!

U know how they say people w/ Lupus should be getting alot of rest - at least 12 hours? Lately i'm ok with just sleeping like 4-6 hours! Even tho i do get tired around 3... i still cant sleep! And then (this has been going on for a few days now) i could stay up and not look tired at 12-2am! Weird huh? i'm hoping this Lupus is dying down a bit and i not be scared to go back to the beach!

07-07-2006, 12:11 PM
When I was working, I would come home and sleep wake up about 10 for a couple hours and go back to sleep, and THEN I would sleep THROUGH my weekends!

I am also on CellCept and Pred...


07-12-2006, 04:26 PM
I'm not sure about the bathroom trip, but the other is normal. I was diagnosed 7 months ago, and at first it was horrible. I was in so much pain and so tired that as soon as I got home I would go to bed and sleep till morning. I lost a lot of weight during this time. It is getting better, but I am not working now because it just got too hard. Rest when you can and give the medicines time to work. Keep hanging in there!!!!!!

07-12-2006, 07:31 PM
Gosh, another long day of work. I'm so tired that Im going to skip dinner and just go straight to bed. I'm exhausted! :( During the work day, I try to take breaks often and sit when I can. But there are days where I wake up feeling so sluggish and tired even with 6-7 hrs of sleep. Its a type of fatigue that sleep and rest can't fix...

07-14-2006, 01:05 PM
It is called a Debilitating Fatigue and many of us know it all too well! No need to explain how it feels here - we are living with it too and also trying to get some recuperative rest :?

I wish you the best