View Full Version : if it weren't for Lupus, Fibromyalgia and Parasthesia, I would be shopping right now!
09-13-2013, 07:25 AM
Hello to all! I live in the DFW area of Texas. I was diagnosed as a Lupie a little over 2 years ago and fibromyalgia and Parasthesia a short time later. I have Raynaulds as well. Am on plaquinel 200mg for the Lupus. right now my biggest problem is PAIN! I have allergies to different antibiotics and narcotic pain meds so when they took Darvocet off the market, my only option for pain control is Tramadol, which I can't take much of because I take Cymbalta and it doesn't work very well for me. I weaned myself off of Lyrica since it helped a little but not enuf to put up with the weight gain! I gained 30 lbs in a year! I am considering going to a pain specialist, and have an appt with my primary to talk about it. My rheumie hasn't been too helpful when it comes to pain management, my primary is better tho, but still not getting much relief. Am asking for opinions about low dose steroids. I feel so much better when I am on a Medrol dose pack. Every symptom seems to decrease in intensity and I feel like me again. I am 44 years old and feel like I am an old woman! I hope everyone has a good day,
09-13-2013, 01:24 PM
I'm newer to a diagnosis, but not to symptoms. I've been diagnosed with Lupus and Sjogren's. I have the allergy to plaquinil, so I take MTX. Until the MTX kicks in I take 12mg methylprednisone. In the beginining I got some relief from this dose of steroid. However, when I had my allergic reaction I was given a Medrol shot and the prednilosone pack. My joint pain was gone for that week! I felt normal, which I hadn't felt that in my hands for 6 months. When the pack was done I went back to my 12mg of methylprednisone. Unfortunately, all my pain returned at the same level as before. My hands were still usable (before any treatment they were non-functioning, and painful if others touched my hands). I let my rheumy know and he said to adjust my doseage to what I was taking with the pack. So I went to 22mg of methylprednisone. Unfortunately, no additional relief, so the doc put me back to the 12mg. So I'm hoping the MTX will kick in and get rid of the pain all together.
I've only been on the 12mg of steriods for 2 months, so I don't really know if other side effects will pop up, but I'm thankful for the ability to hold hands with my partner even if I can't cut my own food at dinner... I'll take what I can get I guess. The one thing I have noticed is I can feel my heart beat thoughout my body. It's that feeling when your blood pressure is too high, or like the throbbing from a headache but in weird places like my belly or neck. My doc said not to worry about it though...
I have previously tried tramadol and recieved no relief at all. It was less of an effect than taking advil for me. I did also use Cymbalta before I was diagnosed. It helped me get out of the cycle of depression from my medical issues making my medical issues worse, so after 2 months I tapered off (with my primary's recommendation).
Good luck with figuring out how to get relief from the pain. I don't know if my experiences were very helpful, but I do wish you the best of luck!
This is the reason why I love online shopping, I never have to leave to house unless its for groceries.