View Full Version : new member, new diagnosis

09-14-2013, 05:14 PM
I just got diagnosed on thurs 9/12 which was my bday. The dr left me a voice message saying I have lupus, I called him back and had him fax me the lab results of the ANA Screen, IFA w/Reflex Cascade : Test ANA Direct, ANTI-DNA (DS) AB QN, whatever the hell this means. No one has spoken to me since thurs, I have called and left messages, everyone keeps telling me to follow up with rheumatology, the first available apt is jan 13. I am scared and when I go to the dr (or on weekend after hrs triage sends me to urgent care or ER for symptoms they treat me like crap. especially memorial) no one helps me they blow me off and I have no information about anything besides what I have read online, which makes my symptoms scarier. I need help, I want to make sure the lab tests are correct, but no one seems smart enough to read the damn thing. I don't know how to relieve the symptoms and im just getting more pills from the dr with no relief. Help please

09-15-2013, 07:36 PM
hi devilducky, sorry no-one has taken the time to explain things. most of us are able to lead a normal life, although many have to modify there activities. trying to put it basically...... our medicine is designed to slow down our immune system. it is currently in overdrive. if you can get the balance just right, it is possible for the lupus to go into remission. this does not happen often..... so many of us need to do a balancing act with our medications. we do this balancing act by taking 3 monthly blood tests. the doctors read the tests and adjust our meds as required. if you read some of our posts ..... you will see many of us still work. unfortunately some of us cant. a rheumatologist is a doctor who specialises in our type of complaint. so he/she is the best person to treat us. but please read some of our older posts, they are our experiences with lupus.

09-15-2013, 09:02 PM
Thank you! I will continue reading the posts, I find I can handle just about anything if I know what's going on

09-17-2013, 07:27 PM
Feel free to ask questions here as well. We are not doctors but if you have a certain questions about a symptom then go into that section of the form and ask it! Lots of great people here with way too much expperience