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Nonna
10-26-2013, 04:59 PM
I just thought I'd let everyone know what I'm about right now.
First I'm sitting by the front window enjoying the ocean breeze. The salt air smells great. My Mother is calmer now and Daddy suggested that I go home from Thanksgiving. I can't tell you all the joy that is in my heart. I loved my parents and being here is very good for my health, especially my weight - I have lost 34 pounds since January. I'm weighing in at 201; 2 more pounds and I've broken the 200 pound barrier.

Woooooo whhhhoooo!!!!!!!!

My stress levels are going down, the new docs of course are re-evaluating me. My old meds seem to have stopped working. My neuro symptoms are more pronounced. My rheumy is testing for shrogens and raynaurds, she thinks I might not have SLE, but is doing in depth testing that my old rheumy didn't do.

I'm calmer now, but it still have stressful days. I'm learning how to handle my Mom better. My time at the pool is a big help.

I'll let you know the test results when I get them next month. I go for my final test on Tuesday; it's a Dat-scan. Should be interesting, never had one of them before.

Hugs and Good Thoughts

tgal
10-27-2013, 06:54 AM
First...congrats on the weight loss! Not only will that make you physically feel better it is clear by your post that it is having a huge mental affect on you. Way to go girl!!!

Second...awesome news about going home! I know how happy that makes you and I am so happy for you! Please enjoy yourself!

Lastly, let us know how all the testing goes and the update on your Heath. You know we care abou you no matter what name anyone wants to put on your disease

Saysusie
10-27-2013, 08:47 PM
Yes, many congratulations on the weight loss and I know that you will break the 200 mark! You are already so close.
I am happy to hear that you are calmer, that you are happy, and that your stress levels have reduced significantly. I am also glad to hear that your doctors are running thorough tests in order to find appropriate treatment for you. Warm hugs of congratulations!!

Peace and Blessings
Namaste
Saysusie

BonusMom
10-27-2013, 10:14 PM
Congrats on the weight loss Nonna! Slow and steady wins the race! I'm happy to hear that you're making time for yourself. Exercise is great for de-stressing (and weight loss, too!).

Pleased that you're able to "go home" for Thanksgiving. That will be a welcomed respite for you.

So happy that your new docs are doing further studies. I have Sjogren's and Raynaud's, in addition to SLE. Whoopie! You know that AI disorders travel in "packs," correct? Yep, they aren't known to be loners.

Anyway, thanks for the update. Keep us posted on your test results.

steve.b
10-28-2013, 07:48 AM
I just thought I'd let everyone know what I'm about right now.
First I'm sitting by the front window enjoying the ocean breeze ........

by your first line ..... i knew you were in a better place (within), than you have been for a while.

i am glad to hear that your life is finding its balance.

Australians do not celebrate thanksgiving ...... but we do believe in the concept.
enjoy it where ever you are !!!!!!

i am very happy to read the many other happy messages within your post.
i have been thinking of you often ...... hoping you can once again smile (and truly mean it)

I too have Sjogren's and Raynaud's, in addition to SLE. unfortunately it appears to be a consistent mix.

Nonna
11-03-2013, 07:34 AM
Broke the 200 barrier"................yeah!!!!!!!!!!!

debbie-b
11-03-2013, 02:34 PM
Broke the 200 barrier"................yeah!!!!!!!!!!!

Veryyyyyyy awesome.

Debbie

tgal
11-04-2013, 10:00 AM
So proud of you!!!! I know how happy that makes you! I am not one that worries about what people weigh as long as they are happy and healthy but I can hear the joy in your post so I am celebrating with you!

Nonna
11-07-2013, 01:02 PM
Got my blood test results back, definitely still SLE, but thankfully not active.